PKD Foundation

Dedicated to finding treatments and a cure for polycystic kidney disease (PKD).

[PKD Foundation @PKDFoundation]

➡️ While we greatly appreciate donations made before or after September 9–10, only gifts made during this period qualify for the sticker.

[PKD Foundation @PKDFoundation]

Less than 24 hours remain to earn your limited-edition PKD Foundation sticker!

Make a donation of $25 (or more) to the Walk for PKD by 11:59 p.m. (CT) tonight, September 10 and we’ll send you this special sticker as a thank-you!

https://t.co/psglTNqGEF

[PKD Foundation @PKDFoundation]

➡️ The donor receives the sticker, whether you donate to your own Walk fundraising page, your team, or another Walk participant’s fundraising page.

[PKD Foundation @PKDFoundation]

➡️ While we greatly appreciate donations made before or after September 9–10, only gifts made during this period qualify for the sticker.

[PKD Foundation @PKDFoundation]

For two days only, you have the chance to earn a limited-edition PKD Foundation sticker while helping make a difference for the PKD community!

Make a donation of $25 (or more) to the Walk for PKD and we’ll send you this special sticker as a thank-you!

https://t.co/psglTNqGEF

[PKD Foundation @PKDFoundation]

Here are the rules:

➡️ Gifts must be made to the Walk for PKD, general donations to the PKD Foundation will not qualify.

➡️ The donor receives the sticker, whether you donate to your own Walk fundraising page, your team, or another Walk participant’s fundraising page.

[PKD Foundation @PKDFoundation]

The ADPKD Registry is more than a database. It’s a growing, patient-powered engine for discovery.

Register Today ➡️ https://t.co/C5IOhL0YLg

[PKD Foundation @PKDFoundation]

A huge thank you to our PKD Foundation volunteers for helping communities across the country officially recognize September 4 as PKD Awareness Day! Every proclamation helps make PKD more visible and builds a stronger network of support for everyone affected by PKD.

[PKD Foundation @PKDFoundation]

A PKD diagnosis can bring a lot of questions and uncertainty. But it doesn’t mean you have to navigate what comes next alone.

There are people who understand what you’re going through, and we’re here to help you find them.

#PKDAwarenessDay

[PKD Foundation @PKDFoundation]

When research data can work together, every study can contribute to a larger body of knowledge, helping accelerate discoveries and the development of new treatments.

This is the kind of research infrastructure that can help turn today’s investments into tomorrow’s breakthroughs.

[PKD Foundation @PKDFoundation]

We're helping build the foundation for the next generation of PKD breakthroughs by expanding our collaboration with @CPathInstitute and @CDISC to develop Version 2.0 of the Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD).

https://t.co/mzqRquRcys

[PKD Foundation @PKDFoundation]

By creating a common framework for how PKD research data is collected and organized, the updated standard will make it easier for researchers around the world to share, compare, and reuse data. It will also expand to include ARPKD for the first time.

[PKD Foundation @PKDFoundation]

Take two minutes to send a pre-drafted message to your Representative and help us get this bill turned into law. 🇺🇸 https://t.co/WuocFlHK8i

[PKD Foundation @PKDFoundation]

Our Advocacy Champions Network needs your help passing the PKD Cures Act!

The PKD Cures Act (H.R. 9169) is focused exclusively on advancing research and innovation for polycystic kidney disease.

This bipartisan legislation would...

[PKD Foundation @PKDFoundation]

➡️ Expand research on PKD at the National Institutes of Health (NIH).

➡️ Strengthen collaboration across the PKD research community.

➡️ Create a national roadmap to accelerate the development of new treatments.

[PKD Foundation @PKDFoundation]

The more we understand PKD, the more opportunities we have to change what the future looks like for everyone affected.

[PKD Foundation @PKDFoundation]

Heedok Han, M.D., answers what he wishes more people understood about PKD.

On PKD Awareness Day, we’re encouraging conversations that could lead to earlier diagnosis, and making sure PKD gets the attention it deserves.

[World Kidney Day @worldkidneyday]

Today is #PKDAwarenessDay!
Did you know that PKD is one of the most common genetic disorders?

ADPKD affects around 1 in 400 to 1,000 people worldwide, while ARPKD affects around 1 in 20,000 children.

#WorldKidneyDay #OurKidneysOurPlanet #KidneyHealthForAll
@PKDFoundation

[PKD Foundation @PKDFoundation]

Help us tell the world about PKD on PKD Awareness Day! Share these facts with your friends and family and look for other ways to get involved at https://t.co/eSnhNnGs5L.