Imagine a world where smell can be bought and controlled by the richest person. And the animals who’ve naturally had a smell for millennia, who don’t have money or even play that game, no longer have a right to a part of themselves because of broken economic and political systems
When I first got disability benefits, I believed what I heard a lot of disabled folks say: it’s nearly impossible to work when receiving SSI/SSDI, especially self employment.
This is why I want to do a series of sharing what I’ve learned about self employment while disabled so others can have an easier time than I did. Please share your questions and things you’ve heard about working while disabled in the comments!
All of the extra systems and rules I’ve had to learn and understand have taken a lot of spoons– spoons I could’ve used to work if I wasn’t disabled in a way that I need really flexible employment.
I still get anxiety attacks fearing that I didn’t jump through the right hoop in the right way and it’ll cost me my housing, healthcare, and food access.
It took me several YEARS of research and meeting with vocational rehab and benefits counselors before I felt safe enough to gamble with even trying self employment.
Even many Social Security employees don’t understand the rules and have given me contradictory information. It feels easy to make a mistake and have life saving benefits taken away.
The rules for working for an employer are easier than being self-employed, but it’s hard to find an employer who is able to meet my access needs. Like many disabled folks, I made my own job just so I could have one.
In addition to tight personal budgeting, business budgeting has to be equally fine tuned. Disabled folks aren’t allowed to have more than $2,000 in the bank and a separate business bank account still counts toward the $2,000 limit.
In the five years I’ve received disability benefits, my rent has gone from $400 to $650 (+$250), but my monthly benefits have only gone from $773 to $861 (+$88). It’s also nearly impossible not to work.
There is some truth to that–I receive a combination of both SSI and SSDI and each one has really confusing and sometimes conflicting rules, not to mention confusingly similar names.