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MarfanProblems
@MarfanProblems
This is a group for people with Marfan Syndrome and or those who support us. It is so that Marfan patients know that they are not alone :)
Joined October 2012
75
Following
115
Followers
158
Posts
MarfanProblems
retweeted
Michael Martin
@ThePenmnist
over 8 years ago
This Penmanism was inspired by my Marfan Syndrome Family. Fit In Penmanism: https://t.co/xPsnSXW3lX
@MarfanTrust
@Marfan_Forum
@MarfanFdn
@MarfanProblems
@_MarfanSyndrome
@MarfansScott
@MarfanIreland
@marfanargentina
@MarSyndrome
@MarfanPeople @MarfanUK
@MarfanClinic
See More
MarfanProblems
@MarfanProblems
over 12 years ago
I've lost 10 lbs using garcinia now..., try it for free http://t.co/VTpTfHJS8v
MarfanProblems
@MarfanProblems
over 12 years ago
When you can't find a pair of boots thrifting because no one has your size
#marfanprobs
MarfanProblems
@MarfanProblems
over 12 years ago
We are rocking our fabulous fifteenth chromosome
#marfprobs
Who to follow
TheMarfanFoundation
@MarfanFdn
The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
Marfanov Sindrom 🇸🇮
@MarfansyndromeS
#Awareness #MarfanSyndrome #EhlersDanlosSyndrome #LoeytzSyndrome #BealsSyndrome #RareDissease #strongertogether #togetherwecan 📩
[email protected]
Maya Brown-Zimmerman, MPH
@MarfMom
Genetic counselor. Disability. Politics. Adoption. Writer. She/her. My views are my own.
MarfanProblems
@MarfanProblems
over 12 years ago
How many Marfs does it take to screw in a lightbulb? One. We are all tall as shit.
MarfanProblems
@MarfanProblems
over 12 years ago
You look me in the eyes and just try and tell me Matt McGrory didn't have Marfans
#hesodid
MarfanProblems
retweeted
Jay Elliott
@jelliott04
almost 13 years ago
Know the signs. Fight for Victory
#marfanconf
MarfanProblems
retweeted
Suzanne Kouri
@kouri34
almost 13 years ago
#marfanconf
excited to hear about the promising future of percutaneous valve repair Thank you Dr. Cameron.
MarfanProblems
retweeted
Maya Brown-Zimmerman, MPH
@MarfMom
almost 13 years ago
This is the actual Friends couch!
#marfanconf
http://t.co/ZpOgKURrBF
MarfanProblems
retweeted
Maya Brown-Zimmerman, MPH
@MarfMom
almost 13 years ago
Riding to the hotel with 10 NMF staff members. It's a party!
#marfanconf
http://t.co/t9bQjXGvyW
MarfanProblems
retweeted
Maya Brown-Zimmerman, MPH
@MarfMom
almost 13 years ago
So. Excited. To. Be. Back. Here.
#marfanconf
http://t.co/RuZ18RD35A
MarfanProblems
retweeted
Maya Brown-Zimmerman, MPH
@MarfMom
almost 13 years ago
Had a great time at
@CraigyFerg
! Taped tonight & tomorrow's shows!
#marfanconf
MarfanProblems
retweeted
Maya Brown-Zimmerman, MPH
@MarfMom
almost 13 years ago
Come check out the hospitality suite!
#marfanconf
http://t.co/N9tjVsaLEB
MarfanProblems
retweeted
Maya Brown-Zimmerman, MPH
@MarfMom
almost 13 years ago
Lisa and me
#marfanconf
http://t.co/LVJB4IYS0h
MarfanProblems
@MarfanProblems
almost 13 years ago
The Marfan Conference officially starts tomorrow! ❤🎉😜
MarfanProblems
retweeted
Shelly M.
@teckiemom
almost 13 years ago
Fellow Marf, Kevin Songer's blog on "The Chronic Fatigue Beast and Marfan Syndrome". http://t.co/CYXZTt6vqo
MarfanProblems
retweeted
Sky News
@SkyNews
almost 13 years ago
NHS Ward Ratings A 'Patient-Led Revolution' http://t.co/lxJAVe47uD
MarfanProblems
@MarfanProblems
almost 13 years ago
RT if you you are gong to the Marfans Conference in LA in a few weeks
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