Parkinson's Foundation

The Parkinson's Foundation makes life better for people with Parkinson's through expert care and research.

Free Helpline: 1-800-4PD-INFO (473-4636)

[Parkinson's Foundation @ParkinsonDotOrg]

Today is National Grief Awareness Day. 🩵 We meet grief regularly throughout our lives as we lose or say goodbye to what we hold dear, be it the people we loved, the things and routines in our life that were important to us, or the plans or hopes we dreamed one day would come true.

However you carry your grief, you are not alone: https://t.co/yiyX9lRwyw

[Parkinson's Foundation @ParkinsonDotOrg]

Join us online next Wednesday for Care Partner Conversations: a webinar series led by a panel of care partners who share practical tools, personal stories, and the resources that have supported them along the way.

Register for free: https://t.co/d62lms3zFa

[Parkinson's Foundation @ParkinsonDotOrg]

Our fall Moving Day Walk season is right around the corner! 🩵

👟 Find a walk near you and register to join us: https://t.co/F64QwJUBs4

[Parkinson's Foundation @ParkinsonDotOrg]

The Parkinson’s Foundation drives a multi-disciplinary research strategy to close the gaps in knowledge about Parkinson’s – from its basic biology to its impact on the brain and its effects on people.

🔬 Hear directly from researchers funded by the Parkinson's Foundation and learn about the work they're doing for the PD community. Explore more: https://t.co/BdGR3H8oi3

[Parkinson's Foundation @ParkinsonDotOrg]

This free guide takes you through the process of starting, facilitating and maintaining a Parkinson’s disease support group. 🤝

Sample meeting guides are also included for people with Parkinson’s as well as care partner-only groups: https://t.co/Ju938vzxmL

[Parkinson's Foundation @ParkinsonDotOrg]

"Earlier this year, I traded in my briefcase for running shoes (and other adventures). [Training has] reminded me that the ability to move is a gift... My dad has been living with Parkinson’s Disease for nearly a decade. Like so many families, we’ve experienced the challenges of PD firsthand—and the importance of research, better treatments, and support for people living with the disease and those who love them."

🏃‍♀️🦘🇦🇺 This weekend, Parkinson's Champions runners are taking on the TCS Sydney Marathon! One of those runners is Nicole—and she is inspired by her dad to run in the land down under.

We're cheering on our international team every step of the way! 👏 You can support their run at https://t.co/P3oSHYSoau.

#SydneyMarathon #Parkinsons #Run

[Parkinson's Foundation @ParkinsonDotOrg]

As Parkinson’s progresses over time, managing movement symptoms with standard medications can become more challenging.

When this happens, people often explore other treatment options including deep brain stimulation (DBS), pump medications and procedures such as focused ultrasound.

This guide explains how these treatments work, why they are used and what to know before or after starting them: https://t.co/qLhWf9H8BQ

[Parkinson's Foundation @ParkinsonDotOrg]

People diagnosed with Parkinson's at a younger age face different social challenges — they're often mid-career, have less time for care, and may be navigating parenthood or family planning with concerns about genetic risk.

Younger brains also have higher neuroplasticity (the brain’s ability to grow and change response to therapy) potential which allows the brain to handle and respond to disease and therapy differently.

Learn more about young-onset Parkinson's disease and explore resources designed specifically for the YOPD community: https://t.co/DeiO2I6Eth

[Parkinson's Foundation @ParkinsonDotOrg]

This National Dog Day, the dogs have spoken. 🐶🗣️ They're ready to support the Parkinson's community—are you? Register WITH your pup for a Moving Day or start your own Parkinson's Champions fundraiser together. Every step (and every bark) brings us closer to a cure.🐾 Learn more at https://t.co/nCqTftMsUV.

#Parkinsons #PD #dogs

[Parkinson's Foundation @ParkinsonDotOrg]

Biomarkers are substances in the body that can give researchers and doctors information about a person’s health. Researchers are currently in the beginning stages of using biomarkers to help diagnose Parkinson’s disease. 🔬

Alpha-synuclein is the first widely used biomarker to be applied in early clinical research for PD.

Learn more about Parkinson's biomarkers and what they can mean for the PD community: https://t.co/MoxsaiEKvr

[Parkinson's Foundation @ParkinsonDotOrg]

The work to build the first National Plan to End Parkinson's is moving forward.

At yesterday's federal Advisory Council meeting, members heard from the Parkinson's community, received updates on the work happening across federal agencies and heard from organizations — including the Parkinson's Foundation — about priorities for the Plan.

Here are 3 things to know from the meeting and what comes next. ⬇️

1. The Parkinson's community is showing up. The National Institute of Neurological Disorders and Stroke (NINDS) received 400+ responses to its Request for Information on the National Plan.

The Council has also received 187 public comments to date. NINDS plans to share more as it analyzes the RFI responses.

2. The Council heard directly from the Parkinson's community. 15 nonprofit organizations shared their work, perspectives and recommendations for the National Plan, including the Parkinson's Foundation.

3. The next phase of the National Plan is taking shape.

The Council's research and care subcommittees have begun their work, including an organizing framework centered on the patient journey. NINDS is mapping an inventory of federal Parkinson's research, care and services programs to help inform the Council's recommendations.

What's Next?

The next Advisory Council meeting is scheduled for November 9, 2026 and is expected to focus on public-private partnerships and cross-sector collaboration.

We'll continue following the Council's work and making sure the voices and priorities of people with Parkinson's and their families are part of the conversation: https://t.co/Nf6WehkLFf

[Parkinson's Foundation @ParkinsonDotOrg]

Freezing of gait is the temporary, involuntary inability to move in Parkinson's disease. 🚶‍♀️ Freezing episodes can be triggered by delayed medication, multitasking or walking through doorways and may affect movement, speech or other body parts.

Learn how to manage this PD symptom: https://t.co/fHe294Xsb0

[Parkinson's Foundation @ParkinsonDotOrg]

The Advisory Council for the National Plan to End Parkinson’s is meeting NOW!

Parkinson’s Foundation President and CEO John Lehr just addressed the Council, calling for bold action and meaningful progress on the priorities that matter most to the Parkinson’s community.

Get involved by visiting: https://t.co/Nf6WehkLFf

[Parkinson's Foundation @ParkinsonDotOrg]

Today, the federal Advisory Council shaping the first National Plan to End Parkinson’s meets for the second time.

Ahead of the meeting, the Parkinson’s Foundation joined @APDAParkinsons and @MichaelJFoxOrg in outlining six key goals and desired outcomes to help inform the National Plan, including stronger research, better care, prevention, reduced financial burden and greater accountability.

We also submitted our full response to the federal Request for Information, sharing recommendations informed by our programs, experts and the Parkinson’s community.

Read the joint announcement and our full RFI response: https://t.co/mauxBRaUYm

[Parkinson's Foundation @ParkinsonDotOrg]

TODAY: The federal Advisory Council shaping the National Plan to End Parkinson’s is meeting.

Parkinson’s Foundation President and CEO, John Lehr, is bringing the PD community’s priorities to the table. Watch live at 10a.m. ET ➡️ https://t.co/ypIE3fklDs

[Parkinson's Foundation @ParkinsonDotOrg]

When the muscles of the face are stiff or take longer to move, it can be hard to smile, raise your eyebrows or otherwise express your feelings using your face.

This can lead to facial masking, or reduced facial expression. Learn more about this Parkinson's symptom: https://t.co/WkpkcsyRW1

[Parkinson's Foundation @ParkinsonDotOrg]

Since people experience Parkinson’s differently, building a diverse team of health experts allows you to manage your unique PD symptoms — and maximize your quality of life.

Whether you're newly diagnosed or have been living with Parkinson's for a while, getting the right care at the right time can make a difference for you and your family: https://t.co/e8a6BQXMQP

[Parkinson's Foundation @ParkinsonDotOrg]

In this recording, we explore how Parkinson’s affects gait (walking) and balance, common factors that may contribute to falls, and ways to recognize early signs of fall risk.

Experts share practical strategies and safety precautions to improve safety and minimize fall risk to support balance and mobility in everyday life: https://t.co/eODivubtEf

[Parkinson's Foundation @ParkinsonDotOrg]

Sometimes, the most meaningful part of the race is who’s waiting for you at the finish. 🫶 49 runners. More than $110,000 raised. One powerful reminder that no one runs alone.🏃‍♀️Thank you to our Parkinson's Champions for turning every mile into momentum for Parkinson’s research, education and support. 🩵 Learn more at https://t.co/zh0ZkMspzd. #Run #FalmouthRoadRace #Parkinsons

[Parkinson's Foundation @ParkinsonDotOrg]

🏥 If you or someone close to you has Parkinson's and experienced a difficult hospital stay, there are resources available for documenting what happened.

This form can help you reflect on and record the details: https://t.co/iMmlqDBSYL