Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜

She/her. Engineer, former archaeologist, enjoys reading and needlework. Not ready to give up on life, just enjoying it on wheels these days.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@WheelieFUMS I haven't had that experience but I changed GP a couple of years ago and saw a doctor at the new practice last year. When I mentioned MS I could see in her eyes that she didn't know much so was going to educate herself; she also treated my symptom and it is much more bearable.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@RachelCDailey_ @TheCanaryUK He is talking out of his behind if he thinks sick people need to exercise more. And what about those who need a few weeks off while they recover from surgery and have a job to go back to once they are well? That was me, a few years ago.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@WheelieFUMS Working from home also depends on having a job that can be done remotely and an employer willing to let you work from home - having both is not common. Many jobs simply can't be done remotely: shops, factories, medicine, education and many others.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@Tanni_GT I ĥate any implication that I suffer: I have MS, I can't walk, but I don't suffer. I am not in pain, my power chair & wheelchair give me - and husband - independence. I am normally healthy and I am able to work pursue hobbies and enjoy life. I do not want AS, it's frightening.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@WheelieFUMS I relate to that, but in̈ my case my wheels are for safety: if I walk, I'm at risk of falling and I can't get up unaided. My wheelchair is freedom for my husband as well as me.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb I only realised the impact of chronic pain on my mood and my tolerance for setbacks and fools when a doctor dealt with the cause and cured the pain.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@SpeakSwedish Nej tack, jag tycker inte om semlor.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb Building accessibility in from the start is cheaper than adding it on later in response to complaints.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@adamfare1996 It takes effort to make one team member at home feel part of the team when the rest are in the office at least half the time. My manager does it and the payoff is that I have more energy and less time off sick.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@adamfare1996 More doctors should have the attitude of my previous GP: let's control the pain now and worry about addiction once the cause has been identified and treated. And when we got there, I wasn't addicted but I had adequate pain relief in the meantime.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb Friday so my husband got takeaway pizza for us. I had garlic strips and on my pizza, ground beef, mushrooms and gherkins. Half is going cold and will be eaten tomorrow.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@adamfare1996 Absolutely. There's a sound financial reason alongside the moral one: incorporating accessibility from the start is cheaper than adding it later. Fixing problems found in testing is cheaper and quicker than fixing them after the product/building/whatever is in production/use.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@cgb_journo @BlondeHistorian My consultant was dismayed and disappointed that the new hospital (of all places) is inaccessible, unlike the NHS one.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@cgb_journo @BlondeHistorian There's a fairly new private hospital in Preston used for NHS outpatient appts. My wheelchair fits through front door & lift but not waiting or consulting rooms. Since I can't get around it, my appointments are at a slightly older but much more accessible unit at main hospital.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb Disability changes: what you can do one hour or one day will be different from the next. And you will get angry and/or frustrated with yourself - that's a normal reaction.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb Everyone's experience is different. I know several other people with M S and we all need different support, different aids to live fulfilling lives.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb Help available when needed or wanted but my independence was supported. For me, the ideal combination.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb When I was about to get a bus to my employer’s disability network conference, the bus driver expected to take my wheelchair but he offered to take my rollator as well. And when we stopped en route, several people asked if I needed help, and accepted my "no thank you" response.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb 👍 I'm having a lazy day before work tomorrow.

[Mitzi 🦽🇬🇧🇸🇪📚🪡🐻‍❄️💜 @Mitzi_MEB]

@DRDisabilityReb Got mine before Christmas and it isn't worth having. It needs a major uplift to be meaningful - currently it isn't enough to be helpful.