PMLDchat

Chat focused on making a positive difference to the lives of people with PMLD #PMLDchat (see header photo for info) Hosts: @jo3grace @michaelfullert3 & guests

[PMLDchat @PMLDchat]

#PMLDchat is now being run from @PMLDlink account search our hashtag to find out what we are talking about at the moment and join in!

[PMLD Link @PMLDlink]

@lynnewalsall @WeLDnurses It is wonderful to see universities embedding the new Core and Essential Service Standards for Supporting People with PMLD into their curriculums! #WeLDNs #PMLDchat we salute you! Download for free from https://t.co/950ClmKwtn

[PMLDchat @PMLDchat]

Desperate need throughout the UK and Ireland to push these standards in every way possible, including with Regulators, Uni's etc
#PMLDchat #welnds - please support!

[PMLDchat @PMLDchat]

average age of death for #PMLD in #LeDeR report was 48 yrs I think, or was it 41 - frighteningly low and unacceptable even with health issues #pmldchat #welnds

[PMLDchat @PMLDchat]

Most certainly, support often requires specialist support but not always a nursing service - which is sometimes the case, resources poorly allocated for these people - no interest or understanding from commissioners #pmldchat #welnds https://t.co/Qv5TNelaEj

[WeLDNurses 💙 @WeLDnurses]

@MichaelFullert3 should this be a specialist CLDN role? Like behavioural support?
#weldns #pmldchat

[PMLDchat @PMLDchat]

That people with #pmld need to eb valued as individuals, and while health and posture needs are important, we need to understand the person - that takes time and proper rapport building and listening #PMLDchat #welnds https://t.co/IIjMjP7sKh

[PMLD Link @PMLDlink]

#WeLDNs #PMLDchat What one thing would you want people to know about the care of individuals with PMLD?

[PMLDchat @PMLDchat]

#PMLD Standards aimed at health/social care/education professionals - providers and commissioners , but needs ld nurses to bang on to share and embed #PMLDchat #WeLDns

[PMLDchat @PMLDchat]

Yes, and often battle with medical professionals, who think the person cannot cope with further interventions - and give up, need good advocacy from people who know what potential the person has #PMLDchat #weldns https://t.co/N6BQDNVhMV

[Joanna Grace PhD @jo3grace]

#pmldchat #weldns people in medical settings often only meet people with PMLD when they are in a medical crisis. Do you get to see them when they are at their best?

[PMLD Link @PMLDlink]

#Weldns #PMLDchat amongst the editorial team of PMLD link we have a great breadth of experience of working with people with PMLD, in education, in healthcare, and of course many of us also have family members with PMLD

[PMLD Link @PMLDlink]

Did an article from our current issue stand out to you? #pmldchat
What would you like to see more of?

[PMLDchat @PMLDchat]

@PMLDlink @SensoryDispense @SensorySp @SENDFamilyVoice @SensoryTrust @teachPMLD @bitternedave tell us what happened to you!

[PMLD Link @PMLDlink]

We are taking over the chat from @PMLDchat we want to know your best and worst sensory experiences of the season! Play along and include #PMLDchat in all your replies (search that hashtag to see what happened to other people!)

[Paul Walbyoff 🏴󠁧󠁢󠁷󠁬󠁳󠁿 🌻 🇬🇧 🇺🇦 @P_JWally]

After listening to @SazBrisdion on @theJeremyVine today you may want to sign this petition?
Scroll to 1hr 6mins into Jeremy's show to find out more

Change Building Regulations to Make Changing Places Toilets Compulsory - Sign the Petition! https://t.co/ci6zh9mnvT via @UKChange

[Michael Fullerton @MichaelFullert3]

Congratulations @rayjjames @Crouchendtiger7 @HilaryGarratt on your Honours List Awards. Please use your influence in 2018 to promote new #PMLD Core & Essential Service Standards, for a largely overlooked people in social/health care and inclusion - see @PMLDlink

[BornattheRighttime @BornatRightTime]

A great segment @theJeremyVine. As a society we talk the talk of accessibility, inclusion and valuing ALL people. It's time to walk the walk. Businesses and government must put their money where their mouths are and provide accessible toilets. #LooAdvent https://t.co/E2VMIYmRIX

[Simple Stuff Works @SimpleStuffWrks]

Did you know about the Carousel Project #carouselproject https://t.co/OLUZ8I7bRo

[AccessibleDerbyshire @AccessibleDS]

@BBCRadio2 now Jeremy Vine @SazBrisdion talking @CP_Consortium @will_clark84 @claire80lomas @closomatuk @AvesoCP @iHUSChangingPla @MobilooUK @PressalitCare @AstorBannerman @Kingkraft26D @MigLoo4U @waitrose @Tesco @inclusivehome @Morrisons @johnlewisretail

[Rachel George 〓〓 @ordinaryhopes]

Feeling very emotional listening to the stories on @theJeremyVine show on @BBCRadio2 . May this be the final year where I am pleading for my son to be accepted in the world. All he needs is usable toilet facilities.

[PMLDchat @PMLDchat]

@SazBrisdion #LooAdvent @BBCRadio2 Need for decision makers in shopping centres, restaurants etc to take action, ensure everyone can enjoy their community and everything life offers @theJeremyVine

[PMLDchat @PMLDchat]

On radio 2 right now! https://t.co/JtYrsFBtEv