NRAS

Patient-led charity in the UK specialising in providing info & support to those living with rheumatoid arthritis #RA & juvenile idiopathic arthritis #JIA.

[NRAS @NRAS_UK]

NRAS is committed to ensuring any data we collect, and process is carefully managed, which is why we have updated our privacy policy.

It includes details on the information we collect, how we process it, our basis for processing and your rights.

There are some changes to relating to new processing activities, we have made the policy easier to read and updated our cookie notice. Our supporters are key to the success of the charity, and we will update this policy as data protection laws change and new technologies emerge. You can read the full privacy policy here: https://t.co/VcvIfnSlJD

[NRAS @NRAS_UK]

💙 Meet Alison, one of our amazing #TakeOn25 challengers, who's committed to 25 sessions of 25 minutes of movement before October.

Living with rheumatoid arthritis, she's embracing the challenge her way:

"I'm taking on #TakeOn25 by completing 25 minutes of movement on 25 occasions before October. This challenge isn't about setting records or proving anything to others. It's about demonstrating resilience. Every session reminds me that while RA is part of my life, it does not define me."

From swimming and cycling to walking and weeding, Alison is showing that movement looks different for everyone.

There's still time to get involved. Join #TakeOn25 today and help us raise £25,000 for people affected by RA.

Sign up today and receive an NRAS t-shirt and medal. Raise £250+ and you'll also receive a free NRAS snood.

👉 https://t.co/uguGcTb9iI

#TakeOn25 #Fundraising #RA

[NRAS @NRAS_UK]

Your chance to win £2,500 is just a ticket away!

Enter the NRAS 25th Anniversary Raffle today for the chance to win £2,500 while supporting people affected by rheumatoid arthritis and juvenile idiopathic arthritis.

🎟️ Enter now: https://t.co/V1LLrL4bjp

18+ only. Great Britain residents only. Please play responsibly.

[NRAS @NRAS_UK]

Post-childbirth RA patients likely to have flares

Join Stuart The News Guy as he tackles a study aiming to compare disease activity treatment received following childbirth.

Check out the full video here - https://t.co/KRiFvzlWKz

[NRAS @NRAS_UK]

⏰ One week to go!

Rheumatoid Arthritis Awareness Week is almost here.

Did you know RA isn't simply a condition of ageing? It's an autoimmune disease that can affect people of all ages and impact far more than joints.

Over the coming week, we'll be sharing information, lived experiences and practical support to help shine a light on the realities of living with RA.

💙 Follow along and help us raise awareness.

medac Pharma provided arm’s length funding for this project. medac Pharma has not had influence in the project, or the development of any associated materials.

#RAAwareness #RAAW26 #InvisibleIllness

[NRAS @NRAS_UK]

Did you know that people living with rheumatoid arthritis can have an increased risk of osteoporosis and fragility fractures?

New NICE guidance aims to improve how osteoporosis risk is assessed, helping people receive the right support, investigations and treatment at the right time. The guidance includes recommendations on risk assessment, DXA scans and shared decision-making about treatment.

If you're concerned about your bone health, speak with your rheumatology team or GP.

🔗 Learn more: https://t.co/RRMje0fNHz

#RheumatoidArthritis #BoneHealth #Osteoporosis

[NRAS @NRAS_UK]

NRAS is collaborating with SCOPE.

Join Stuart The News Guy as he discusses how NRAS is joining with SCOPE and a coalition of charities in calling on the government to make disability pay gap reporting mandatory and remove the barriers that push disabled people out of work.

Watch the full video here - https://t.co/0j98Bl8gJ4

[NRAS @NRAS_UK]

Cheer us on at Cookham Regatta!

To celebrate RAAW and our 25th Anniversary, the NRAS team will be taking part in the Dragon Boat race at Cookham Regatta on 5th Sept!

We will also have a fundraising stall so, if you're local, please do pop by and say hi - we would love to see you.

Any donations to help spur on our Dragon Boat team would be very welcome - https://t.co/Hakawf0dyB

#TeamNRAS #RAAW #JIA

[NRAS @NRAS_UK]

News from across the pond about a 10 year study on early biological triggers of systematic autoimmune rheumatic diseases, like RA.

Stuart The News Guy talks about a study conducted by the University of Houston and in collaboration with the Harvard Medical School and $4 million from the National Institute of Health in the US are funding the study.

Check out the full video here - https://t.co/ZREKxeUXmW

[NRAS @NRAS_UK]

📍 Connect with Your Local RA Community

Living with rheumatoid arthritis or another inflammatory arthritis condition? Connecting with people who understand can make a real difference.
NRAS Local Groups offer a friendly, supportive space to share experiences, learn from guest speakers, and meet others affected by RA in your area. Whether you're newly diagnosed or have been living with RA for years, you'll be warmly welcomed.

💙 We're delighted to launch our new Maidenhead Group, with a new Ipswich Group coming soon.

📅 We also have lots of meetings taking place this month across the UK, including groups in Newcastle, Somerset, Swansea and more.

All groups are run by dedicated volunteers and are free to attend.

Find your nearest group and upcoming events: https://t.co/5Qle7Ql1nT

#RACommunity #RheumatoidArthritis #InflammatoryArthritis #PeerSupport #NRASUK

[NRAS @NRAS_UK]

COMMUNITY SPOTLIGHT 🤩

Meet Adrian, who has decided to take part in our #TakeOn25 Challenge! Adrian was diagnosed with rheumatoid arthritis back in 2023 and continues to battle it on a daily. However, with the support of his wife, son and wider family and friends - he took on the challenge of walking 25 miles, from his home in Bournemouth, to the magnificent Salisbury Cathedral - his city of birth!

An amazing effort from Adrian and thank you to all those who have signed up taking on their own challenges. 👏

If you are interested sign up today! 👉 https://t.co/aFYj90vKrB

[NRAS @NRAS_UK]

Join Stuart The News Guy in the newest edition of NRAS News.

Stuart will be going into the various studies and stories from the RA and JIA community. Including a 10 year multi million dollar study, NRAS' work with SCOPE and a study about people living with RA and who are post-childbirth.

Check out the full video here - https://t.co/nrzqeT2Cbh

[NRAS @NRAS_UK]

Are you a man living with a rheumatic or musculoskeletal disease (RMD) in the UK?

Sexual health and well-being are key components of overall quality of life, yet they often remain unspoken in clinical care. The SEHRA-MEN Study (funded by EULAR) aims to change this by understanding your real experiences and addressing unmet needs.

🔹 Who can take part? Men (18+) diagnosed with any RMD and living in the UK.
🔹 What’s involved? A 15-minute, completely anonymous online survey.

📲 How to join? Scan the QR code below or click the following link to complete the survey: https://t.co/DBwq5m2Y0o

📧 For questions, contact: Dr Benedetto Giardulli [email protected] , Dr Simone Battista [email protected], or Prof Yeliz Prior [email protected]

[NRAS @NRAS_UK]

Rheumatoid Arthritis isn't always visible.

🫥 The pain.
😴 The fatigue.
💭 The emotional toll.

RA can affect every part of someone's day, even when there are no outward signs.

Just because someone looks okay doesn't mean they feel okay.

👇 What invisible RA symptoms would you add? Share your experience and help raise awareness.

[NRAS @NRAS_UK]

People living with long-term conditions should not have to manage alone.

Ailsa Bosworth, NRAS founder and National Patient Champion, explores why person-centred support, self-management, and stronger community connections are vital to helping people live well with long-term conditions.

Read the article here: https://t.co/82Fs5kWx9N

💬 What do you think are the most important factors in helping people live well with a long-term condition?

#LongTermConditions #RA #HealthAndSocialCare #Scotland

[NRAS @NRAS_UK]

What should you do when a flare strikes? Our Founder and National Patient Champion joins the BSR Talking Rheumatology Spotlight podcast to share insights on flare management, patient support, and the importance of advice line conversations.

Listen to the full discussion: 🎧 https://t.co/qBPYNQhiQ0

#NRAS #Rheumatology #PatientChampion #RAAwareness #FlareManagement

[NRAS @NRAS_UK]

Tea-rrific advice needed!

Wow, we can’t think what possibly went wrong?! 😉

Emma obviously needs a few pointers when perfecting her choice of cuppa!!

Please do drop your pearls of wisdom in the comments - and don’t forget to sign up to host a tea party, coffee morning or bake sale for us and make Every Cuppa Count! - https://t.co/f7nVgmrn34
#EveryCuppaCounts #TeamNRAS #ArthritisAwareness #TeaTime

[NRAS @NRAS_UK]

🚶‍♂️10,000 steps a day may be a marketing phrase but every step counts 💪,

What goals do you set yourselves?

[NRAS @NRAS_UK]

A diagnosis of RA or AJIA doesn't have to mean giving up work or changing your ambitions.

Our 'I want to work' guide offers practical advice on workplace support, your legal rights, managing symptoms at work and returning to work after time off.

Discover real-life experiences, expert guidance and the tools that can help you build success and confidence in your career. Order or download the full booklet today: https://t.co/yWbSsRRHm4

[NRAS @NRAS_UK]

When you're staying active with rheumatoid arthritis, do you prefer:

🏠 Exercising indoors or 🌳 Exercising outdoors?

Maybe indoors gives you more control over your environment, or perhaps fresh air and being in nature helps you feel your best.

Which team are you on? Share your tips on what works for you below 👇

#ThisOrThat #InvisibleIllness