@Aston_IHN member @Dr_FelixChan recently raised awareness about mitochondria in epilepsy at the UK Parliament event hosted by @MitoResearch and @LizTwistMP 🧠Felix says: "We are proud to be part of this consortium to address severe epilepsy as a priority in #Mito" #PurpleDay💜
A special thank you to Lord Markham CBE, Parliamentary Under Secretary of State at the Department of Health and Social Care, for his enlightening introductory remarks & to Valarie & Emily Hill, Danielle Alexander & Liz Curtis MBE for sharing their personal #raredisease journeys.
On behalf of @LizTwistMP, Chair of the APPG for Rare Conditions, we would like to thank everyone who joined us at the Opening Ceremony of our exhibit 'Are you mito aware? Raising the profile of #mitochondrialdisease'.
To check out the event highlights: https://t.co/GCA4cWPpcb
Laura was recently recognised as an epilepsy researcher on #InternationalWomensDay2024 by @EpilepsyInst whilst Valeria was highly commended in the Early Career Scientist of the Year Award @MDUK_News 💚Congratulations both!
To round off a week of celebrating research excellence @NIHRNewcBRC, theme lead Prof Gráinne Gorman would like to share the wonderful achievements of WCMR team members Dr Laura Smith & Dr Valeria Di Leo 💚
🌟 Exciting news! Join the Medicine by Design Global Speaker Series featuring MITO2i's Ana Andreazza on January 23rd. 🧠✨ Hosted by @MbD_UofT in partnership with @McEwenInstitute.
Learn more at: https://t.co/ITftTiD9vG
#MedicineByDesign#RegenerativeMedicine
AussieMit 2024 dates have been announced!
Save the date: 26 – 29 November 2024
This will be the 8th biennial AussieMit conference for mitochondrial research. AussieMit 2024 will take place in Melbourne.
Sign up for updates here: https://t.co/H0Rx1suUbB
#Mitochondrial
Successful first #ChanLab secret Santa. A nice wrap to a great year of exciting neuroscience research in #rareepilepsy. Ramping down now for some well-deserved down time. Wishing everyone a festive holiday season and the best time with their loved ones.
Check out these rare stories from @NI_RDP!
Members of the NI RARE community shared their stories as part of the Voices Of The 1 in 17 campaign.
Watch here: 👇
https://t.co/tQE0cJQA2y
Research for Rare 🔬
For the 300 million people worldwide living with rare diseases, research is not just important, it's vital.
Join us to amplify the importance of research in the rare disease community.
#RareDiseaseDay#Awareness
Welcome to new followers who have joined us from our @rarediseaseuk Twitter account!
We’re so glad you’re connected with us here and we can’t wait to share updates with you on our work, our amazing member network and the #rare#genetic communities they support.
Looking back on a year of podcasts: we began with Shamima Rahman, @Dr_Rhys, Lyndsey Butterworth, Amy Hunter and Russell Wheeler discussing priorities in mito disease.
Soundcloud: https://t.co/zLgqMcjwGk…
Spotify: https://t.co/c0OYVTN9B2…
Apple: https://t.co/J3oOJtzOTs…
Did you know we've added speech, reading and translation support to our website and The Resources Hub?
The ReachDeck Toolbar is part of our new accessibility software from @texthelp.
Visit our website to learn more. 👇
https://t.co/K3eYFRXMpS
To get in the festive spirit, we are celebrating our 2023 highlights! 🎁
Kicking off the first #DayofLifeArc with the news that ONE of the drugs we helped develop, Leqembi (lecanemab), was recognised by @TIME as one of the best 2023 inventions.
https://t.co/xUQojF99Wy