Roslyn Rawlins

CEO & Co-Founder of @Bleuberi_App for epilepsy 💜 Epilepsy advocate and mom of an epilepsy survivor who is 9 yrs seizure free. 💜Here to help others!

[Roslyn Rawlins @RawlinsRoslyn]

@AngelAlva2020 @BrainAblaze https://t.co/SeEzMQCRMj

[CURE Epilepsy @CureEpilepsy]

While over 30% of people with #epilepsy also experience #autism-spectrum disorders, the cause of these conditions may not always be linked, according to CURE grantee Dr. Daniel Barth. Check out his recent findings: https://t.co/iLlmuFZYqF

[Roslyn Rawlins @RawlinsRoslyn]

Honored to be part of this inaugural event for @LaunchBio Inc.’s, new series LET'S TALK ABOUT: which explores #diversity, #equity, and #inclusion in the #lifescience industry. A SEAT AT THE TABLE: Learning from Black #Entrepreneurs, #Investors, and Executives. #epilepsy

[Roslyn Rawlins @RawlinsRoslyn]

Today is the 30th Anniversary of the Americans with Disabilities Act. I proudly support #disability #inclusion and raise awareness for #epilepsy to make the world more accessible for the epilepsy community. Learn more about the ADA here: https://t.co/KwGuK1EzRo #ada30

[Roslyn Rawlins @RawlinsRoslyn]

@TheNotoriousEEG The change from 1 in 100, (the statistic given in the prior years before 2011) to 1 in 26 was exponentially dramatic and rather confusing. Epilepsy facts are not uniform. Globally, one organization will say 50 million are living with epilepsy and another will say 65 million.

[Roslyn Rawlins @RawlinsRoslyn]

In honor of legacies and lives of the Honorable Rep. John Lewis and CT Vivian. “Good trouble” for life, liberty and equality. Much thanks and gratitude for leading the way. May you both rest in peaceful power and love. Now is not the time to be neutral. #JohnLewis #CTVivian #blm

[Roslyn Rawlins @RawlinsRoslyn]

@TheNotoriousEEG Neglect is a loaded word to any caregiver especially those in diverse, underserved, and marginalized communities. Building a culture of trust should be #1

[Roslyn Rawlins @RawlinsRoslyn]

@TheNotoriousEEG Refusing treatment may not always mean refusing help. Epilepsy lacks healthcare promotion that improves social health determinants and addresses disparities. We need health services that train doctors & patients, education, and improve access for culturally diverse communities.

[Roslyn Rawlins @RawlinsRoslyn]

@TheNotoriousEEG Lastly, although the answer are both complex and individual to both patient and treatment outcomes including finding solutions that work and provide the best quality of life. I do wonder about all those people who went undiagnosed for years who are neurotypical lived normal lives

[Roslyn Rawlins @RawlinsRoslyn]

@TheNotoriousEEG Seizures are not benign for safety, learning and long term effects. To not treat has many factors they that should know for an informed decision. https://t.co/omjlaR5eWF

[Tracy Dixon-Salazar @TracyDixonSalaz]

Modern day science has been built on the backs, and brains, of patients. Today, patients want a role in finding cures. We don’t do it for credit. We do it to save time and money. #PatientLedResearch #WeWantASay #NothingAboutUsWithoutUs
https://t.co/RXxCLoAAtw

[Roslyn Rawlins @RawlinsRoslyn]

Be healthy. Be smart. Be acknowledged & heard. Be respected. You are of value. You are worthy. Be the women you were destined to be. Be happy and be safe. You’re doing amazing. A better tomorrow is on the horizon. You got this.#blackchildrenmatter #BlackWomenMatter, CVD-19matters

[Roslyn Rawlins @RawlinsRoslyn]

Remember girls you are so strong and are true warriors. Keep fighting the good fight and continue to be brave. You have your voices and the voices of allies who get it. You are no longer alone. They’re starting to see now and can begin the work towards helping & healing with you.

[Roslyn Rawlins @RawlinsRoslyn]

@epilepsy_parent A wonderful milestone to celebrate for your son and family. Any seizure free day is a victory worth celebrating. 👏🧠 Keep it going! 🙌

[Roslyn Rawlins @RawlinsRoslyn]

“The relationship between the imagined and the real is more complicated than people imagine” (Siri Hustvedt)
This self portrait by my daughter Sydney, to me, is symbolic of how torn people are in these uncertain times. Your thoughts? *Art credit: Sydney S. drawn pre-#covid19

[Roslyn Rawlins @RawlinsRoslyn]

@chronically_ang Without knowing the context of who, what, where, and how these comments were made. Patient education starts with who officially makes the epilepsy diagnosis, what they know and how well they inform patients about the condition. Stigma may follow with fear & misinformation. 😢

[Roslyn Rawlins @RawlinsRoslyn]

@alisonkukla Caregivers love telemedicine too. So many of the family caregivers I help support benefit from the having doctors come to them. Especially those in rural communities that would have to drive hours for medical care. #Epilepsy is very demanding of caregivers. They are overwhelmed.

[Roslyn Rawlins @RawlinsRoslyn]

Honoring the love, loss and life of my parents. April marks their 70th Wedding Anniversary, the 39th year of my mother’s passing, and a #quarantined dad, eager as any person could be to make it to his next birthday. My #centenarian dad will be 102yo this fall. #love #StayHome

[Roslyn Rawlins @RawlinsRoslyn]

4/4 We send our prayers to you and your family and vow to honor Charlotte’s legacy by keeping her spirit and mission to help others alive. May sweet Charlotte Rest in Peace and be seizure free for eternity. #charlottefigi

[Roslyn Rawlins @RawlinsRoslyn]

Thank you Charlotte and thank you @paigefigi for sharing your precious daughter with the world. Your voice has been the voice for countless moms (and dads) who each day desperately seek answers and solutions to beat epilepsy and life threatening seizures.1/4

[Paige @paigefigi]

The Cannabis Industry Pays Tribute To Charlotte Figi, A Hero Of The CBD Movement https://t.co/J1os2BjoEH

[Roslyn Rawlins @RawlinsRoslyn]

3/4 Thank you for pushing for research and access to a beneficial treatment for epilepsy and other medical conditions. And thank you for inspiring epilepsy families to speak up and fight for their rights on behalf of their healthcare needs. You changed the face of epilepsy.