I have ALS. Move forward w/a positive attitude. Love my wife & 4 kids to the end of the Earth. Beat cancer at 21. Time to beat this devastating illness! USC '90
On rare disease day let’s be clear — ALS is not rare. People just die from it so fast that at any given point there aren’t a ton of people living with it. That doesn’t make it rare. It makes it urgently in need of research and answers.👇����
One year ago this week Freddy Cole and I were together for ten performances at @birdlandjazz. @FreddyColeJazz was on fire each show🔥 Hard to believe he is gone. I’ll miss him forever and will always see him in an “Orange Colored Sky!”
Watch 👀 https://t.co/oJIazB40MS
@TeamGleason is amazing! Because of them, I can write this tweet, make this map https://t.co/vud902csuE & continue to thrive with #ALS. God bless #TeamGleason & all who support them! Special thx to @Esri for allowing me to continue my life’s work @SteveGleason @TobiiDynavox #Esri
Terrible to lose the young and talented Rebecca Luker, to ALS! Thousands like my sister are fighting for their lives every day with this vicious disease. We are fighting as well every day to get that much needed cure. https://t.co/eNOPJNvgrp
#Nurown - clear trend for improvement, significant change in biomarkers, no reports of safety issues & multiple UNPRECEDENTED success stories.
Approve Nurown NOW so all #ALS patients get a chance to fight for our lives. @FDACBER@DrWoodcockFDA@SteveFDA
https://t.co/sBwVh8iRg4
ALS is a devastating & cruel disease. That's why I’m proud to have been on the House floor leading the passage of a bill that makes it easier for people with ALS to access their earned #SocialSecurity benefits. We need to eliminate these waiting periods for ALL severe diseases.
Proud to share Phase 3 trial data! Full of gratitude for trial participants. You are all #ALS Heroes! #Thankful to each one of you and your loved ones! #biomarkers!
I just decided to enter this video contest...if you want to find out what alpacas and jazz have in common, please go to this link: https://t.co/HNEf8OlEJp
Find my 60 second video titled "Alpacas, Jazz and Me" and vote in the upper left corner!