MDS Foundation

The MDS Foundation is a global nonprofit raising awareness of myelodysplastic syndromes (MDS), a rare and often undetected blood cancer. 🔬🩸

[MDS Foundation @MDSFoundation]

The MDS Foundation’s Patient & Family Forums are coming to Crown Point, IN, and Kansas City, MO, in 2026.

📍 Crown Point, IN - September 26, 2026
📍 Kansas City, MO - October 24, 2026

Hear from experts and gain insights about MDS care.

Register today: https://t.co/qxjpTv7IhP

[MDS Foundation @MDSFoundation]

Living with MDS and MDS-related anemia means constant blood transfusions, unpredictable fatigue, and shortness of breath. Consider participating in clinical research exploring potential options for adults with MDS and MDS-related anemia.

Learn more: https://t.co/CFC2LLsAOW

[MDS Foundation @MDSFoundation]

Aileen's father met the diagnosis of MDS with bravery. She realized that awareness and education in MDS were needed, and she chose to use her voice to "shine a light on a disease that is often overlooked".

Read about Aileen's story and share your own: https://t.co/rkYmaJITzR

[MDS Foundation @MDSFoundation]

Join us on September 27, 2026, for the Move for MDS 5K in Los Angeles, CA. 👟💙

This inspiring event brings together patients, families, friends, and advocates, all united in making a difference.

Register today and join the movement: https://t.co/3ZY5bYFUJ9

[MDS Foundation @MDSFoundation]

@WinshipAtEmory @SagarLonialMD Congratulations!

[MDS Foundation @MDSFoundation]

The MDS Foundation invites healthcare professionals to participate in our MDS Healthcare Professionals Survey.

The insights you share will directly guide our programs, educational efforts, and initiatives.

Take a few minutes to share your voice: https://t.co/djLEbYiYKv

[MDS Foundation @MDSFoundation]

Join us for our Patient & Family Forum in Crown Point, IN, on September 26 from 9:00 AM-2:00 PM.

Hear from leading experts about current treatments and emerging therapies, gain practical tips and strategies for daily living.

Register today: https://t.co/qxjpTv7IhP

[MDS Foundation @MDSFoundation]

Rigel Pharmaceuticals, Inc. Is conducting a study with R289 on patients who are relapsed/refractory/resistant to prior LR-MDS therapies.

Every participant will receive R289.

Determine eligibility at https://t.co/Q5WK1eFmE8 or contact Lisa Liskey at [email protected]

[MDS Foundation @MDSFoundation]

Join us on September 12, 2026, at 12:00 PM ET for Caregiver Training 101.

Featured speaker Brittany McCoy, MPAS, PA-C, brings more than 10 years of experience in malignant hematology, cellular therapy, and bone marrow transplantation.

Register today: https://t.co/AeAD3PXjkG

[MDS Foundation @MDSFoundation]

Join us on October 25, 2026, for the Boston Move for MDS Walk.

This inspiring event brings together patients, families, caregivers, friends, and advocates united by hope and a shared commitment to advancing research.

Register today and join the movement: https://t.co/lyyrOMohey

[MDS Foundation @MDSFoundation]

We were honored to be featured in a piece created by Sarah Galla, highlighting the Chicago Move for MDS Walk held this past May. 💙

We are grateful to Sarah for shining a light on the incredible MDS community.

See our upcoming Move for MDS Walks: https://t.co/JRaCMiHJ1Y

[MDS Foundation @MDSFoundation]

More options are needed for MDS

A clinical research study is now enrolling for MDS and MDS-related anemia

To learn more and find out if you qualify visit https://t.co/1bwzos9fbR or contact:
Lisa Liskey
[email protected]
[phone] x.201

[MDS Foundation @MDSFoundation]

Driven by purpose from a young age, Peggy Ann shared that, for her, purpose is found in the lives you touch. Her story reflects the importance of people, impact, and "the change we can spark together."

Read more about Peggy Ann's story and share your own: https://t.co/1Zi4dOnUwW

[MDS Foundation @MDSFoundation]

In the latest episode of the MDS Patient & Family Report podcast, host Dr. Nikolaos Papadantonakis sits down with Dr. Sanam Loghavi of The University of Texas MD Anderson Cancer Center for a look at the hematopathology lab.

Listen today: https://t.co/WuB1cDdpng

[MDS Foundation @MDSFoundation]

Join us on July 25 at 12 PM ET for a webinar examining how AI and other technologies are helping to transform healthcare.

Speakers Saverio D’Amico and Matteo Della Porta will discuss the impact of technology in advancing MDS research.

Register today: https://t.co/2Iv1Z0ImaP

[MDS Foundation @MDSFoundation]

Mark your calendars for September 27, 2026, and join us for the Move for MDS 5K in Los Angeles, CA. 👟💙

Whether you run, walk, or wheel, every mile helps raise awareness and support for those affected by myelodysplastic syndromes.

Register today: https://t.co/3ZY5bYFUJ9

[MDS Foundation @MDSFoundation]

@MemorialBldCtrs @MNUFC @AllinaHealth This is great!

[MDS Foundation @MDSFoundation]

Living with MDS and MDS-related anemia means constant blood transfusions, unpredictable fatigue, and shortness of breath. Consider participating in clinical research exploring potential options for adults with MDS and MDS-related anemia.

Learn more: https://t.co/CFC2LLsAOW

[MDS Foundation @MDSFoundation]

We're proud to bring the MDS community together for our Patient & Family Forum on July 11 in Jacksonville.

This event provides education, valuable resources, and a welcoming space for patients, families, and caregivers to connect. 💙

Register today: https://t.co/1GMoqk624L

[MDS Foundation @MDSFoundation]

July is National Cord Blood Awareness Month, a time to recognize the life-saving potential of CBT for patients with high-risk MDS.

Because cord blood requires less stringent HLA matching, it expands the donor pool.

By raising awareness, we can offer hope to more MDS patients.