Mended Little Hearts

Mended Little Hearts empowers families impacted by congenital heart defects.

[Mended Little Hearts @MLH_CHD]

Our High Five$ for Heroes campaign has officially launched. From now until Mar. 15, we encourage you to:

Donate $5 💵

Give a high five ✋

Share this with 5 people 💻💬

All proceeds will go to supporting our #BraveryBag program. Donate today: https://t.co/1bx8VkxqRB

[Mended Little Hearts @MLH_CHD]

Did you know that nearly one in every 100 infants in the US is born with a congenital heart defect?

MLH is working to raise awareness for patients & families affected by CHD. Join our fundraiser to help create a better future for children with CHD: https://t.co/24X7A8nIqd

[Mended Little Hearts @MLH_CHD]

MHI is deeply grateful to our Gold Level Symposium Sponsors!

With generous support from @AstraZeneca @Merck, @boehringerus, @Alnylam, @bmsnews, and @JNJNews, MHI will convene patients, families, & experts to share resources & insights.

Register here: https://t.co/V6lyOXSKP3

[Mended Little Hearts @MLH_CHD]

Familial hypercholesterolemia (FH) is genetic, and it often goes undetected until a serious cardiac event. Early screening can protect the whole family.

MHI is proud to partner with @NatForumHDSP. Use their guide to start a conversation about FH: https://t.co/zRDb6PxTdd

[Mended Little Hearts @MLH_CHD]

This #FamilialHypercholesterolemiaAwarenessDay, learn more about living with FH, a genetic condition that stops the liver from removing bad cholesterol from the body. Our FH discussion guide for families & caregivers provides important resources: https://t.co/J34qqemNI5

[Mended Little Hearts @MLH_CHD]

Introducing an MHI symposium keynote speaker!

@ScotPollard31's journey — from professional athlete to transplant recipient — was chronicled in the documentary Heart of Pearl. Today, he is a voice for heart health awareness.

Register for the symposium:
https://t.co/1waol2EgsI

[Mended Little Hearts @MLH_CHD]

Did you know that children with CHD have an increased risk of gaining unhealthy weight? Staying active & maintaining a healthy diet are critical to supporting your child's health. More on creating an active lifestyle for your #CHDWarrior from @AmerAcadPeds https://t.co/AJuML84qLf

[Mended Little Hearts @MLH_CHD]

September is Children's Cardiomyopathy Awareness Month. Some children with cardiomyopathy may experience shortness of breath, dizziness, irregular heartbeat, chest pain, and fatigue — while others may have no symptoms

Resources for cardiomyopathy here: https://t.co/a6uvAJwJOq

[Mended Little Hearts @MLH_CHD]

The World of Support fundraiser is raising awareness for CHD & CVD across the lifespan & helping fund important resources, support & advocacy for the Heart Community & #CHDWarriors

You can text WOS2026 to 53-555 to donate today & join the fundraiser here:
https://t.co/24X7A8nIqd

[Mended Little Hearts @MLH_CHD]

This week is National Neonatal Nurses Week! Mended Little Hearts is grateful to all the neonatal nurses who truly make a difference for #CHDWarriors and families. Thank you, neonatal nurses, for the deeply impactful and critical work you do every day!

[Mended Little Hearts @MLH_CHD]

The VALOR Study is testing an investigational study medicine to see if it can safely be given to children and whether it may help improve their heart failure. Enrollment is currently open to children aged 2-17 years old. For more information: https://t.co/6TM3QnnM6L

[Mended Little Hearts @MLH_CHD]

Register today: MHI's first-ever virtual symposium features The Mended Little Hearts track, a 6-part Congenital Heart Disease education webinar series designed for Heart Families.

Join us October 2nd-3rd for the virtual symposium. Register here: https://t.co/tsLIqR5jgb

[Mended Little Hearts @MLH_CHD]

Join us tomorrow at 4pm ET for our transplant support group meeting, open to anyone who has been impacted by a heart transplant, including caregivers for those waiting to receive a transplant or those who have undergone one❤️‍🩹

To join, reach out to [email protected]❣️

[Mended Little Hearts @MLH_CHD]

Did you know that Patient Advocate Foundation offers financial assistance for families whose loved ones are living with hypertrophic cardiomyopathy (HCM)? You may be eligible to receive financial help from their HCM fund to help cover treatment-related costs. Learn more & apply:

[Mended Little Hearts @MLH_CHD]

Join us tomorrow at 4:00pm ET for our Advocacy Webinar!

Our experts at Troutman Strategies will provide an overview of the election, the expected outcomes, and potential changes for the next Congress.

Register here: https://t.co/9zSLj9Cp4E

[Mended Little Hearts @MLH_CHD]

Join us next Tuesday, September 15th at 4pm ET for our monthly transplant support group meeting🗣️

This group is open to anyone who has been impacted by a heart transplant, including caregivers ❤️‍🩹

📧Reach out to [email protected] to learn more and join us!

[Mended Little Hearts @MLH_CHD]

Lifelong care is essential for children living with CHD. Learn more about how you can help prepare your #CHDWarrior for adulthood from the @AmerAcadPeds: https://t.co/7KdZRBFhjk

[Mended Little Hearts @MLH_CHD]

Save the date for our first-ever virtual symposium!

The Mended Little Hearts session 2, "Advocating for the Warrior," will explore the tools that help your child succeed in the classroom and beyond.

Register here: https://t.co/tsLIqR5jgb

[Mended Little Hearts @MLH_CHD]

If a parent is living with hypertrophic cardiomyopathy (HCM), their child has a 50% chance of inheriting the condition. Genetic testing can help identify family members who may also be at risk.

Learn more about genetic testing and HCM: https://t.co/wxz9R6N9OO

[Mended Little Hearts @MLH_CHD]

Join us next Thursday, September 10th at 4:00pm ET for our Advocacy Webinar!

Our experts at Troutman Strategies will provide an overview of the election, the expected outcomes, and potential changes for the next Congress.

Register here: https://t.co/9zSLj9Cp4E

[Mended Little Hearts @MLH_CHD]

Today is the first day of our annual World of Support fundraiser, creating a world of support for patients living with Congenital Heart Disease and Cardiovascular Disease. Learn more and get involved here: https://t.co/24X7A8nIqd