Laynie Dratch, ScM CGC

Licensed, Certified Genetic Counselor 🧠🧬 Neurogenetics nerd. All views are my own.

[Penn FTD Center @PennFTDCenter]

On Jan. 31st, @LesTurnerALS will chat with genetic counselor @LayniedratchC about the role of a genetic counselor and address common questions about the genetics of ALS-FTD spectrum disorders, the genetic testing process, and more. Register here: https://t.co/kKJtznu2YQ

[Les Turner ALS Foundation @LesTurnerALS]

Have you ever considered genetic testing but aren't sure if it's right for you?
Join our January ALS Learning Series with Laynie Dratch, genetic counselor at @PennfTDCenter . She will discuss the role of a genetic counselor, and address common questions https://t.co/Dw5NYP9IpB

[Penn FTD Center @PennFTDCenter]

Join us for our 4th annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wed., Feb. 21st, from 3PM-6PM EST. Hear from genetic counselors, neurologists, & social workers on the genetics of FTD/ALS. More info here: https://t.co/87wGPJnQab

[Stacey Clardy MD PhD @StaceyLClardy]

What I love about this? It’s 💯 USEFUL and PRACTICAL - including acknowledging that sometimes Neurologists have to take a role genetic testing, given the shortage of genetic counselors - and @LayniedratchC helps us to get started!

[Neurology: Clinical Practice @NeurologyCP]

Neurology Podcast: Dr. Gordon Smith & Laynie Dratch discuss integrating genetic testing into patient care for persons with #ALS & frontotemporal degeneration spectrum disorders. Listen now: https://t.co/0Ha5eOhHs2

Article: https://t.co/lwMQNUu3dB

@gordonsmithMD @LayniedratchC

[Laynie Dratch, ScM CGC @LayniedratchC]

@CEHaddadNP @End_The_Legacy @Jeanc9orf72 So impressed by the work you all are doing @End_The_Legacy , and so grateful for your time and energy raising awareness and pushing these important topics into the spotlight they deserve! 🧠🧬

[Laynie Dratch, ScM CGC @LayniedratchC]

Enjoying the ALS & FTD communities coming together at the ALS/MND meeting with a great talk from @PennBiNDLab #alsmndsymp @PennFTDCenter

[Laynie Dratch, ScM CGC @LayniedratchC]

So grateful to have had the chance to present about ALS/FTD genetics & increasing access to genetics education and care at the Allied Professionals Forum @ALSMNDAlliance with wonderful colleagues Lauren from @LesTurnerALS and @PaulWicks from Sano Genetics!

[Jean C9orf72 @Jeanc9orf72]

@CEHaddadNP @End_The_Legacy @LesTurnerALS @sanogenetics @PaulWicks @LayniedratchC Cheers to the hard work done by all 3 presenters and their teams!

[SOD1 EndALS @CEHaddadNP]

Great session! @End_The_Legacy @LesTurnerALS @sanogenetics @PaulWicks @LayniedratchC So proud to have supported this incredible work to increase access to testing and linking to support and trials for the genetic at risk community! #atriskALSFTD #ALS #FTD

[Penn FTD Center @PennFTDCenter]

"Having somebody understand what you're going through and explain it to you in ways that you can understand changed my life." Check out Penn FTDC genetic counselor @LayniedratchC's interview with @6abc on the life-changing benefits of genetic testing: https://t.co/cGVmavlqWT

[Emma Rhodes, PhD @emmaprhodes]

Having an inspiring and bittersweet day at the @PennFTDCenter memorial symposium for Murray Grossman. Here is some of Murray’s wisdom from @PennBiNDLab’s opening remarks for those who weren’t lucky enough to train with him.

[Penn FTD Center @PennFTDCenter]

Join us in person or online, Nov. 29th, 9AM-7PM EST for the Murray Grossman Memorial Symposium in honor of Penn FTDC founder Dr. Grossman. This event will feature scientific talks from former trainees and close colleagues. Registration and more info here: https://t.co/sGJ9m8nujo

[The AFTD @AFTDHope]

🌍 Today marks the beginning of World FTD Awareness Week – a global call to #endFTD. The theme for today is self-care. Whether you're a caregiver, someone with a genetic link to FTD, or directly impacted by it, prioritizing your well-being matters. Here's how you can join in:

1️⃣ Start with a small act of self-care today. Meet up with a friend, take a stroll, relish a favorite spot, or indulge in a good book or some treasured music. Dedicate a few moments to caring for yourself.

2️⃣ Share your self-care journey on social media and inspire others to do the same. Visit this link for messaging and graphics you can share: https://t.co/byQs1SrUlb

3️⃣ Show your support by changing your profile picture on social media. Follow our simple instructions at the link above.

[Laynie Dratch, ScM CGC @LayniedratchC]

@Liesl_CGC Go @Liesl_CGC go!!

[Penn FTD Center @PennFTDCenter]

READ: 🧬"The lived experience of reconstructing identity in response to genetic risk of frontotemporal degeneration and amyotrophic lateral sclerosis." by #geneticcounselor @LayniedratchC and fellow Penn FTDC researchers. Read here: https://t.co/ihtm7YsdSU

[Laynie Dratch, ScM CGC @LayniedratchC]

Excited to share this wonderful tool for the ALS community that the @LesTurnerALS Foundation created! It was an honor & pleasure to work with them on this project. Looking forward to more collaborations to promote access to & education about genetics care! https://t.co/wQpiXYYMdA

[The ALS Association @alsassociation]

(1/2) Another victory for the ALS community! Tofersen is the second treatment approved for ALS in less than a year and the third since 2017. This gene-based therapy is approved for treating people living with SOD1-ALS. Thanks to the entire community for your advocacy!

[Penn FTD Center @PennFTDCenter]

In honor of #dnaday, we’re reflecting on the late Dr. Grossman’s work as a major contributor to the study of familial FTD by pioneering genetic counseling & outreach to families at risk for early-onset neurodegenerative disease. Learn more from our center: https://t.co/aDy25cIq9l

[MND Research @PremiumXRemark]

📣 Latest news! 📣

The @US_FDA have approved #Tofersen for the treatment of #SOD1 #MND in the US. This approval is based off data from the Phase 3 VALOR clinical trial.

Mutations in the SOD1 gene account for ~2% of all MND cases.

Find out more ⬇

https://t.co/oijgXNmXao