Pierre Naoum

[Pierre Naoum @PCCC90]

https://t.co/9c49X6G5cQ

[Pierre Naoum @PCCC90]

https://t.co/sSUoAImFDe

[Pierre Naoum @PCCC90]

@SammyTimlin I can appreciate your situation, as my daughter has very severe ME/CFS in the highest level, she is in the hospital since over than 10 months, and she became worsen than the day she admitted, because they don’t know how to treated her so they damaged her totally😢

[Matt @MGTmecfs]

What is the future of my life with ME/CFS? I can't live with this disease for another 5 years, I just can't. This disease is totally incompatible with life, it's just impossible. Most people are in control of their destiny, but for ME/CFS patients, we can't control anything.

[Steve Topple @MrTopple]

To clarify for those who can't read the article:

NICE guidelines on severe ME are not worth the paper they're written on. I say that from having first hand experience of both Carla & Millie's situations

Please STOP thinking they're a silver bullet in this #MEcfs #SaveCarlasLife

[Pierre Naoum @PCCC90]

@MrTopple Please we need your fully support to help Carla as her health is deteriorating dramatically 😢

[Steve Topple @MrTopple]

URGENT #SaveCarlasLife:

West Middlesex Hospital has now sectioned her under the Mental Health Act #MEcfs #ThereForME It is being challenged.

Please read the below, watch the videos from Pierre in the article, and consider what I've said. Share widely:
https://t.co/j89bcACilU

[Pierre Naoum @PCCC90]

@dostrachan @TeamKarenGordon Thank you, is she going to contact us , and how she’ll support us! What she can do exact ??

[Doreen Strachan @dostrachan]

I emailed Natasha Devon about Carla Naoum and Karen Gordon after her radio show. I received this reply. It sounds promising #SevereME #pwME
#SaveCarlasLife @TeamKarenGordon

[Pierre Naoum @PCCC90]

@NBoydGibbins @carlywelton @TheChronicColab @MrTopple Hi, excuse me, with whom you contacted! thanks

[Pierre Naoum @PCCC90]

@TheChronicColab @TheCanaryUK sorry to hear you are closing your account, you were the best and honest couple in supporting the others, definitely will support you our friends Steve & Nicola 🥰

[Pierre Naoum @PCCC90]

@tenacious_mumma @JennyWi04810918 Definitely Tina, we are so grateful to this most lovely supportive Doctor, who work with honest feeling and loyal to the patient and the most important he has real sensitive alive conscience

[Swiftsandswallows @Swiftsswallows]

My daughter Isla suffered so much, ill with ME from age 6, told to push through the pain to get better, years of deterioration and disbelief. Involvement of Social Services because of concerns of Fabricated Illness and later her MCAS symptoms put down to anxiety. She died in May

[Pierre Naoum @PCCC90]

@Swiftsswallows Sorry for the your big lose🙏😥, our prayers with you🙏

[Pierre Naoum @PCCC90]

@Solace92109577 @dostrachan Yes fir all the medical staff and fir every single person

[Pierre Naoum @PCCC90]

@Solace92109577 @dostrachan Thanks for your comments, all the medical staff aware of Carla’s health situation, and we provide with all the information about the ME, even Dr Weir the professor specialist in ME, and main member in NICE Guide Line, he provide them with all the information and the instructions.

[Pierre Naoum @PCCC90]

@Solace92109577 @dostrachan Unfortunately, they ignored everything, they insisted to treat her according to their own way and not the right medical instructions, they don’t care because they are not humble to accept the others point of view… wait for another video I’m updating about The whole situation ,,,

[Pierre Naoum @PCCC90]

Help Save Toffee’s Life https://t.co/ddVFtPfY63

[Pierre Naoum @PCCC90]

@TheChronicColab Please support Carla, they are killing in slow motion! Please hurry up before the tike pass, she need your help .

[@TheChronicCollaboration @TheChronicColab]

We have an update on #SaveCarlasLife from Pierre, her father.

Photos from the incident in question are in this thread. He is making a formal complaint to the hospital #MEcfs