NeuroLifeNow

It's time to make your story heard

[NeuroLifeNow @NeuroLifeNow]

In March-April 2024, 50% of you were waiting for NHS care.

Our @NeuroLifeNow March-April report on the impacts of long waits for care on people with neuro conditions is now out: https://t.co/xpCZh6dJZW

#NHS #NHScare #waitinglist #neuro #neurologicalcondition @NeuroAlliance

[Brain & Spine Foundation @brainspine]

In July & August, 50% of you reported the high difficulty of travelling to your appointments.

The report's results are now here. Head to the @NeuroLifeNow website to read them: https://t.co/euhxLdzl8b

#report #research #experience #neurologicalcondition #neuro

[Brain & Spine Foundation @brainspine]

The new bi-monthly @NeuroLifeNow survey is now live. Click here to respond to the questionnaire: https://t.co/yGCoH2AWOn

[NeuroLifeNow @NeuroLifeNow]

@sillyoldjen @brainspine We are really sorry to hear about all this. If you are struggling, you can always call or email the BSF Helpline team (0808 808 1000 or [email protected])and the neuroscience nurses would be more than happy to help or advise

[NeuroLifeNow @NeuroLifeNow]

@sillyoldjen @brainspine Hi @sillyoldjen, thanks for your reply. In the survey, there are options to add more neuro conditions and/or other condition or injuries. This way we can use that as part of our analysis. You can also cover off such points as the one you raised in the free-text response question.

[Brain & Spine Foundation @brainspine]

What's the reality of living with a #neurologicalcondition in the UK today?
Your voice matters!
Please take part in this research and drive positive change in neurological #treatment & #care: https://t.co/8XNzKIGaFv

#research #neuro #healthcare @NeuroLifeNow

[NeuroLifeNow @NeuroLifeNow]

@RhysHolmes @brainspine Hi, would you be able to email us the details of your condition at this address: [email protected] please?

[NeuroLifeNow @NeuroLifeNow]

@boxingcatdog Hi, would you be able to check your junk mail please? Kind regards, the BSF team

[NeuroLifeNow @NeuroLifeNow]

Our #questionnaire this month focuses on how your #neurologicalcondition affected your job.

Want to share your lived experience with us? Don't forget to fill in the May-June survey here: https://t.co/sGmRpiUtog

[Brain & Spine Foundation @brainspine]

Our July-August @NeuroLifeNowsurvey has arrived!
Help us drive positive change through #research. This time, we are focusing on the shared issues faced by people affected by different conditions.

If you want to share your own experience, click here:
https://t.co/niJq4JdCvd

[NeuroLifeNow @NeuroLifeNow]

@boxingcatdog Apologies for all this. We've tried to message you privately on Twitter but it is not possible. Is there any way we can contact you? Otherwise you can always send your feedback to [email protected] as we would like to know more about how we can capture your feelings.

[NeuroLifeNow @NeuroLifeNow]

@boxingcatdog Hi, thanks for your feedback. We have now amended the survey so you will be able to add more than 1 option as your answer. In the future, we encourage you to email us your feedback at [email protected]. Have a great day!

[The Neurological Alliance @NeuroAlliance]

Please help @NeuroLifeNow gain real time insights into your experiences of life with a #neurological condition and complete the survey using this link: https://t.co/46p4ZE1Odg the May-June survey asks about #employment: #DisabilityTwitter

[Brain & Spine Foundation @brainspine]

Felt misunderstood by your employer regarding your #neurologicalcondition & the challenges you face every day?

Remember that your voice is so important to help us drive change.

Share your own experience by filling in the @NeuroLifeNow survey here: https://t.co/3o88XKFr3c

[The Neurological Alliance @NeuroAlliance]

Please help @NeuroLifeNow gain real time insights into your experiences of life with a #neurological condition and complete the survey using this link: https://t.co/46p4ZE1Odg the May-June survey asks about #employment: #DisabilityTwitter

[NeuroLifeNow @NeuroLifeNow]

The #costofliving has never been starker, nor is the case more urgent. The #UKGovernment fiscal plans must #Backthe1in6 with a neuro condition and those closest to them, starting with uprating benefits such as #PIP in line with inflation: https://t.co/hwujMuNnT1
@NeuroAlliance

[NeuroLifeNow @NeuroLifeNow]

We're pleased to share with you the results from the #NeuroLifeNow May-Aug surveys. We asked you to share your experiences accessing #care, and your response to #costofliving: https://t.co/uUbjlQ4sTs

@NeuroAlliance #Neuro #research #Backthe1in6

[NeuroLifeNow @NeuroLifeNow]

The next edition of the #NeuroLifeNow survey is live and open until the end of October. We continue to focus on understanding how the #costofliving crisis is affecting you. It only takes a few minutes to get your voice heard and complete the survey here: https://t.co/V1zeHNMDLQ

[NeuroLifeNow @NeuroLifeNow]

In the Jul-Aug #NeuroLifeNow survey, we would like to know how the cost-of-living crisis is affecting you. Your experience is shared with NHS Commissioners, UK Governments and clinicians to influence how #neuro services are delivered: https://t.co/cNme90jgaw

[The Neurological Alliance @NeuroAlliance]

In Dec 2021, 32% of respondents @NeuroLifeNow said #mentalhealth needs weren’t being met or were being met to a small extent. Join us in responding to the Govt call for evidence to develop a plan to improve mental health for everyone in the UK.https://t.co/avlSKnmFHq