Meg

Idealist ● Chicago native ● 💙💛🌻 #BLM 🏳️‍🌈Ally/Pflag ● It is our choices that show who we truly are, far more than our abilities.

[Meg @PargsP]

@AwesomeNewsom 🍊 drama queen in action. 🙄 It would be even funnier if he didn’t have the potential to do a lot of damage due to his temper tantrum.

[Meg @PargsP]

@puigpauadvocate @JeffLubell_C19 You should read the study by Tulane university on the correlation between folate deficiency and Ehlers-Danlos syndrome. Since it impact us, we need to take methylated folate daily.

[Meg @PargsP]

@dog_rates Same, Trigger buddy, same.

[Meg @PargsP]

@dog_rates I need a Wally and a grandma. 🥺

[Meg @PargsP]

@GavinNewsom Please tell me this isn’t real. I don’t want to go find out. I wouldn’t put anything past these hatred-fueled criminals.

[Meg @PargsP]

@JeffLubell_C19 Your research makes complete sense, but I have no idea if anyone will be willing to help us. I’ve been disabled for five years, but I have not met an MD who seems to care at all. How do we get doctors to learn, let alone to care about us? 3/3

[Meg @PargsP]

@JeffLubell_C19 Tulane had just published the research study verifying the correlation. In online LC groups, I could see how many people seem to have both LC & hEDS. Every MD I’ve seen either does not believe in LC, doesn’t know about hEDS, or has zero interest. 2/3

[Meg @PargsP]

@dog_rates I am, Percy. Keep the word ‘puddle’ in your back pocket. You’re gonna love them.

[Meg @PargsP]

@btlsfan4 It is still active. It’s called the Washington University Post COVID-19 Clinic. You can make an appointment at 314–273–3300. I’m not sure what the criteria are to get into the program, they may have changed since I was accepted. https://t.co/rqbM9LbWud

[Meg @PargsP]

@heyitsmorganmoe I am sorry you are in shock. I am sitting in my basement as I type this, due to tornado warning sirens. I can only imagine how this is adding to the stress of everyone who already suffered during the tornado 3 days ago. I sincerely hope you are safe.

[Meg @PargsP]

@CRS1A071 @Beganovic2025 😢

[Meg @PargsP]

@midwestern_ope @heyitsmorganmoe My thoughts are with you during this trying time.

[Meg @PargsP]

@arletta1967 @wxmann It did, and the report is that all the animals are safe.

[Meg @PargsP]

@brentschmidt @wxmann I heard they are all just fine. I suspect the zoo staff got them all inside when the tornado watch forecast came out.

[Meg @PargsP]

@froglet80 @LCinsomniac @healingfromlc Thank you. It’s definitely not our fault. I’m doing everything I can to get better, no matter what better looks like. I’ve been my own advocate fiercely, despite the incompetence & lack of concern by too many in the medical community. I’m grateful for this LC community of people.

[Meg @PargsP]

@LCinsomniac @healingfromlc @froglet80 I appreciate being able to communicate with other people who understand our current reality. I’m sorry we are going through this.

[Meg @PargsP]

@froglet80 @LCinsomniac @healingfromlc Not one single doctor has shown any interest in treating me with antivirals. It’s confounding. I also read that getting the shingles vaccine can greatly diminish many of the neurological symptoms we have.