Myaware

We are the only UK registered charity solely supporting people affected by myasthenia. We fund research, patient support and education #myasthenia #myaware

[Myaware @myawareUK]

Wow! £3,303 has been raised so far during our Festive Appeal 2025. We urgently need your support so we can continue to raise awareness, fund research and support people in the myasthenia community. Can you help us reach our £4,500 target? https://t.co/bvJ0T8oDCT
Thank You.

[Myaware @myawareUK]

Can you donate £15 during our festive 2025 appeal so we can continue to support the myasthenia community? Please donate here: https://t.co/i5kA1BeQ68

[Myaware @myawareUK]

Wow! We've sold £1,345 worth of tickets in the Festive 50/50 draw! Thank you! Don't miss out on your chance to win £50,000 in tax-free cash or a Land Rover + prize bundle worth £65,000.
Buy your ticket(s) here: https://t.co/Vr2XCigeNZ
GambleAware: https://t.co/79IJmeDYJO

[Myaware @myawareUK]

There’s been misinformation circulating about paracetamol (Tylenol) and autism. The MHRA confirms: taking paracetamol during pregnancy remains safe. There is no evidence it causes autism in children.

https://t.co/bbroLp2RFl

[MHRAgovuk @MHRAgovuk]

📌 There is no evidence that taking #paracetamol during pregnancy causes autism in children.

Always follow NHS guidance and report any suspected side effects via the Yellow Card scheme https://t.co/Zb9paqdBIa

Read the full announcement - https://t.co/4DqLEYuOFf

[Myaware @myawareUK]

A “life-changing” treatment for people with myasthenia has been denied NHS approval — leaving many with few options.

Read more in The Times: https://t.co/LfMPmIkIV5

Please share to raise awareness.
#Myaware #MyastheniaGravis #RareDisease #AccessToMedicines #NICE #MG

[Myaware @myawareUK]

£2,801 already raised through Unity Lottery. 116 weekly players. Could you help us reach 125 players? £25,000 weekly jackpot. To play: https://t.co/zdT3Q2Dx15 For gambling opt out and advice: https://t.co/R0XLR3CvUQ

[Myaware @myawareUK]

Do you live with a rare condition like myasthenia, or care for someone who does? Needed: patients, carers, & families from the North-West to share their lived experiences. Apply by Sunday 28th September 2025 #raredisease #myastheniagravis #LEMS #CMS #MG #myasthenia #patientcare

[Myaware @myawareUK]

Win a Land Rover Evoque, while helping others with myasthenia. 50% of each ticket sold is donated to us. Buy your ticket(s): https://t.co/Jn6jMBDh9n
You must be 18+ & reside in the UK Closes 30/9/25 Self-exclusion: https://t.co/Vr2XCigeNZ
#The5050Raffle #PoweredByRaiseHero

[Myaware @myawareUK]

Regular gifts are so impactful in helping us continue our work providing support, funding research, raising awareness &giving everyone a voice at NICE appraisal committee meetings.
Could you become a regular giver? Please sign up here: https://t.co/LlgWwxwL3i

[Myaware @myawareUK]

We couldn’t provide free support calls, Zooms, benefits & welfare advice & Facebook groups for people like Fiona without your generous gifts.
Can you help us support people who need it most? If so, please donate or become a regular giver here: https://t.co/LlgWwxwL3i

[Myaware @myawareUK]

🌞 August Bank Holiday is almost here! If you’re out & about in England & Wales, don’t forget your essentials: flask, suncream & radar key 🗝️.

Check the 🧻 toilet map to find accessible loos near you: https://t.co/E9ZHqo7nk3
Get a radar key here: https://t.co/IgctweLc2Y

[Myaware @myawareUK]

£2,440 already raised through Unity Lottery. 106 weekly players. Could you help us reach 115 players? £25,000 weekly jackpot. To play: https://t.co/zdT3Q2CZbx For gambling opt out and advice: https://t.co/R0XLR3BY5i

[Myaware @myawareUK]

Win a Land Rover Evoque, while helping others with myasthenia. 50% of every ticket sold is donated to us. Buy your ticket(s) here: https://t.co/Jn6jMBCJjP
You must be 18+ & reside in the UK Closes 30/9/25 Self-exclusion: https://t.co/79IJmeDqUg
#The5050Raffle #PoweredByRaiseHero

[Myaware @myawareUK]

Did you know you can turn old stamps into funds for myaware? Simply cut out the stamp to remove it from the envelope and send them to: Myaware, PO Box 16992, Sutton Coldfield, B73 9YA. Please note you will need to put a stamp on the envelope – this is not a freepost address.

[Myaware @myawareUK]

👩‍⚕️ Are you aware myaware have created a glossary of terms to help break down your medical letters? It provides clear definitions of medical words, tests and treatments to support understanding.

Find it here: https://t.co/RIUF3aZ6yL

[Myaware @myawareUK]

Win a Land Rover Evoque, while helping others with myasthenia. 50% of every ticket sold is donated to us. Buy your ticket(s) here: https://t.co/Jn6jMBCJjP
You must be 18+
Reside in the UK
Closes 30/9/25
Self-exclusion: https://t.co/79IJmeDqUg
#The5050Raffle #PoweredByRaiseHero

[Myaware @myawareUK]

📢 The #Myaware & #MDUK open letter on #Nice 's decision not to make #zilucoplan (Zilbrysq) & #efgartigimod (Vyvgart) widely available for #myasthenia is now in the press. Read more: https://t.co/ysdNUBKcx2
https://t.co/HiUZQEBdFS #PatientsDeserveBetter

[Myaware @myawareUK]

If you're booking a last minute holiday or need to buy insurance, don't forget you can generate free funds for us through https://t.co/WWeeJj02U7 £1,184.12 has been raised so far! This is an amazing amount! Sign up here: https://t.co/EUhYefwT02

[Myaware @myawareUK]

£2,040 already raised through Unity Lottery. 102 weekly players. Could you help us reach 110 players? £25,000 weekly jackpot. To play: https://t.co/zdT3Q2CZbx For gambling opt out and advice: https://t.co/R0XLR3BY5i

[Myaware @myawareUK]

Heat making your #Myasthenia symptoms worse? You might be eligible for a Disabled Facilities Grant to help get air conditioning or cooling equipment at home. Check with your local council. Info: https://t.co/uDTb0Zxz6l #MGSupport #DisabilityHelp #myasthenia #rarediease