I want to say this "out loud": severe and very severe ME will kill you a lot faster if you don't have money and/or someone to look after you and look out for you. A lot of us don't have this. If we decline, our deaths will not be well-considered, well-documented
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After years of being accused of malingering, having depression and anxiety as the cause of my health problems, it's almost a relief to have test results that come back with concrete problems for why my body is doing the shit it does.
#MECFS#pwME
I just had a follow-up appt with the PA over my xrays. Apparently I have arthritis and some vertebra are slipping and that's why my leg is going numb. It's always something new. FML.
#MECFS#pwME
To poems. To secret poems. To notes app poems. To poems only for a while. To resonating poems in the void. To verse. To slant. To widely circulated. For poems only for lovers. For poems just for me. For poems that someone takes off our cheek and says, “Make a wish.”
When I'm reading a book or watching a movie and I know something bad us about to happen to one of the characters, I stop in the middle of the story because I can't bear for something bad to happen to someone I care about, even fictional characters. They're safe forever.
Yesterday, I was watching Tiktok videos and I felt this overwhelming sense of grief for all the life I cannot live. I cried & I rarely cry these day but yesterday I did. It's so disheartening to see people living their lives knowing you can only watch from the sidelines.
#pwme