LongCovidBE

All about #LongCovid in Belgium

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

Very much needed #LongCovid research projects just announced by @NIHRresearch
Congratulations to all the successful investigators
Glad that patients were listened to and hope these studies start to make a difference to lives very soon

https://t.co/idTvTOR5Ck

[BBC Panorama @BBCPanorama]

Linn has been off sick for more than a year with long Covid

She says it’s taken her “whole life” from her

Now she’s part of a study looking at how organs are affected by the condition

More on #BBCPanorama tonight at 7:35pm on @BBCOne
https://t.co/YSmD2UU2Bt

[BBC Scotland News @BBCScotlandNews]

The BBC's Lucy Adams is one of 385,000 people in the UK who have been suffering "long Covid" for more than 12 months https://t.co/Ap8Optnqy7

[BBC Panorama @BBCPanorama]

BBC correspondent Lucy Adams has had long Covid for more than a year

She wakes up fatigued, and has headaches and vertigo

So what’s behind her symptoms?

Watch #BBCPanorama tonight at 7:35pm on @BBCOne or later on @BBCiPlayer
https://t.co/lLDVklVdJH

[BBC News (World) @BBCWorld]

‘Long Covid has taken my whole life from me' https://t.co/xcXWoBHPRA

[BBC Panorama @BBCPanorama]

BBC correspondent @BBCLucyAdams is one of more than a million people in the UK with long Covid

What’s causing her symptoms - and will others like her ever fully recover?

Find out now on #BBCPanorama on @BBC One (in the UK)

Or later on @BBCiPlayer

https://t.co/yyKh8nLnhl

[Alma Tostmann 🦠📊🕵 @AlmaTostmann]

#LongCovid details uit VK

Waarbij 40% van de #longCovid meer dan een jaar klachten heeft

(Voor de enkeling die het gemist heeft: “long” betekent hier *langdurig* 🕰 en niet klachten aan je longen 🫁 )

#LangdurigeCovid is beter in het 🇳🇱

[Alma Tostmann 🦠📊🕵 @AlmaTostmann]

Ik heb al vaker gezegd dat we in Nederland veel beter een NL 🇳🇱 term bv #LangdurigeCovid kunnen gebruiken

Long staat voor lang 🕰 en niet voor longen 🫁

#longCovid = Langdurige last van moeheid concentratiestoornis benauwdheid hartkloppingen etc

Zie https://t.co/vWTgxT7BY6

[GloPID-R @GloPID_R]

📢@UKCDR @GloPID_R Living Mapping Review
Update shows #LongCovid = #Research priority⬇️

👉 Increase in #funder investment
👉 >120 Long Covid projects mapped

LOOK➡️https://t.co/Uhmwz1B2ND

#COVIDCIRCLE

@Alice_J_Norton @CKaushic @ISARIC1 @jakesuett
@CharlesShey @CIHR_IRSC

[James D Chalmers @ProfJDChalmers]

Is #LongCOVID autoimmune?
@Daltmann10 using the analogy of Lupus as a complex multisystem disease that has been poorly understood

[David Lee, MD @DaveLeeERMD]

We are also misdiagnosing Long COVID, which is also characterized by lung perfusion deficits, pulmonary fibrosis, and various neurologic sequelae. Our next studies will establish whether these autoantibodies are also present among patients with persistent post-COVID symptoms.

[David Lee, MD @DaveLeeERMD]

There are also well known associations between antiphospholipid syndrome (APS) and dysautonomia. A lecture by Dr. Hughes shared by @Dysautonomia at one of their amazing conferences. A must watch to understand APS, which is also known as Hughes syndrome. https://t.co/AZPzt6EDtC

[Vicky van der Togt @Vickyvdtogt]

Does anyone know of any pregnant longhaulers?

I'm curious to hear if there are people who were infected while pregnant went on to develop long Covid.

Also curious to hear from longhaulers that got pregnant, and how that affected their symptoms.

#DTV #AskTwitter #LongCovid

[Claire Hastie 💙 @ClaireHastie1]

REACT-2 study estimates that 2 million have #LongCovid already. Also that 30-40% of all cases have it for 12+ wks, and cases are now growing exponentially.

No wonder members of @long_covid and @LongCovidKids are struggling to access care and say our FB groups are a lifeline👇🏼

[James D Chalmers @ProfJDChalmers]

It is impossible to spend the day listening to the devastating impact of #longcovid on young people in particular, and to think that 100,000 COVID cases per day is acceptable
Mitigation of COVID impact needs to include consideration of long-Covid
@Daltmann10 @EuropeanLung

[Eelco Heer en MEester - ☮︎☮︎☮︎☮︎ - @ontwarontwaar]

ARTE documentaire over ME/CVS echt een aanrader ! Met wetenschappers Prusty en Scheibenbogen over auto-immuunlichamen. De docu geeft een goed beeld wat het is om met ME te leven! https://t.co/48jrOAY0i9

[Nwiss 🇸🇪🇪🇸🇺🇸🇬🇧🇪🇺 @Gronnet]

It’s summer. It’s 84 degrees. And I’m like an isicle. 🥶 My body is ice cold. But my temp says 100.4 (per usual), veins bulging, skin burning. Business as usual. Going on 17 months #Longcovid
Can we just get treatments. Like, PLEASE for the love of God, just give us medicine!

[Victoria @vera_tenacious]

"A new review by the Public Health Agency of Canada says more than half of COVID-19 patients might suffer from 'post-COVID syndrome' #longcovid for more than three months after testing positive."

-- MORE THAN HALF! #covid19 #cdnpoli #covid19bc https://t.co/ehwrPrXehr

[Long COVID Nederland (PASC) @LongCovidNLPasc]

"Het leven staat stil en de rest gaat door om me heen"

In @EenVandaag komt @maaikevdv123 aan het woord over de gevolgen voor haar.
"… dat er een hele grote groep jonge mensen is die langdurig ziek blijven en geen idee hebben of ze beter worden."

https://t.co/UDC8XWuUpW