PKDF St. Louis Region

#STL chapter of @PKDFoundation | Dedicated to finding treatments and a cure for polycystic kidney disease | Local resource | Monthly mtgs | Join Us #EndPKD

[PKDF St. Louis Region @PkdStl]

Join the Kidney Fight (Virtual) Trivia Night on Sat, March 29, 2025, at 7 p.m. (Zoom opens at 6:30 p.m.). Hosted by PKD Foundation - St. Louis Community. Cost $180 for a team/table 8 people. For details, visit: https://t.co/PQHFyqRydr

[PKDF St. Louis Region @PkdStl]

Congratulations!!! Jean Sommer, Connect and Walk Ambassador for PKD Foundation - St. Louis, received a living kidney transplant on November 15, 2023, from her friend, Valerie. Both are doing very well!!!

[PKDF St. Louis Region @PkdStl]

SAVE THE DATE: Kidney Fight (Virtual) Trivia Night
Sat, Mar 9, 2024 / 7-9:30 PM / Zoom opens at 6:30 PM. Cost $160 per table of 8 people, $9 Mulligans per team with 1 played per round, $10 Bonus Round per team played during intermission. Payment & Registration opens mid Feb.

[PKDF St. Louis Region @PkdStl]

STL Connect ambassador shares details about the 'Walk for PKD' event https://t.co/tF4nRoqlGk via @YouTube Tim Ezell, FOX2 News interviews Jean Sommer, PKD Foundation STL Connect Ambassador.

[PKDF St. Louis Region @PkdStl]

Join us NOV 6 at 7 PM at our PKD meeting (virtual) with speakers Dr. Calliskan, Dr. Fleetwood, Dr. Varma, & Dr. Lentine, form SSM SLUH ADPKD Center of Excellence. These experts will discuss transplant options, from pre-transplant through post-transplant. https://t.co/8yfU6WHGdR

[PKDF St. Louis Region @PkdStl]

Dogs are welcomed at the 2023 St. Louis Walk for PKD on Sunday, October 8, from 9:30 AM to 12:30 PM. To register, visit: https://t.co/SvLtQnk0Pb.

We do have free 2018 and 2019 past Walk t-shirts located at the pavilion.

[PKDF St. Louis Region @PkdStl]

The 2023 St. Louis Walk for PKD is Sunday October 8 from 9:30 AM-12 PM at Tower Grove Park Sons of Rest Pavilion, St. Louis, MO. To register/donate visit: https://t.co/PsaV9LOEKq and find St. Louis.👟100% raised goes to PKD research.

[PKDF St. Louis Region @PkdStl]

Kidney Fight (Virtual) Trivia Night Fri, April 14, 7-9:30 pm. Susan Chapman said, "I & my group had an absolute blast last year! The night was filled with laughter, good food, & funny stories. We are all looking forward to raising funds for PKD research!"https://t.co/UvS9Mm3AYD

[PKDF St. Louis Region @PkdStl]

Kidney Fight (Virtual) Trivia Night is looking for trivia teams. Please read the post below or go directly to https://t.co/UvS9Mm3AYD for details.

From my neighborhood: https://t.co/H45vPpvy46

[PKDF St. Louis Region @PkdStl]

Join PkdStl for Kidney Fight Trivia Night-Virtual, Fri, Apr 14, 2023, at 7pm. Cost $160 for table of 8 or $20 for individual ticket. We will group individual ticket holders on a team. $9 Mulligans (1 played per round). $10 bonus round per team. Details: https://t.co/UvS9Mm3AYD

[PKDF St. Louis Region @PkdStl]

Join St. Louis PKD virtually on Apr 10, 2023, at 7 pm for SSM Saint Louis University Hospital Center of Excellence for Polycystic Kidney Disease Introduction to hear from 3 Nephrologists, Social Worker, 2 Transplant Surgeons, Dietitian. To register, visit https://t.co/5myegNSPEz

[PKDF St. Louis Region @PkdStl]

Want to try another PKD-friendly recipe? Try this blackberry cobbler for the holidays! It is low in sodium, low in protein and reduces acid. For more recipes, check out out the PKD Cooking Well cookbook. https://t.co/qKlnVsTUw8 #endPKD #PKDrecipes #PKDfriendly

[PKD Foundation @PKDFoundation]

As children with PKD grow and become more independent, there are several ways parents can help their teens manage PKD responsibly by planning ahead. Nicholas S. Herrera, M.D. shares his tips on where to start.

https://t.co/jTurfwKOzd

[PKD Foundation @PKDFoundation]

The progression of ADPKD looks different for everyone, even people in the same family, so it’s important to understand if you are at risk of your ADPKD progressing at a faster rate. Learn more with this new resource ⬇️

https://t.co/the7SytjZg

[PKDF St. Louis Region @PkdStl]

Your information and experience is powerful. You can help drive the next medical breakthrough by joining the ADPKD registry. By registering, you can help advance research, tell us about your journey and patient preferences. #endPKD #fightPKD https://t.co/QejlB9ai6V

[PKDF St. Louis Region @PkdStl]

Dr. Feng Qian from the Maryland School of Medicine is our November Researcher Spotlight! "The motivation has been the great medical significance and fascinating biology." Qian said. Read more about his research, findings and involvement in #PKD here: https://t.co/o0Oam3802g

[PKD Foundation @PKDFoundation]

We've talked a lot about funding research during the #WalkforPKD and are thrilled to share a recent example of that funding. Former PKD Foundation grantee Dr. Ming Ma contributed to this new Yale study about reversing ADPKD in preclinical mice models 👉 https://t.co/MceZJ1gkAb

[PKDF St. Louis Region @PkdStl]

More than 90% of rare diseases have no FDA approved-treatment. Prior to the tax credit, only 30 FDA-approved drugs were available. Today, over 650 approved orphan drugs are available, including tolvaptan for ADPKD. Read more: https://t.co/zNpbt4aS7G #EndPKD

[PKD Foundation @PKDFoundation]

When online shopping, don’t forget to shop through AmazonSmile and select the PKD Foundation as your charity. AmazonSmile will donate a portion of your purchases so you can enjoy great deals and give back! ➡️ https://t.co/OIziVq6bOL

[PKDF St. Louis Region @PkdStl]

A polycystic kidney can weigh as much as 30 pounds, about 48 times larger than normal. The growth of cysts on polycystic kidneys can make life extremely difficult for those with #PKD. This is around the same weight as a medium-sized dog or 4 gallons of water! #endPKD #PKDfacts