Raiden Science Foundation

Give kids suffering from UBA5 disease a chance to live a healthy life.

[Raiden Science Foundation @RaidenScience]

🎧 Tune in to our podcast episode sharing Raiden's journey. Produced by @UMassChan, Real Diseases, Real Stories highlights families changing the world of rare diseases.

Listen to our episode & more here: https://t.co/lvciJUNPPE

#RareDiseases #UBA5 #RareDiseasesRealStories

[Raiden Science Foundation @RaidenScience]

Thank you @KGWNews for sharing our story.

https://t.co/v8PVzJZ8Io

[St. Jude Research @StJudeResearch]

Today is Rare Disease Day, a reminder that “rare” can still have a big impact. At St. Jude, advancing care for rare and ultra-rare pediatric conditions, including neurological disease, is core to our mission.

[UMass Chan Medical School @UMassChan]

Today is #RareDiseaseDay. Families of children with rare diseases are featured on @UMassChan’s six-episode Rare Diseases, Real Stories podcast. Listen: https://t.co/gvrJoOeiye

#RareDiseasesRealStories #RareDiseases #podcast @RareDiseaseDay @RiaanResearch @RaidenScience @UMass 🎧

[Raiden Science Foundation @RaidenScience]

Today is Rare Disease Day 🦓

Thank you to @OHSUDoernbecher for inviting us to share Raiden’s story and the work we’re driving through the Raiden Science Foundation for UBA5 disorder as part of the 2026 Rare Disease Highlights Day yesterday.

#RareDiseaseDay

[St. Jude Research @StJudeResearch]

Researchers at St. Jude are mapping cell fate decisions, motor function wiring and disease-linked gene regulation to better understand developing neural systems and how neurologic diseases disrupt those processes. https://t.co/JbPX9pqtH4

[Raiden Science Foundation @RaidenScience]

Happy 6th Birthday to our little inspiration! 🎉🎂

If you’d like to help make his day extra special, please take a moment to sign his birthday card. He’ll love seeing the messages and and we’ll read every single one to him.

https://t.co/RFK316V8K7

[Raiden Science Foundation @RaidenScience]

@Fight4Rare Part of our nomination video. Check it out. Thank you everyone.

[Raiden Science Foundation @RaidenScience]

@UMassChan ❤️

[UMass Chan Medical School @UMassChan]

UMass Chan and the Raiden Science Foundation have partnered on a technology license for a gene therapy product targeting the ultra-rare disease UBA5: https://t.co/MAYQkLdGO7

The foundation is named after 5-year-old Raiden Pham, diagnosed in 2021. #RareDisease @RaidenScience

[Raiden Science Foundation @RaidenScience]

🚨Got 2 minutes? Vote for us in this year's Project For Awesome. Voting is open until 2/18. Community votes decide which charities receive the P4A grant.

👉https://t.co/L49lzfqsmE

#RareDisease #UBA5 #Awareness #Research #P4A2026 #community

[Raiden Science Foundation @RaidenScience]

This is why we fight. For kids like Marko and his family.

Awareness brings support.
Support drives research.
Research brings hope.

[Raiden Science Foundation @RaidenScience]

Grateful beyond words. Because of our community, $135K raised in December to move UBA5 gene therapy one step closer to reality. Thank you. 💙

[Raiden Science Foundation @RaidenScience]

https://t.co/8XrIgQXmsc

[Raiden Science Foundation @RaidenScience]

🎄 Looking to donate crypto this Christmas?
Consider supporting us as we work to raise $2M to fund UBA5 gene therapy—giving hope today and changing lives tomorrow.

❤️link here: https://t.co/jHdHbOzY0k

#cryptoforgood #raredisease #genetherapy @givinblockdonor

[Fight4Rare @Fight4Rare]

Congrats again to @TongNeverSleeps and the Metro City Monsters!

@FightRiseFGC - Thank you so much for the support and generosity from the community. $7K raised for rare disease research - @RaidenScience

❤️ @ImageOmega @HawtSoupMedia @ultradavid

[Fight4Rare @Fight4Rare]

Live now! Tune in: https://t.co/rk8BSUpNXz

Shoutout to @ultradavid for the great intro about the @RaidenScience 💙

@FightRiseFGC @TongNeverSleeps

[FightRise @FightRiseFGC]

Wreck the Halls 3 is this Sat night @ 7pmEST!

A unique East vs West "Cross-Up Basebrawl" Charity Stream benefiting @RaidenScience.

Featuring special guest managers @ultradavid & @TongNeverSleeps.

Donate to Win Prizes: https://t.co/L1lTorZGTi
Watch LIVE: https://t.co/Mhp1ftwhYa

[FightRise @FightRiseFGC]

Grateful to @QanbaUSA for sponsoring our Charity Stream benefitting @RaidenScience's fight against rare genetic disorders!

Check out this sick Arcade Cab they donated as one of our fundraiser incentives.

Enter for your chance to win it here: https://t.co/oJSo2o1mdn

[Raiden Science Foundation @RaidenScience]

The power of a determined parent and the power of gene therapy. Incredible story. ❤️

https://t.co/dVtC4RAXOb

[Raiden Science Foundation @RaidenScience]

Thank you to everyone who supported this past #GivingTuesday.

Your generosity helps us move closer to manufacturing the #UBA5 gene therapy — the next phase of our R&D efforts.

Together, we are turning hope into reality.