Loeys-Dietz Syndrome

Encouraging education, fostering research, and providing support for the Loeys-Dietz community.

[Loeys-Dietz Syndrome @LDSFoundation]

"It makes us part of something." Marta of Lisbon, Portugal -- who lives with #Loeysdietzsyndrome -- shares how our 2024 Global Virtual Conference is helping her and her family access expert knowledge and community. Register now: https://t.co/iRaNV5fggi

https://t.co/09RYc6dArh

[Loeys-Dietz Syndrome @LDSFoundation]

Congratulations and THANK YOU from the bottom of our hearts! Our community REALLY showed up yesterday for LDS Day of Giving. We raised over $16K and counting...do we want to try to get to $20K by the weekend? There is still time to make a gift: https://t.co/ZRbM97hKI3

[Loeys-Dietz Syndrome @LDSFoundation]

Today's the big day! Support our 2024 Loeys-Dietz Day of Giving. There are just 8 hours left to make a big difference! 81 cents of every dollar you give supports the mission you love! Thank you! https://t.co/ZRbM97hKI3 #loeysdietz

[Loeys-Dietz Syndrome @LDSFoundation]

Download this free Kids Activity Booklet to celebrate Loeys-Dietz Awareness Month 2024. https://t.co/0S9j7S696m #loeysdietzawarenessmonth #loeysdietz #loeysdietzsyndrome #kids

[Loeys-Dietz Syndrome @LDSFoundation]

"You should always trust your instincts. The doctors did not believe that I had anything...I knew something was wrong." That's Nicole's real about life with LDS. https://t.co/g4AVmNMIEJ #loeysdietzrealreels #loeysdietzawarenessmonth #loeysdietzsyndrome

[Loeys-Dietz Syndrome @LDSFoundation]

Congratulations to the adult and child community artwork contest winners, Stephanie Morales and Ariele Damaa. Their unique, creative designs are featured on select LDS Awareness Month merchandise. Get yours! https://t.co/f5X6W0HLhr

[Loeys-Dietz Syndrome @LDSFoundation]

Spread awareness around the world! Share! #loeysdietz #loeysdietzsyndrome #loeysdietzawarenessmonth

[Loeys-Dietz Syndrome @LDSFoundation]

Share your story! What's your real? What do you want people to know about life with LDS? It's easy to spread awareness, just click. https://t.co/BdeSfQyHpZ #loeysdietzsyndrome #loeysdietzawareness #loeysdietz #rareconditions #loeysdietzawarenessmont

[Loeys-Dietz Syndrome @LDSFoundation]

Got Conference merch? Get ready! https://t.co/DiLApa6oWQ #marfan #loeysdietz #VEDS

[Loeys-Dietz Syndrome @LDSFoundation]

Thinking about participating in a research study? Check out current studies: https://t.co/Qzg8Ud0zwh #loeysdietz #loeysdietzsyndrome

[Loeys-Dietz Syndrome @LDSFoundation]

Want to teach your patient about their Loeys-Dietz diagnosis? Use our resources: https://t.co/BLtdIkqu3I #loeysdietz #loeysdietzsyndrome #medtwitter

[Loeys-Dietz Syndrome @LDSFoundation]

Who has an emergency alert card? Did you know we have one you can download? https://t.co/rUZXX2TiQE #loeysdietz #loeysdietzsyndrome

[Loeys-Dietz Syndrome @LDSFoundation]

Double Rare: https://t.co/0REoMswZAB #loeysdietz #loeysdietzsyndrome #loeysdietzawareness

[Loeys-Dietz Syndrome @LDSFoundation]

Learn about Loeys-Dietz syndrome: https://t.co/z1Nut4b2cs #loeysdietz #loeysdietzsyndrome #raredisease

[Loeys-Dietz Syndrome @LDSFoundation]

Raise your hand if you have registered for our Global Virtual Conference. https://t.co/Ky5CC0RN4u

[Loeys-Dietz Syndrome @LDSFoundation]

Get to know your treatment options for Loeys-Dietz syndrome: https://t.co/o4tm6lVjb9 #loeysdietz #loeysdietzsyndrome #raredisease

[Loeys-Dietz Syndrome @LDSFoundation]

Will we see your family at one of our upcoming Loeys-Dietz events? https://t.co/qrJYYwhmqN #loeysdietz #loeysdietzsyndrome

[Loeys-Dietz Syndrome @LDSFoundation]

Have you shared the main characteristics of Loeys-Dietz syndrome with your colleagues? https://t.co/BLtdIkqu3I #loeysdietz #loeysdietzsyndrome #medtwitter

[Loeys-Dietz Syndrome @LDSFoundation]

Living Well Within the Rules: https://t.co/9jpQJloVhK #loeysdietz #loeysdietzsyndrome #loeysdietzawareness

[Loeys-Dietz Syndrome @LDSFoundation]

Strong Today: https://t.co/oN8uXjSyh7 #loeysdietz #loeysdietzsyndrome