Lou Gehrig passed from complications related to ALS on June 2, 1941, but his legacy and the awareness he raised for ALS continues today.ย We honor nano-rare ALS patients like Bill O'Sullivan.
Tune in to the n-Lorem Patient Empowerment Program this summer: https://t.co/2jjcplRwQz
@bjportraits There are a couple of good points but this is overall a very shallow exploration and understanding of the topic. The suggested parental approaches are not very helpful and will likely accentuate the problems noted. This is not helpful information for parents or lay persons.
This was an excellent podcast. There were many important points. Something that resonated strongly with me about our current culture was the observation that "making an effort to understand is assumed to be pointing a finger of blame" and the pattern of "conflating curiosity with blame". It has been especially scary, and destructive, to see this pattern in our medical institutions and "professional" organizations.
n-Lorem Foundation provides experience in more than 300 patient applications and reports excellent safety profile and meaningful clinical benefit in treated patients receiving individualized ASO therapies.
๐ Read the study and see the results: https://t.co/tKBPCnfKhn