Michael Lane

National Program Director A.C.C.B.F. Amyloidosis Awareness Advocate Amyloidosis Army

[Michael Lane @Michael21765743]

@BrettSperryMD I thought I was the only one being tortured there!!

[Michael Lane @Michael21765743]

The Amyloidosis Army kicked off July in East Harlem at the Beatrice Lewis Senior Center in NYC. We had the honor of collaborating with “THE BEST DOCTOR IN HARLEM” Dr Icilma Fergus from Mt Sinai. This amazing cardiologist volunteers her time and brings a team of doctors and students lead by Nancy Thomas. This example should Inspire every doctor do not forget the underserved communities among us. We were able to give genetic testing for Amyloidosis as well as other health test to the community for free. The Amyloidosis Army volunteers were there special thank you to Johnny Boatman. An incredible teammate, Amyloidosis patient and double transplant warrior! Travels all the way from Virginia to share his story and journey to help bring awareness to the community. This is what working together can accomplish. Thank you to the staff at the Beatrice Lewis Center. They were the most gracious host anyone could ask for. My last thank you is to “my friend” incredible community care. We can’t wait for our next trip to Harlem!!!
https://t.co/5BAUv4YX8L

[Michael Lane @Michael21765743]

@RBP0612 @demanddeborah @ACCinTouch @NJACC @MyASNC @AHAScience @ASE360 @Heart_SCCT @PanithayaC @PRodriguezMD @Bravo__MD @DrKTobb @DrGinWillChang @avolgman @DrJMieres @lesleejshaw @RonBlankstein @ggvela They know who is the best! Congratulations!

[Michael Lane @Michael21765743]

ATTR-CM DISPARITY IS NOT ALWAYS COLOR! Women are at risk!

[Michael Lane @Michael21765743]

Amyloidosis Army thanks the NYC Chapter of the Association Of Critical Care Nurses for hosting our V122I Amyloidosis Awareness community program. Kudos to Sonia Nelson for a great venue at Mt. Sinai Hospital in East Harlem NYC. Not enough words to thank Dr. Icilma V Fergus, M. FACC, FASPC
volunteering her valuable time to be such a great speaker educating us all. Truly impressive. Teammate Giselle Benmoin shared her amazing story. Was a well attended program and doing a job that needs to be done. Thank you to our strong industry supporters who show up and help educate the community.
https://t.co/gXp4ewOiBP

[Michael Lane @Michael21765743]

The Amyloidosis Army started the weekend with the privilege of speaking at the Piedmont Health Atlanta Amyloidosis Conference. Such an impressive event. Thank you so much to Dr Andrew Darlington and his entire team. So well done!! We also had a very well attended community V122i awareness program in Detroit at the Baber Memorial Baptist Church where Dr Savas did an amazing job and genetic tests were given to 37 community members. Special thanks to team member Giselle Benmoin for representing the Army in Detroit! Patient power at its best!

[Michael Lane @Michael21765743]

Taking awareness to a new level!

[Michael Lane @Michael21765743]

We want to thank the great team of the Second Missionary Baptist Church in Grandview MO for hosting our V112I Amyloidosis Awareness program. Our Medical Speaker Rachel Schaffer,MS, CGC from St Luke’s Cardiovascular Consultants volunteered her Saturday to do an amazing job to educate us all about Amyloidosis. Kudos the to our team
member Giselle Benmoin for such a sharing her inspiring story! Over 60 people attended and learned!
https://t.co/gXp4ewNKMh

[Michael Lane @Michael21765743]

Attention Kansas City Area!

Join us for the Amyloidosis V122I Awareness Program, where everyone is welcome.

- Free Admission
- Free $100 Gift Card Raffle
- Complimentary lunch served

Date: Saturday, June 6, 2026
Time: 11:00 AM to 1:00 PM
Location: Second Missionary Baptist Church, 5111 Harry Truman Rd, Grandview, MO 64030

Come learn about this serious health issue.
https://t.co/gXp4ewNKMh

[Michael Lane @Michael21765743]

The Amyloidosis Army wants to extend a huge thank you to the Kansas Department of Health & Environment. We want to recognize Drew Duncan Section Chief, Screening and Surveillance for his commitment to saving lives in Kansas through early diagnosis of Amyloidosis. Kansas is distributing 500 of these diagnostic charts for use throughout the state by health care providers. This is a much needed first in the battle of educating awareness in health care providers. Thank you goes to the International Cardio-oncology Society Executive Director Stephen J Casselli PhD for allowing us to use their great diagnostic charts.

[Michael Lane @Michael21765743]

The Amyloidosis Army was privileged to be invited to join the amazing Dr. Icilma Fergus MD FACC FASPC with her Harlem Healthy Hearts program. Her team led by Nancy Thomas did such an impressive job of educating the great people in Harlem but also provided FREE genetic testing. Patient Advocate Johnny Boatman did an excellent job sharing his story. Thank you to everyone who helped make this a success! And special kudos to Display Studios of KC KS for creating our awesome new table cover!!!

[Michael Lane @Michael21765743]

We want to say thank you for the invitation and hospitality at the at the Bradley Z Naifeh Amyloidosis Conference held at Houston Methodist Hospital. Thanks to the amazing presenters came home a lot smarter! Special thanks to Reagan Dunkin for all her hard work and for including patients. We were happy to make sure people and staff went home educated and wearing Amyloidosis Army swag! Pleasure to present with our awesome patient organizations!!

[Michael Lane @Michael21765743]

The Amyloidosis Army was honored to be invited to Kansas City Councilman Curls' annual Seniors Party. A special thank you to Director Sean Akridge and the incredible LINC KC team for their support. This event provided a wonderful opportunity to promote our V122I awareness initiative within our hometown community. Over 200 people attended this meaningful gathering. Thank you to everyone who participated! For more information, visit https://t.co/gXp4ewNKMh.

[Michael Lane @Michael21765743]

The Amyloidosis Army was honored to be invited to Kansas City Councilman Curls' annual Seniors Party. A special thank you to Director Sean Akridge and the incredible LINC KC team for their support. This event provided a wonderful opportunity to promote our V122I awareness initiative within our hometown community. Over 200 people attended this meaningful gathering. Thank you to everyone who participated! For more information, visit https://t.co/gXp4ewOiBP.

[Michael Lane @Michael21765743]

The Amyloidosis Army proudly returned to Orange New Jersey today to present a community V122I Amyloidosis Awareness Program at the beautiful Monte Irvine Community Center. We owe tremendous gratitude to Dr Marian Vandyck Acquah for her extraordinary presentation to the seniors who attended. Such a great job!! Thank you. Dr Sai Jumbunathan PhD a patient shared her amazing story and her battle with AL Amyloidosis. She is a courageous warrior and advocate. There is not enough thank you’s for Dawn Gibson RN of the City of Orange Health Dept. she did such an incredible job setting this all up and for her dedicated commitment to her senior citizen community. We had some major support educating the community from all 4 pharma friends thank you!!

[Michael Lane @Michael21765743]

The Amyloidosis Army has marched again to the “cardiac desert” going to the Mississippi delta thanks to the amazing hospitality from the Mississippi Sickle Cell Foundation and the wonderful Dr Evelyn Washington. We were able to bring V122I Amyloidosis awareness to another room full of community members who until today never heard of Amyloidosis! Thank you to Tallahatchie High School for their support.