Olivia
Online
Ehlers-Danlos
@MakeUsVisible
Joined March 2012
3 Following
44 Followers
5 Posts
Thank you to everyone who started following me, it was was a big suprise!
@DoctorChristian PLEASE cover Ehlers-Danlos on EB! I am in a group foe teens with EDS and it would mean so much to finally be heard!!! (:
@cheryleehouston Thank you! I am currently just trying to get everything together but I will send you a link when its all together! Thanks!!
@cheryleehouston Sorry for the vague tweet, I'm 18 and also have EDS. I am trying hard reach out to the NHS to get our condition recognized!
Who to follow
Annabelles Challenge Vascular EDS Charity
@AJsChallenge
We provide care & support to patients & families affected by #VascularEDS in partnership with the NHS EDS Service. Proud recipients of The Queen’s Award 2018.
Melissa
@putz04
nurse, mom to 2 amazing kiddos, married, Ehlers- Danlos sufferer, love- love - love NKOTB ( total blockhead!!)
Judy Burruss
@jbama1998
@cheryleehouston was wonderin if you'd be up for signing a petition for EDS to be researched more in the UK? Wiki on EDS directed me to you!
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