Nice to exchange ideas & experiences with patient representatives from other European rare bone organizations: HPP, XLH, achondroplasia and other skeletal dysplasias. A lot of challenges in common!
Well deserved dinner with the team after a great 1st day at @childrensbones Looking forward to more exciting news and networking tomorrow! #xlhawareness#ICCBH2019
Meet the founding members of our International #XLH Alliance! We are committed to improving outcomes for patients and families impacted by #XLH and related disorders. Visit our website for more information:https://t.co/Of25xHy8gZ
We've recommended burosumab as an option for treating X-linked hypophosphataemia in children and young people. Find out more here: https://t.co/xA4LcpzR0A