N.I.Disability & Carers Group

Northern Ireland Disability and Carers Group - comprises disabled parents/carers/academics/disabled people & allies/PA's/ and a few renegade OT's!

[N.I.Disability & Carers Group @NIDisability]

As we begin Carers Week, let's recognise the incredible unpaid carers providing support 24/7, often with little recognition and at great personal cost.
Thank you for everything you do. You are seen, valued, and appreciated. 💜
#CarersWeek #UnpaidCarers

[Sky News @SkyNews]

NHS approves first new ovarian cancer treatment for 20 years https://t.co/tooz0zOiiI

[ITV News @itvnews]

New AI-designed vaccine ‘could protect against whole families of viruses’
https://t.co/Ld7zijLz1P

[N.I.Disability & Carers Group @NIDisability]

@AlannahBrown11 are you aware there has been serious GDPR breaches in the encompass system where non clinical staff are viewing people's medical records & sharing the information with other staff? Carers and families have been left hurt.

[N.I.Disability & Carers Group @NIDisability]

The services will be offered to the most severe, others will be offered direct payments or Daytime Opportunities, it's how each trust re assess your young person at 18.

[BBC News NI @BBCNewsNI]

Young people with Special Educational Needs leaving school are treated as a "price tag", according to the mother of an autistic teenager. https://t.co/Ok4fn7IUUI

[N.I.Disability & Carers Group @NIDisability]

@mlchealth @colettemaguire And what about non clinical staff accessing Encompass viewing medical records and sharing it with other staff? Serious Breach's of GDPR going on now.

[Marie-Louise Connolly @mlchealth]

The judgement, which was triggered by a case brought by the Attorney General for Northern Ireland, will apply across the UK. https://t.co/EYmGbt51yO

[Paul Ridley @PaulRidley5]

"A night off for Britain's carers saved the taxpayer £1.89m last year, analysis of Carefree finds " https://t.co/8bEENFDEXy

[N.I.Disability & Carers Group @NIDisability]

@AlanStout19 Very sad that there has been very serious Breach's of GDPR already, non clinical staff who deliberately logged on to view people's records then shared information. Families left hurt @BBCNewsNI @CarolJordanTV @taramillstv @BelTel @healthdpt @mikenesbittni

[N.I.Disability & Carers Group @NIDisability]

@AlanStout19

[N.I.Disability & Carers Group @NIDisability]

@AlanStout19

[Belfast Trust @BelfastTrust]

😴🚶‍♀️Join the Sleep Walkers🚶‍♀️😴

Living with sleep apnoea can feel exhausting but you don’t have to face it alone.

Sleep Walkers is a friendly walking group bringing patients together to improve wellbeing, boost energy, and support better sleep through gentle exercise.

[The i Paper @theipaper]

PIP benefits set to be overhauled to push young claimants into work https://t.co/yl4KVJ7Iej

[N.I.Disability & Carers Group @NIDisability]

This needs looked at in NI @healthdpt too many non clinical staff logging on viewing very private patients records and then sharing delicate information with their own staff.

[BBC News (UK) @BBCNews]

NHS single patient record to be debated for first time https://t.co/4dDgt8vM5v

[South Eastern Trust @setrust]

Introducing our BRAND NEW online carers platform 🚨

Our Trust has partnered with SERC ICT students to create a one-stop shop where carers can access vital information and support all in one place 🌟

We’re excited to share the platform with you very soon — watch this space 💻

[Belfast Telegraph @BelTel]

A once-daily pill helped almost double survival time for patients with an aggressive and advanced form of pancreatic cancer when compared to chemotherapy, a trial has found. https://t.co/prsDJo34Vu https://t.co/prsDJo34Vu

[ITV News @itvnews]

Cancer jab destroys whole tumours in treatment-resistant cases, trial shows

https://t.co/cRqZMAmRUr

[N.I.Disability & Carers Group @NIDisability]

@myweeruby @CarersNI One week isn't much

[Disability News Service @johnpringdns]

Disabled campaigners have welcomed Motability’s decision to suspend a controversial programme that uses technology to monitor how its customers are driving, but they have also called for it to scrap other damaging changes that remain in place.
#Motability
https://t.co/ipmTBmXY4H

[BBC Newsline @bbcnewsline]

Blister packs are made up of different types of medication in your local chemist. But BBC Newsline has discovered that many pharmacy teams here have reached capacity when it comes to providing them. The problem is that some care workers won't administer medications without them.