Kids with CKD

Helping understand the health & wealth in kids with chronic kidney disease

[NAVKIDS2 @navkids2]

Listening to the experiences and needs of families experiencing CKD has been central to developing the NAVKIDS2 study.
Find out more: https://t.co/kKuNi6ugoU

#kidneyhealth #ckd #kidswithckd @CKRRenal @BEAT_CKD @KidneyHealth

[NAVKIDS2 @navkids2]

Throwback to Dr Kerry Chen highlighting the importance of understanding the impact of CKD on children and their families. We hope that our patient navigators at NAVKIDS2 will provide much needed support to kids with CKD!
https://t.co/Cy3s4X2anA
@CKRRenal #kidneyhealth #ckdkids

[NAVKIDS2 @navkids2]

Good news! The NAVKIDS2 study will start at the end of June at the Childrens Hospital at Westmead
https://t.co/4sVoyJGp3z
#kidneyhealthaustralia #kidneyresearch #patientnavigators @germjacq @Kidney_Trials @CKRRenal @BEAT_CKD @allisontong1

[NAVKIDS2 @navkids2]

The official NAVKIDS2 website is now live! Head over to https://t.co/IBrFrlCghj to discover more about this exciting new study
#kidneyhealthinitiative #kidneyhealthaustralia #kidswithCKD #kidneyresearch #patientnavigators #navkids2 @BEAT_CKD @CKRRenal @Kidney_Trials @KidneyHealth

[BEATCKD @BEAT_CKD]

Want to make research relevant and meaningful to patients and families? If you are living with CKD or if you are a caregiver we invite you to apply to join the BEAT-CKD Advisory Board - your experience and expertise are needed! https://t.co/k8yTMLTfn4 (closes 30th Apr)

[Kidney Health @KidneyHealth]

1 in 3 people in Australia is at increased risk of developing kidney disease and 90% of kidney function can be lost without any symptoms. Don’t be blind by waiting until you feel sick; find out if you’re at risk by taking the test: https://t.co/osTOP59HTB #KHW18 #KidneyRiskTest

[CKR @CKRRenal]

Raising money for research for kidney disease at The Children’s Hospital at Westmead with our kidney cookies! @CKRRenal #khw2018

[Kids with CKD @KidsWithCKD]

Well done team! Our researcher Dr Kerry Chen emphasising the importance of understanding the consequences of CKD on children and their families. https://t.co/EbjxYoaGcJ

[7NEWS Sydney @7NewsSydney]

A childhood diagnosis of chronic kidney disease is the start of a difficult journey. Sadly the problems don't stop there with new research today revealing additional impacts on the brain. There are ways to help. @AngieAsimus @CKRRenal @Syd_Health @Sydney_Uni @westmeadkids #7News

[CKR @CKRRenal]

Congratulations Germaine Wong @germjacq on being awarded a @nhmrc career development fellowship!! 👏🏻👏🏻

[DonateLife 💗 @DonateLifeToday]

Kidney disease affects 1.7 mil Australians. You
can help. Take part in @KidneyHealth’s
#BigRedKidneyWalk on 10 Sept!

[Jonathan Craig @JonathanCCraig]

KCAD. Maddy Didsbury. Socioeconomic impact on health perhaps greater in early stage CKD. #ANZSNASM

[Kids with CKD @KidsWithCKD]

Kerry Chen presenting our teams work - kids with CKD may be performing poorer academically #anzsnasm

[Talia Gutman @talia_gutman]

Madeleine Didsbury shows parents with kids on dialysis much more likely to fall into lower income category #Anzsnasm @ANZSN

[Allison Jauré @allisonjaure]

M Didsbury #anzsnasm the complex pic of socioeconomic status & health @KidsWithCKD @germjacq @JonathanCCraig

[Camilla Hanson @camilla_hanson]

Interesting to see how kids with CKD rate their health @KidsWithCKD @ANZSN #anzsnasm

[Anita van Zwieten @anitavanzwieten]

Social inequalities in health status for kids with chronic kidney disease - so much work to be done! @KidsWithCKD @CKRRenal #anzsnasm

[Camilla Hanson @camilla_hanson]

QOL in children with CKD - pain, emotion, cognition impacted @ANZSNasm #anzsnasm

[Anita van Zwieten @anitavanzwieten]

Interventions are desperately needed to improve QoL for kids on dialysis @KidsWithCKD #anzsnasm

[ANZSN @ANZSN]

@camilla_hanson most frequently reported outcome in trials in kids with CKD - blood pressure. QoL only in 1% #anzsnasm

[Talia Gutman @talia_gutman]

Interesting differences in ranking of top 10 outcomes between children with CKD and their parents @camilla_hanson #anzsnasm @ANZSN