Ten Commandments of Caregive Resilience - do you recognise any of your own sticking points here? Which one would be difficult to put into practice? Is there one you can choose to consciously try today?
HDYO board meeting day 2! Planning for the future to figure out the best ways to continue and improve support the young people impacted by HD globally!
Our 3 Queens were joined by the @rafredarrows this evening following their spectacular Cowes Week display, they completed an amazing fly over as our fleet departed Southampton.
#redarrows#cunard#cowesweek
Hi everyone
This morning we received a media release from Roche with some really exciting news. The European Medicines Agency (EMA) has designation RG6042 (formerly known as IONIS-HTTRx) as Priority Medicine... https://t.co/N7ptmmfe2k
HDawareness I think it’s important that as carers of a family member who has Huntington’s we realise we are human with all our faults.I take care of my wife 24/7 there are times when I think fuck this I have enough and then all the shit sets in guilt etc and then things change