Margaret Rumney

Mother of 32 year old daughter who has severe M.E, she has been ill since the age of 11 & is now mostly housebound. Aiming to raise awareness for M.E

[Adam @ABrokenBattery]

Margret Williams has written to Natasha Devon responding to Simon Wessely's claim that "he's never suggested that ME or Chronic Fatigue Syndrome are non diseases"

[Margaret Rumney @RedRubyGem]

https://t.co/pnjOSQUyJt

[Adam @ABrokenBattery]

Day 3 the Telegraph (Full article)

NHS staff treated woman who died from ME ‘as if she was to blame’

https://t.co/xms220BVVD

[Adam @ABrokenBattery]

Day 3 The Independent

“it would appear a considerable proportion of the staff at the Royal Devon and Exeter Hospital, including some consultants, still hold an outdated understanding that ME/CFS has psychological causes.”

https://t.co/QIS9vhTENX

[Adam @ABrokenBattery]

Day 3 The Times

A Harley Street consultant warned an NHS chief executive that a young patient with ME who was at risk of death was being failed by hospital staff who held “outdated attitudes” that her condition was self-inflicted, an inquest has heard.

https://t.co/F8HvC97NEG

[Adam @ABrokenBattery]

Sean O'Neill on BBC Radio 4 Today talking about his daughter Maeve Boothby-O'Neill who died of Severe ME in October 2021 and the upcoming inquest which starts on Monday to examine failings in her care.

Full Interview (6 mins 30)

https://t.co/v48pWOzyE9

[#MEAction Network UK @MEActNetUK]

Trigger Warning - death of a young woman

A lack of NHS treatment for people with myalgic encephalomyelitis (ME) is set to be interrogated at an inquest into the death of a 27-year-old woman..

https://t.co/Niwr6SWsLF

#MyalgicEncephalomyelitis #VerySevereME

[#MEAction Network UK @MEActNetUK]

Trigger Warning - death of a young women

@TimesONeill talks movingly to Emma Barnett about the death of his daughter, Maeve Boothby O’Neill, from ME and her upcoming inquest. His interview around 7.40am.

https://t.co/rbftEWAz9F

#MyalgicEncephalomyelitis #VerySevereME

[Carole Bruce @CaroleBruce17]

An excellent letter from a friend to Sajid Javid prior to the debate he’s heading on #ME next week. It could serve as a template for anyone that wishes to write to him or any MP. email address below.

https://t.co/RWTT6TlQi0

[Margaret Rumney @RedRubyGem]

Dragons' Den entrepreneur accused of 'selling snake oil' https://t.co/LyaYbwBfmP via @Femail

[ME Association @MEAssociation]

. @itvnews Dragons' Den: ME charities criticise BBC show for 'promoting unproven treatment'

"ME charities, including the ME Association, have criticised Dragons' Den for promoting an "unproven treatment" for the condition."

https://t.co/Rqs0u5c9hr

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #BBC #DragonsDen #AcuSeeds

[Margaret Rumney @RedRubyGem]

@biztradegovuk Post Office Scandal Full Compensation and accountability - Sign the Petition! https://t.co/u1CrAgWeD3 via @UKChange

[Margaret Rumney @RedRubyGem]

Hold the Met Police criminally accountable for the barbaric killing of two leashed dogs - Sign the Petition! https://t.co/bDOracy9E4 via @UKChange

[Tom Kindlon @TomKindlon]

9/

"Facilitating Aids & Adaptations"

From a new summary of the NICE ME/CFS guidelines

#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ChronicFatigueSyndrome

[Margaret Rumney @RedRubyGem]

Petition: Call an immediate general election to end the chaos of the current government https://t.co/GhDoTQnXeo

[Margaret Rumney @RedRubyGem]

New study reveals first genetic links in ME and chronic fatigue syndrome https://t.co/xHvg5N0Q0F via @Labiotech_eu

[Margaret Rumney @RedRubyGem]

https://t.co/7E0CMJJ86w

[Margaret Rumney @RedRubyGem]

@Haggis_UK @CaroleBruce17 If she thinks future flights will be full that must mean her plan for it to work as a deterrent must be failing

[Good Morning Britain @GMB]

'If they don't stay in the UK they get deported somewhere that you're saying is a safe place with a good future. I'm not sure where the deterrent is?'

@susannareid100 quizzes Foreign Secretary Liz Truss

[PotatoMasherAnnie @MashieAnnie]

For someone with ME, going out for coffee can be a multi-day endeavour. Rest days before and after, likely in bed. Of course, your friends only see the small bit in the middle at the cafe with you - the bit where you look fine.
#MEAwarenessHour