Ssonam Maddan

Stay Positive,Work Hard and Make it Happen!! #YOLO

[Ssonam Maddan @MaddanSsonam]

Had a fabulous experience at the Red Run!! 🏃‍♂️🤓🤗🧿 https://t.co/85t6BBE2HV via @YouTube

[Shobha Tuli @shobhatuli]

Gift to thalassemics on WBDD 👏

[Ssonam Maddan @MaddanSsonam]

RT @pagthals: #TPAG is grateful to residents of #Heartsong at the #Experia Gurgaon for coming out in this heat to donate blood for #thalass…

[Thalassemia Patients Advocacy Group @pagthals]

In a delegation led by @thalindia on International Thalassemia Day, TPAG member Nishtha Madan shared patients’ issues and recommendations related to care, cure and control of #thalassemia before Hon’ble President of India. She raised challenges related to #safeblood #essentialmedicines and #DisabilityBenefits #ThalassemiaAwareness
@thalassaemiaTIF @rashtrapatibhvn @MoHFW_INDIA

[Ssonam Maddan @MaddanSsonam]

@pagthals @MoHFW_INDIA @Novartis @NovartisIndia @OfficeofJPNadda @AtishiAAP Certainly very important to put light on this issue. Thanks for bringing this up!

[Thalassemia Patients Advocacy Group @pagthals]

This is not our 1st attempt & won’t be our last. We will keep remininding the @MoHFW_INDIA and @Novartis @NovartisIndia of how every day of inaction denies #thalasemia patients of medicines like #desferal and other facilities! @OfficeofJPNadda @AtishiAAP

[Ssonam Maddan @MaddanSsonam]

@TheAaryanKartik

[Ssonam Maddan @MaddanSsonam]

Hi Kartik,
I hope this message finds you well. I wanted to share that my nephew is your biggest fan. He truly adores you and dreams of meeting you one day. Your work has had such a positive impact on him, and he looks up to you greatly. @TheAaryanKartik

[Ssonam Maddan @MaddanSsonam]

@vaishno_price the facility for the helicopter is not at all worth it, they take lot of time for waiting & the procedure isn’t smooth especially for senior citizens, disabled people. @JandKTourism @BJP4JnK

[Thalassemia Patients Advocacy Group @pagthals]

A big shout out to @thalindia and @MoHFW_INDIA for turning India Gate red to mark International Thalassemia Day! #ITD2024 @NITIAayog

[Ministry of Health @MoHFW_INDIA]

#HealthForAll

On the occassion of International Thalassemia Day, Union Health Secretary stresses on importance of timely detection and prevention for addressing Thalassemia

By integrating compulsory Thalassemia testing into RCH program, burden of Thalassemia can be significantly alleviated: Union Health Secretary

Emphasizes on critical need for wide awareness on Thalassemia among the masses; launches an awareness video

https://t.co/bnRcOfgv3m

[Anubha Taneja @AnubhaArjun]

India will be developed by 2047? With #essentialmedicines missing in govt hospitals in 2024? #divyangjan clearly not this govts priority. #pahrmaceutical companies have the govts sympathy? @Novartis @DghsIndia @mansukhmandviya @PMOIndia #ModiKiGuarantee

[drjsarora @drjsarora1]

MOST URGENT - SOS #Thalassemia patients at #DDUH Refused #bloodTransfusion TODAY
@ArvindKejriwal
@rashtrapatibhvn
@LtGovDelhi
@hmdelhi
@drharshvardhan
@MoHFW_INDIA
@narendramodi
@PMOIndia
@mansukhmandviya
@AmitShah
@ndtv
@aajtak
@ANI
@PTI_News
@htTweets
@TOIIndiaNews
@news24tv

[Thalassemics India @thalindia]

Thalassemics India expresses sincere gratitude to Mr Jackie Shroff @bindasbhidu for his invaluable contribution and support, as highlighted in the December 23rd edition of The Himalayan Times in Nepal.

#jackieshroff #thalassemia #thalassemiaawareness #thalassemiaawareness

[Thalassemics India @thalindia]

Thalassemics India extends sincere gratitude to Mr. Jackie @bindasbhidu for his steadfast support of the Thalassemics India community and his committed endeavors in fostering awareness.

Watch the full Video ⬇️
https://t.co/AEuiB09Ng4
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#jackieshroff #thalassemiaawareness

[Thalassemics India @thalindia]

Thalassemics India, in collaboration with the Rotary Club of Safdarjung and the Indian Red Cross Society, orchestrated a Blood Donation and Screening camp held at the United College of Engineering & Research, Greater Noida.

#ThalassemiaScreening #blooddonationcamp

[Thalassemics India @thalindia]

Join us for Blood Donation and Thalassemia Screening Organised In association with the Rotary Club of Delhi Safdarjung and Thalassemics India.

📅 19th December ⏰ 10:00 AM
📍United College, Greater Noida.

#Blooddonation #blooddonationcamp #thalassemiascreening

[Shobha Tuli @shobhatuli]

Appreciate CJI concern over #disability becoming a #barrier Denying individuals access to public opportunities #Disability a limitation.Biggest challenge is physical accessibility.@DY_Chandrachud @pib_MoSJE @PMOIndia @thalindia @GN_Gautam @rashtrapatibhvn

[Thalassemics India @thalindia]

Thalassemics India organised the HLA typing camp conducted on November 29th at St. Stephen Hospital in partnership with the Rajiv Gandhi Cancer Institute, New Delhi, and with the generous support of DKMS. A total of 80 individuals participated in the camp to undergo HLA typing.

[Dr. Divyesh B Mundra 🇮🇳 @Mundra08]

On 3rd December, #InternationalDayofDisabilities ,
3 leading Indian patient advocacy organizations in #BloodDisorders,
@thalindia @HemoIndia & @IndiaNasco come together for 1st time for webinar on "Blood Disorders-The Invisible Disability".
@shobhatuli @GN_Gautam @PremroopAlva