Meniere's Sucks

Raising awareness of Meniere's Disease by ranting about how much it sucks. #menieres

[Meniere's Sucks @MySpinningHead]

Went on a flight for the first time in more than 15 years. That was absolutely awful. Each time the plane banked & rolled I felt like I was having a vertigo attack. A day later and I still keep having residual motion sickness.

[Meniere's Sucks @MySpinningHead]

Don’t you hate it when you’re trying to take advantage of your deafness and you find that the annoying sound is still within your hearing range?

[Meniere's Sucks @MySpinningHead]

@dianefrom_bc @lilmikeymom I get no warning either. Suddenly the world is spinning right in front of me and I can feel it too. I’ve been in bed and had to grab onto the mattress tight because I was sure the bed was flipping over trying to throw me out.

[Meniere's Sucks @MySpinningHead]

Freaked out and thought I was about to have a really bad vertigo attack.

Turns out I was just sitting in a wobbly chair. #menieres

[Meniere's Sucks @MySpinningHead]

@Shawn_T_G It’s been happening every week or two for the past 6 months.

[Meniere's Sucks @MySpinningHead]

Another one of those days with my ear feeling like it has water in it that won’t drain. Kind of like after you’ve been swimming. Starts suddenly out of the blue, it’s not after I’ve been laying down or anything. Can’t figure out how to clear it. #menieres

[Meniere's Sucks @MySpinningHead]

@deaconblues1031 If it was stress I'd be getting vertigo. It seems that another part of my inner ear has degraded and so the sinus flow is getting stuck in my ear.

[Meniere's Sucks @MySpinningHead]

@lilmikeymom @spamvicious I've not driven on the highway for about 3 years and have avoided driving as much as possible even around town. I've been walking to the grocery store with a backpack or if I need a lot of stuff, a big wagon.

[Meniere's Sucks @MySpinningHead]

@mcpat123 It started with vertigo and occasionally being partly deaf for a few days. It was many years later that the tinnitus started.

[Meniere's Sucks @MySpinningHead]

Every time you think you’ve figured out something to work around this disease it just comes back. For almost 2 weeks I’ve been without that “about to have an attack” feeling but now it’s back. #menieres

[Meniere's Sucks @MySpinningHead]

@jst4me2c @ElTrumpo @Goodkelly1S I’ve had this for over 20 years. It doesn’t get better, but my ability to cope with it has gotten better.

[Meniere's Sucks @MySpinningHead]

#IMissBeingAbleTo tell which direction a sound is coming from. #menieres

[Meniere's Sucks @MySpinningHead]

#IMissBeingAbleTo bend down and pick up something off the floor without getting vertigo. #menieres

[Meniere's Sucks @MySpinningHead]

#IMissBeingAbleTo nod my head without having to suddenly stop and wait for the spinning to subside. #menieres

[Gill @gilljustsmile]

@MySpinningHead #IMissBeingableTo go anywhere or do pretty much anything without having to consider all the 'what if' options. #menieres