Chloe Joyner

Advocate for Usher syndrome community

[Chloe Joyner @JoynerChloe]

@coniston14 Thanks very much @coniston14 I'll look out for the update

[Chloe Joyner @JoynerChloe]

@coniston14 Please can you let me know the date for next year's Coniston 14?

[Chloe Joyner @JoynerChloe]

Very rare opportunity to fund #ushersyndrome-specific research. All donations given before Tues 5th December will be doubled, so please don't hold back! https://t.co/4iehi1oQmH. #ushfamily @Usherkidsuk @UsherCoalition https://t.co/P9Jbdgz1h8

[Chloe Joyner @JoynerChloe]

Please take a look and follow @usherkidsuk to find out more about the support they want to provide for the #ushfamily in UK #ushersyndrome

[Chloe Joyner @JoynerChloe]

Sometimes it takes a while for Usher kiddos to get the hang of the sunglasses regime.... #takebackthelight2020 and #USHEQX

[Chloe Joyner @JoynerChloe]

Heading to LA for auditory habilitation 4 yrs ago. Where will our search for an Usher cure take us? #destinationushercure @UsherKids #USHEQX

[Chloe Joyner @JoynerChloe]

Here's where all our journeys begin. Big shout out to our #ushfamily and #usherkidsaustralia #USHEQX #ushersyndrome

[Chloe Joyner @JoynerChloe]

Incredible account of resilience post-#ushersyndrome diagnosis. Thanks @UsherKids working for awareness and a cure https://t.co/7nTeuDI7De

[Usher Syndrome Coalition @UsherCoalition]

#OwntheEquinox Day 17: "We could change things because now we were two..." @UsherKids #USHEQX #UsherSyndrome https://t.co/cH5e1e9bZ5

[Chloe Joyner @JoynerChloe]

#ushfamily going for gold at the Paralympics, fantastic! https://t.co/cxXRfiotp8

[Usher Syndrome Coalition @UsherCoalition]

4 Usher paralympians! @becca_meyers (USA Swimming) @JackHodgsonJudo (GB Judo) @katiek23 (AUS Triathlon) Amanda Cameron (NZ Cycling) #USHEQX

[Chloe Joyner @JoynerChloe]

All families living with #ushersyndrome Event 17/09 Manchester. Thnx 2 host @genienetworks + sponsor @mollywatttrust

[Chloe Joyner @JoynerChloe]

The equinox campaign gives our Usher community a voice, here's mine.... https://t.co/I74gaUE09a #USHEQX #ushersyndrome #owntheequinox

[Chloe Joyner @JoynerChloe]

Big thank you to @mollywatttrust for sponsoring our #usheqx event 17/09/16 and supporting the next generation living with #ushersyndrome

[Chloe Joyner @JoynerChloe]

Thx for RT @LindsayGrahamUK @usher_syndrome @UsherIreland @UsherCoalition Day 1 of #usheqx led to an Usher family signing up for event, yay!

[Chloe Joyner @JoynerChloe]

It's that time of year again #usheqx This year I'm determined to connect families living with #ushersyndrome in UK. Event: 17/09 Manchester

[Chloe Joyner @JoynerChloe]

@chethush3 Hi, I'm organising an event for children with Usher syndrome and their families on 17 Sept, Manchester

[Chloe Joyner @JoynerChloe]

@mollywatttrust Great to hear you too, lots of useful tips for #usher parents. Def keen to get families together 17 Sept, watch this space..

[Molly Barnes (aka Molly Watt) (deafblind) @MollyWattTalks]

I'm proud 2 be a @sensetweets ambassador & happy 2 give my time 2 such important issues #denial #acceptance 19/7 https://t.co/UGwnhAUt2Q

[Chloe Joyner @JoynerChloe]

@chethush3 Hi there, thanks for msg, sorry for delay. I'm planning a Manchester event for families of children with Usher syndrome 17 Sept

[Usher Syndrome Coalition @UsherCoalition]

#USH2016 is sold out! @UsherChair shares why this is a GREAT problem to have. #USHFamily https://t.co/KJOQ9n3zuF

[Molly Watt Trust @mollywatttrust]

#ushersyndrome is the most common cause of congenital #deafblindness