Lagenia Clark

My son Justin (13) and daughter Lexi (9) both have #GAN, a rare, fatal gene disorder. We run triathlons & do fundraisers to raise research $ #LetsWhipGAN

[Lagenia Clark @JustinsTriumph]

Thank you @HoustonChron for featuring our family! Bellaire family wages war against rare, deadly disease http://t.co/nMcZwbXEHL #hounews

[Lagenia Clark @JustinsTriumph]

Houston Friends, consider volunteering if you don't have an athlete aged 5-15 who is racing. Use this link to volunteer: https://t.co/Pc0dvKyOwB https://t.co/nNeuwxx1PD

[Lagenia Clark @JustinsTriumph]

Please sign up ASAP in order to ensure a shirt in your child's size. Ages 5-15 https://t.co/OuFOo7pS8k

[Lagenia Clark @JustinsTriumph]

These awesome kids volunteered for IRONMAN Texas this Saturday on behalf of Hannah's Hope For GAN. We will receive one of the community grants thanks to their service. https://t.co/ZFWxzEIZ6s

[Lagenia Clark @JustinsTriumph]

https://t.co/qcDG04jqqB

[Lagenia Clark @JustinsTriumph]

Thankful for everyone who ran for GAN today in The Woodlands Marathon! https://t.co/p0IWfYfnnn

[Lagenia Clark @JustinsTriumph]

https://t.co/whOwvRPOl3

[Lagenia Clark @JustinsTriumph]

#RareDiseaseDay https://t.co/lnyCf2RjRu

[Lagenia Clark @JustinsTriumph]

Consider helping us celebrate Rare Disease Day by donating $7.60 to help us find a cure for GAN. That's just 10 cents for each of the 76 known patients with GAN Worldwide. The top 20 fundraisers at The Woodlands... https://t.co/CXMEPVjT9b

[Lagenia Clark @JustinsTriumph]

https://t.co/RZwcLDWqQw

[Lagenia Clark @JustinsTriumph]

https://t.co/uI0U38yGqF

[Lagenia Clark @JustinsTriumph]

Please consider making a year-end gift to Hannah's Hope Fund. Sara is racing on Saturday and there is money for the top fundraisers! If we can raise $300 more before noon CST tomorrow, we will get an additional $400 https://t.co/bXfjsoDf4b

[Lagenia Clark @JustinsTriumph]

We are almost 1/2 way to our goal! Thanks to everyone who has donated. https://t.co/FgPX3p7HQW

[Lagenia Clark @JustinsTriumph]

Thanks to everyone who has already given! Please share this on your page and help us reach our goal. We have a separate donor who will match an additional $10K that isn't matched through #GivingTuesday so please... https://t.co/RG75U2DPiv

[Lagenia Clark @JustinsTriumph]

Thanks for the support so far. Tomorrow is the BIG Day. Please consider donating at 8am EST so your donation will be doubled through #GivingTuesday. Help us find a cure for GAN https://t.co/FzOvi1i3wI

[Lagenia Clark @JustinsTriumph]

Hannah's Hope Fund - DOUBLE your DONATION https://t.co/c8uyapzu4q #vr4smallbiz https://t.co/ZFRSiYqvKV

[Lagenia Clark @JustinsTriumph]

Love our GAN family. We are small in number but mighty. https://t.co/MqRULB7YRu

[Lagenia Clark @JustinsTriumph]

ABC13 Houston's game of the week was the Thomas vs. St. Pius X High School. ABC13-Pooja Lodhia interviewed Senior Justin Clark who recently received his Eagle Scout (Troop 222 Bellaire) about GAN and what he is doing to help raise awareness. https://t.co/ved2XRQUvt

[Lagenia Clark @JustinsTriumph]

AmazonSmile has donated over $100 million to charities thanks to customers shopping at https://t.co/8E8nlK535F. To celebrate, AmazonSmile is donating 5% (ten times the usual amount) to Hannahs Hope for Giant Axonal Neuropathy Inc when you shop... https://t.co/mJDrWiw1mT

[Lagenia Clark @JustinsTriumph]

Update on Levi https://t.co/jT0lBSZET1

[Lagenia Clark @JustinsTriumph]

As we have mentioned before, GAN patients eventually require scoliosis surgery. The recovery is usually very difficult due to the other complications related to GAN. We hope Levi’s recovery goes smoothly. https://t.co/Y9QezyWb0h