Neda Eftekhar

Human and Animal Rights. Environmentalist. #pwME #mecfs

[Brenda Hankins @hankins_brenda]

@netflix @NIHDirector @CDCDirector No healthcare for #severeME .Should have home health service, but died at 42, no hospice. #afflicted

[Neda Eftekhar @NedaEftekhar]

@jenbrea Government in general. The hoops you have to jump through applying for SSDI are exhausting and very difficult to do if you're ill. Then after all that you get a denial letter saying you can work when you so clearly can't.

[Neda Eftekhar @NedaEftekhar]

#Afflicted is what happens when money-driven, able-bodied people try to make a documentary about the severely chronically ill

#IamJamison #IamBekah #IamJake #IamJill #IamStar #IamPilar #IamCarmen

[Neda Eftekhar @NedaEftekhar]

@JessicaXDiamond There's a steep learning curve and even long timers learn something new every day, so just focus on the bigger picture for now, so you don't get overwhelmed, crash and burn. You will learn as you go and as you do it will get easier

Context:

12 years veg, most of them vegan

[Neda Eftekhar @NedaEftekhar]

Preying on the severely ill to make a buck is NOT ok

#IamJamison #IamJake #IamBekah #IamJill #IamCarmen #IamPilar #IamStar

#Afflicted #mecfs

[Jamison Hill @NotTheWhiskey]

As many of you know AFFLICTED, the docuseries I’m in, wasn’t what we expected.

Here is a short group blog post that outlines our grievances about #Afflicted. If you want ALL the details check out the links at the bottom — you’re gonna want to read them! https://t.co/1LBRT8niLy

[Neda Eftekhar @NedaEftekhar]

@Jamiejhagen @jenbrea @netflix Here: https://t.co/xnFmzFd9DM

[Neda Eftekhar @NedaEftekhar]

@NLizaki Whoa! Are you in Iran?

[Neda Eftekhar @NedaEftekhar]

Why the docu-series #Afflicted is harmful to people with chronic illness:
https://t.co/lyWZt3DTTM

#MECFS #pwME

[Neda Eftekhar @NedaEftekhar]

@Hippiechickie36 Confused as to why you're in such a huff over people being upset about this film. What do you gain by berating the severely ill and their allies?

[Neda Eftekhar @NedaEftekhar]

Petition to remove #Afflicted from Netflix: https://t.co/xnFmzFd9DM

#mecfs #pwme

[Neda Eftekhar @NedaEftekhar]

@NotTheWhiskey This petition to remove Afflicted from Netflix has received nearly 2,000 signatures in the two days it's been up: https://t.co/YulawDv3tF

[Neda Eftekhar @NedaEftekhar]

@freeandclear1 @SukiSMiller @KaivanShroff @palmbeachresist @AMarch4OurLives I'm getting that too (boxes with X's). Perhaps someone could translate?

[Neda Eftekhar @NedaEftekhar]

@MEflattened @jenbrea @JanetDafoe cont'd...

The fact that they are likely mostly younger (it's mainly residents and some med students) means they're not set in their ways yet, so there's probably a better chance we could get through to them

[Neda Eftekhar @NedaEftekhar]

@MEflattened @jenbrea @JanetDafoe He's really arrogant for sure. I think I was so shocked because these doctors are young (or at least young to the profession), and with medicine moving towards a more collaborative model I expected them to be a bit less arrogant and close-minded.

[Neda Eftekhar @NedaEftekhar]

@jenbrea @MEflattened Your reply hit it out of the park. Thanks for chiming in!

[Neda Eftekhar @NedaEftekhar]

@jenbrea Just saw your amazing comment on the subreddit. Thanks for making it.

[Neda Eftekhar @NedaEftekhar]

@jenbrea Thanks, Jen. I do what I can.

[Neda Eftekhar @NedaEftekhar]

@Saturnation8 @jenbrea Yes, a few acknowledge it is real. A couple more say it *may* be real- not because they believe us, but because there is a lot of research to support it. The arrogance of doctors who will only consider that something is real if there is research to support it!

[Neda Eftekhar @NedaEftekhar]

@jenbrea Totally understand. I left a comment and at least one other me/cfs warrior has done the same. Hopefully they will read them and see how damaging their attitudes are