NRXN1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.

[NRXN1 Network @Nrxn1Network]

https://t.co/vzP3ffEqSx

[NRXN1 Network @Nrxn1Network]

Autism and ADHD and NRXN1 deletion, oh my!

Trying to make sense of your child's educational and medical diagnoses? Brenda Finucane, MS CGC, shines a light on why children might receive different diagnoses from different places, and how they all relate to each other.

[NRXN1 Network @Nrxn1Network]

https://t.co/vzP3ffEqSx

[NRXN1 Network @Nrxn1Network]

Do you have questions about your child's challenging or perplexing behaviors? Ask anything of Cora Taylor, PhD, at the NRXN1 Family Conference. Link to register in comments 👇

[NRXN1 Network @Nrxn1Network]

Register now! https://t.co/vzP3ffEqSx

[NRXN1 Network @Nrxn1Network]

Early bird registration is now open for the NRXN1 Research and Family Conference Feb. 20-22, 2026! Check out the conference webpage to register, book a hotel room, and explore what Philly has to offer.

https://t.co/vzP3ffEqSx

[NRXN1 Network @Nrxn1Network]

@OnceUponAGene https://t.co/xSk7lGi8HP

[NRXN1 Network @Nrxn1Network]

Today is #RareDiseaseDay. Although NRXN1 Deletion Syndrome is rare, one recent study suggests as many as 1 in 1400 people may have it— and many have never been diagnosed.

Consider making a donation to NRXN1 Network in honor of Rare Disease Day! https://t.co/DcaLKYLqq3

[NRXN1 Network @Nrxn1Network]

#ShineYourSearchlight✨ Your annual updates to Simons Searchlight help researchers understand how NRXN1 Deletion evolves over time, benefiting families like yours. 📊

Visit your dashboard to share updates and complete surveys: https://t.co/BSwF4DJfv9…

[NRXN1 Network @Nrxn1Network]

Today, February 16, is 🧬 NRXN1 Deletion Syndrome Awareness Day!

Please help us spread this message to raise awareness and show your support! Visit our website (https://t.co/Dixc7T2OOe) for additional ways to get involved! #NRXN1AwarenessDay

[Simons Searchlight @s_searchlight]

✨ Today we celebrate #NRXN1AwarenessDay w/our friends at @Nrxn1Network! We have over 15 participants w/#NRXN1-related disorder or 2p16.3 deletion syndrome registered in #SimonsSearchlight.

🌐🧬 Find resources, data, support, family stories and more: https://t.co/srGKEacUn7

[NRXN1 Network @Nrxn1Network]

Get ready for our first NRXN1 Deletion Syndrome Awareness Day on February 16!

[NRXN1 Network @Nrxn1Network]

#ShineYourSearchlight✨

Your medical history helps researchers understand NRXN1 Deletion Syndrome and develop better therapies.

Are you a participant ready to complete this task? Go to https://t.co/BSwF4DJfv9…

[NRXN1 Network @Nrxn1Network]

#ShineYourSearchlight✨ Join Simons Searchlight, a trusted research partner funded by the Simons Foundation, and help us learn more about NRXN1 Deletion Syndrome!

#SimonsSearchlight #GeneticsCommunity #RareDiseaseResearch #CareForRare