The LEITH Lab

LEITH Lab strives for compassionate care and humanizing research in rare diseases among historically underrepresented communities. Directed by @AudreTaughtMe2

[The LEITH Lab @LEITHLab]

Thank you so much for all your support, Twitter family! We’re excited to announce that our lab will be fully moving to Bluesky at the beginning of next year.

You can also follow our instagram: @/TheLeithLab! See you all there!
#EndALS #Bluesky

[Maceo Carter @MaceoCarter]

https://t.co/jnPnjirGGB
great feeling to see advocacy work making a true difference!! Shout out to @zlwichter for his year-long investigation and publication of our issues!
#EndALS

[The LEITH Lab @LEITHLab]

It is important to center disability justice in ALS spaces especially as we begin to understand what a truly equitable society can look like. This @nytimes article shows the importance of making disability rights a societal priority #EndALS

Read more: https://t.co/BfufaF0xRG

[The LEITH Lab @LEITHLab]

Maceo Carter, living with ALS since 2016, continues to defy limits—working full-time and staying active with his family’s unwavering support. @MaceoCarter #EndALS

Read more about Maceo and Maya's journey: https://t.co/bUGD2ojME1

[The LEITH Lab @LEITHLab]

Disabled individuals face disproportionate impacts from climate disasters, often due to systemic barriers. Building a sustainable future means advocating for inclusive, accessible policies. #EndALS #disabilityJustice

Read more about this at: https://t.co/Fj1AJkvjUn

[The LEITH Lab @LEITHLab]

Eye-tracking technology continues to be a game-changer for people living with ALS, empowering them to communicate and express themselves. Learn how advancements are making these tools even more accessible. #EndALS

Read More: https://t.co/nMUo767hBz.

[The LEITH Lab @LEITHLab]

Support groups play a crucial role for people living with ALS, These communities offer a space for sharing experiences and accessing resources that can help navigate the challenges of the disease.#endALS

https://t.co/C91NHZ26T5

[The LEITH Lab @LEITHLab]

Are you Black and living with ALS or a caregiver for someone who is? Join our Facebook group, a safe space to connect, share experiences, and find support!

https://t.co/bcZs4pGFIl

[The LEITH Lab @LEITHLab]

We're highlighting another anonymous quote from a focus group where a caregiver shares the need for better care for caregivers. Programs like National Family Caregiver Support can help.

Follow the link below to find out more https://t.co/an6bEoldXh

#EndALS

[The LEITH Lab @LEITHLab]

While family caregiving is a labor of love, you deserve to compensated for this labor! Follow the link below to explore options for state funding and see if compensation is available in your state! #CareforCaregivers #EndALS

https://t.co/84HgJQj8GT

[Tracie Canada (traciecanada.bsky.social) @tracie_canada]

so excited to share an article @AudreTaughtMe2 and i wrote that just came out in current anthro @WennerGrenOrg 🥳🥳

here we theorize “weathering in sport” to discuss how black athletes are harmed and omitted from convos about injuries and illnesses 1/n

https://t.co/k972kf1jfx

[The LEITH Lab @LEITHLab]

We want to share this anonymous quote from one of our focus group members that embodies the challenges family caregivers face and their overflowing resilience that always finds the energy to "do what you got to do" #EndALS #nationalcaregivermonth

[The LEITH Lab @LEITHLab]

A common misconception is that children can not be impacted by ALS that is an incorrect and dangerous assumption! #EndALS #PediatricALS

[Melanin Children Matter @ChildrenMelanin]

Being told my child doesn’t have ALS because it’s rare in kids was beyond painful. Let’s fight for a world where rare diseases aren’t dismissed. #SPTLC2 #PediatricALS #RareDiseaseCommunity #AdvocacyMatters
https://t.co/OcRlCLGtp4

[The LEITH Lab @LEITHLab]

This month we are centering Family Caregivers and their experiences!

[The LEITH Lab @LEITHLab]

November is National Family Caregivers Month. This month, we honor the emotional strength of ALS caregivers—the unsung heroes whose resilience is unmatched. #CaregivingMonth #ALS

[The LEITH Lab @LEITHLab]

We must recognize, respect, and support ALL caregivers (paid and unpaid), not only in November, but every day. They embody love in action and deserve our utmost admiration. Let’s uplift their stories and stand with them. #CaregivingMonth

[The LEITH Lab @LEITHLab]

This Family Caregiving month I Am ALS is #CallingAllCaregivers to share their stories! Follow the link below to share your story or listen to community member's stories! #EndALS

https://t.co/g8uDtjNGII

[Maceo Carter @MaceoCarter]

Today makes 8 years since I've been living terminally. In ALS years I'm 93!!!! Salud!!! #EndALS #GDTBATH