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LymeScienceAlliance
@LymeScienceAlly
Scientific professionals promoting evidence-based medicine
Joined March 2015
96
Following
115
Followers
657
Posts
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Thanks for following
#lymeconference
.
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
"Look forward to working with you in the future" - Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
"Its been a very moving experience for me personally" - Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Transparency is key. We will do the best as we move forward. Taylor
#lymeconference
Who to follow
LymeTimeInRI
@LymeTimeInRI
LymeTimeInRI provides timely and accurate educational materials all centered around TBD's, the Tick Borne Diseases, easy reads, handy TickBooks and more.
Gaye Glazier
@gg5061
Citizen of the world. Mum & grandma. Traveller. Classical pianist. Carer for chronic Lyme Warrior daughter & advocate for Lyme & co’s acknowledgement in Oz.
𝓟𝓮𝓷𝓰 𝓗𝓮 何鵬
@PengHeAtlas
bioinformatics for multiome➕spatial➕single-cell; development↔disease; Assistant professor at UCSF; Tweets👉own; BlueSky: https://t.co/5yOclEVU7u
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Struck by citizen science. Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Do the best to ensure that your voices are represented. Not the end. Need to engage in ongoing basis. Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Next? action. Gather information. Input will be posted. recordings will be posted. Framework is a roadmap for action. Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Areas of agreement: need for surveillance, improved treatment guidance, education. Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Canadians are natural collaborators. Everyone says we need to work together. Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Taylor: We must make a difference, we must engage patients better.
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Shared objective to make it better for everyone. Altruism evident in people. Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Incredible learning experience for the last few days. Difficult to describe the pain I saw in people, and anger. - Taylor
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Dr. Gregory Taylor up now.
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Want to build on these CIHR recommendations. "we are equal partners"
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
CIHR outlines patient involvement from beginning for best outcomes. Wilson
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Saw opposing opinions, that is what we need. Science needs debate by all the stakeholders.
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Wilson: make sure that patients and advocates are equal partners. Foundation from which to move forward.
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
We need cooperation we have not seen before in Lyme discussion - Wilson
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
Jim Wilson (CanLyme). "We need research dollars. We need patient involvement."
#lymeconference
LymeScienceAlliance
@LymeScienceAlly
over 10 years ago
"I do believe this is an opportunity to move forward on a positive note" - Gregson
#lymeconference
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