PDA ACTION

PDA Action is headed by four parents of children diagnosed with autism and who have a profile of Pathological Demand Avoidance.

[BIS-net @cedabisnet]

Facebook Live Q&A this evening. 8pm - 9pm with Harry Thompson. Author of the PDA Paradox - the highs and lows of my life on a little known part of the Autism Spectrum. @Bisnetpage https://t.co/Y026TghyRv #PDA
#Autism #AutismAwareness #ActuallyAutistic @PDASociety @PDAAction

[PDA ACTION @PDAAction]

@princesspruk @paedsnursebeth @JeremyH09406697 There are also clear overlaps with Bipolar and ADHD which they didn't assess for in my daughters care despite the fact that she had a working diagnosis of bipolar disorder when she was admitted as an inpatient. They made her worse than ever!!

[Prudence @princesspruk]

@paedsnursebeth @JeremyH09406697 Males tend to be shoehorned into antisocial or narcisisstic personality disorder instead :( the ratio is 3:1, female to male diagnosis. Nice to see the number of studies linking undiagnosed female autism to bpd really are increasing over the years though https://t.co/rZ9h0ULADF

[Keir Harding @Keirwales]

@appyjumpindaze Thanks for saying. I saw too many young girls get sent to awful places knowing that in another part of the country it wouldn't happen. I just couldn't watch it anymore.

[MD or Bust - The Equitable Autist-Knowledge Magpie @appyjumpindaze]

@Keirwales This is horrible! So many Autists are misdiagnosed with BPD and I could totally see how an Autistic person locked in a sensory overwhelming environment would be stimming/self harming more. Thank you for helping these ppl!

[Keir Harding @Keirwales]

@stephstwogirls I wouldn't say many diagnosed with BPD were correctly diagnosed - its such a messy diagnosis that all sorts of issues that challenge clinicians are slipped into that diagnosos.

[Steph’s Two Girls @stephstwogirls]

@Keirwales This is really interesting. I know it’s probably not huge numbers, but I do wonder how many might be diagnosed with autism, specifically PDA, if those with experience of this were assessing...

[Keir Harding @Keirwales]

Some thoughts on tribunals for those diagnosed with BPD.

"the young women (and it is always young women) are not aware of how far their treatment has moved from what NICE would recommend"

https://t.co/OjqQaRQ0et

[Stop Somerset Cuts @StopSomersetCut]

Somerset parents this is your chance to have your say after the OFSTED/CQC SEND inspection report.
Sarah Baker and I did the survey and will be writing a briefing report, to support a campaign for change.
https://t.co/tAfeEY8SvX
You can join us at: https://t.co/YgCFvykZn2

[Andrea Attree321 @andrea_attree]

Thank U😊 I will Tweet progress. Today Myself & the community team have chosen a Care provider. The @CareQualityComm R looking at what can be done 2 support Dannielle while We form a team of specially trained Carers 2 look after D in the ATU & prep her 4 transition 2 her home.

[Stop Somerset Cuts @StopSomersetCut]

If a child is living in #Somerset with #SEND they will end up under one of these pathways. Children’s services is the dipleation of respite and services. CWD are the disabled social care team. Many are under all the other services! #SomersetSENDharm

[Special Needs Jungle @SpcialNdsJungle]

There is a petition on the parliamentary petitions site to extend urgently the statutory age limit for SEND provision in the wake of COVID-19. As young people with disability are losing almost of a year of education, EHCP should be extended to age 26. https://t.co/L76gv8fbbV

[Stop Somerset Cuts @StopSomersetCut]

You can join Somerset Parent Alliance to see tonight's live stream.

https://t.co/SrXQXAIBCw

https://t.co/5fZ6ecbCTV

[Stop Somerset Cuts @StopSomersetCut]

@localgoveditors Somerset young carers key workers dept were dismissed with out noticed. We really need them back, too many are now entering all categories of “troubled families”. 😢

[Stop Somerset Cuts @StopSomersetCut]

@SomersetCouncil other counties have allocated key workers for young carers #accountabilityNow

[Stop Somerset Cuts @StopSomersetCut]

@HoCpetitions

[Stop Somerset Cuts @StopSomersetCut]

@ofsted and @CQCpressoffice #SEND inspection on @SomersetCouncil and @somersetccg April 2020
https://t.co/jJpwyvAS7g

[Stop Somerset Cuts @StopSomersetCut]

@BorisJohnson are the petitions team on #StayAlert? We are holding back with families outrage #SomersetSENDharm. #AccountabilityNow would be great to authorise our petition please. Thousands of Somerset suffering children needs to end please. Thank you

[Charlie Beswick @ouralteredlife]

Look how handsome my boy is! He dressed himself today and I think he did a fabulous job 🥰🙌🏻

[Stop Somerset Cuts @StopSomersetCut]

Please share and share!
- SOMERSET parent/carers -
PLEASE COMPLETE THIS annoymous survey regarding your SEND experiences in Somerset:
https://t.co/tAfeEY8SvX

Follow:
#UKfailsChildren
#SomersetSENDharm
#AccountabilityNow