Michael Wilson

Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. ALS'ing since Feb. 2017.

[Michael Wilson @MichaelWheelson]

What have I learned since having ALS? 1) Continuously need to adapt to your new body. 2) Caregivers are incredible. 3) Patience is a virtue. 4) Never trust a fart.

[Michael Wilson @MichaelWheelson]

I'm participating in the ALL ALS study as it is critical to understand the full spectrum; slow/fast progressors, genetic, and sporadic.

As Congress considers reauthorization of the ACT for ALS, let's ensure natural history studies have a clear path to continued funding.

#ALS

[EndTheLegacy @End_The_Legacy]

Congress is currently debating the Act for ALS Reauthorization. As it is heard in the Senate's HELP committee this coming week we need to make sure committee staff understand the importance of natural history studies like ALL ALS and Prevent ALS to our communities. 1/3

[Girl Travelin Alone @CathyStandish]

When ALS research becomes a quagmire, follow the North Star. They will lead you to
answers.

https://t.co/19rBk5I8PH

#TheNorthStarisShining 🌟

[ALS Advocacy @alsadvocacy]

For decades we have needed a honking big ALS natural history study with broad & deep data. Finally we got one to do just that. Now we're not very good at getting the word out. Pls, if you can only participate in one observational study, please make it... https://t.co/6edG2HKGvv

[Michael Wilson @MichaelWheelson]

Appreciate Tarra Jones for continuing to follow this story and helping share this year’s advocacy success.

#ALSAwarenessMonth

@chad4ok @KSWO_7NEWS

“Good news” for Oklahomans living with ALS after new state support https://t.co/5oPi6Ceo1w

[Michael Wilson @MichaelWheelson]

A few years ago, getting #ALS recognized at the Oklahoma Capitol felt like a long shot…but we’re too stubborn!

Today: #ALSAwarenessMonth is officially recognized by @GovStitt and we just approved $1M for ALS services statewide. True team effort!

@chad4ok

[Michael Wilson @MichaelWheelson]

This was a great example of teamwork and not giving up after 3+ years of effort. Huge thanks to Rep @chad4ok for all your work on helping make this happen!

[The ALS Association @alsassociation]

We are proud to share a major victory in Oklahoma, $1 million secured in Oklahoma! This is all thanks to your voice, your persistence, and your commitment to the ALS community! These funds mean expanded access to essential services, increased support for families navigating an ALS diagnosis, and stronger infrastructure to meet the urgent needs of the ALS community in Oklahoma.

Lawmakers took meaningful action to support people living with ALS and their families. They championed H.B. 4029—legislation that delivers critical funding to strengthen care and support services across the state.

This new law directs the transfer of $1,000,000 from the Oklahoma State Department of Health to the Barbara Weber Amyotrophic Lateral Sclerosis (ALS) Grant Program Revolving Fund.

This investment is more than a number—it’s a lifeline.

Learn how you can be an advocate in your state: https://t.co/dZrP0TvtzP

[Michael Wilson @MichaelWheelson]

Honored that May 2026 has been officially recognized as ALS Awareness Month in Oklahoma. Grateful for the growing support for ALS families across our state.

[Michael Wilson @MichaelWheelson]

Remember how outraged some of you were with the Olympics' Last Supper thing? Just checking on y'all. Seems ‘blasphemy’ is dependent on who’s doing it.

[Michael Wilson @MichaelWheelson]

🤣

[Fintwit Capital @fan_fintwit]

Trump's Iran Downfall

[Michael Wilson @MichaelWheelson]

ALS Focus Survey: Assistive Technology for Everyday Activities

Survey open until May 22! Share your everyday interactions with assistive tech. Whether you use high-tech devices, a few simple tools, or no technology at all — your perspective matters!

https://t.co/qNSmDhmd9N

[ALS Advocacy @alsadvocacy]

If you can only participate in one study, please make it this one. It's the natural history study that we have needed. It's designed and funded to supply a lot of data from a lot of people. Remote participation possible. Healthy vols needed too.

[Michael Wilson @MichaelWheelson]

We got to catch up with Tarra Jones with @KSWO_7NEWS and chat about the passing of Eric Dane and our Oklahoma ALS advocacy efforts.

https://t.co/MB3tJEgmwr

[Michael Wilson @MichaelWheelson]

Not bad for our first Oklahoma ALS advocacy day! So proud and thankful for the over 50 people that came out to help raise awareness and share our stories.

[ALS Advocacy @alsadvocacy]

1000 volunteers w ALS are a lot, but not enough to unravel the mysteries of a heterogeneous disease like ALS. If you have ALS, please join ALL ALS (it can be done remotely). Thank you.
https://t.co/6edG2HKGvv

[Michael Wilson @MichaelWheelson]

What is normal, anyway?

[The ALS Association @alsassociation]

Wendy is a caregiver for her husband who is currently living with ALS. Wendy shares her teen daughter’s viewpoint of what it is like to have a parent living with ALS.

[Michael Wilson @MichaelWheelson]

Ending the War on Saturated Fats 🤣😂

https://t.co/uylUHncdtj

[Michael Wilson @MichaelWheelson]

Yes, they flipped the food pyramid just like the South Park episode. Somewhere Cartman is screaming ‘I told you so’ through a mouthful of bacon.

https://t.co/fJmg1Rc2sB

[Michael Wilson @MichaelWheelson]

@CathyStandish @BobGolen

[Michael Wilson @MichaelWheelson]

@FDACBER Here is the response:

https://t.co/ow3YOguy2A

[Michael Wilson @MichaelWheelson]

@FDACBER provided interim response on Dec 11 to #Nurown Citizens' Petition. It states they need more time, so not looking like they will make this month's deadline.

https://t.co/VTDVIsRmsP