roger leek

Chair Birmingham & Solihull MND Assoc.
Research Champion + R&I Team PPI Lead -Birmingham Community Healthcare NHS fTrust,
MND RAG SITraN,
NIHR-RSS,
NIIHR-CRDC.

[MND Association @mndassoc]

We’re concerned to be hearing some people with SOD1 MND are being refused access to the life-changing drug tofersen because of a lack of service capacity to administer it.

We’re urgently investigating. If this is you, please contact us via email [email protected]

[MND Research @mndresearch]

Charlotte Gale-Rogers is a PhD student funded by @mndassoc.

She’s investigating changes in cell structure and shape in #MND #ALS.
These changes can lead to neurodegeneration 🧠

Charlotte is researching why this happens and if new therapies could correct this.

Find out more⬇️
https://t.co/1ut4TwK45s
#WomeninScience

[UK MND Research Institute @UKMNDRI]

Many people with #MND are asking about ellorarxine.

How are new drugs approved, and what does the evidence say about this research and drug? 🔬

We break down the drug development process and how we’re working to speed it up.

https://t.co/sujfugFuMW

[MND Research @mndresearch]

As of 31 December 2024, the @mndassoc total research portfolio has topped £24 million! 🎉

Thank you for enabling us to continue to fund cutting-edge research in the fight against #MND. 🔬

Find out more 👇
https://t.co/owbbmAOHmL

[ALS/MND Alliance @ALSMNDAlliance]

🚨 Warning: Websites and social media are full of claims with high promises for ALS/MND treatments. Read about ten red flags you should watch for from #ALSUntangled 🔗 https://t.co/8Q6xT1n754 🛡️ Be protected from misinformation.

[APPG on Motor Neurone Disease @APPGonMND]

The APPG on MND would like to wish you a #HappyNewYear.

We're determined to make a difference in 2025. That starts with listening to you - the #MND community.

Please take a minute to tell us what matters to you & please share 👇

https://t.co/z7UvdW9m9B

[MND Association @mndassoc]

New research being carried out by @UniOfLeicester will examine health and social care services for families living with MND.

Supported by funding from @NIHRresearch, in collaboration with the MND Association, the study will investigate how care pathways impact families.

[roger leek @RogerLeek]

@Celine_Benoit_ @AstonUniversity @UniofNottingham Good Luck & very Best Wishes for your new position.

[BCHC Community Connexions @BCHC_CommCX]

We have a come a long way! 3 years into this project seems like a journey accomplished into a dream. We thank each & everyone who had ever supported us in this work and we will continue to work with our communities @bhamcommunity @BCHC_RnI @BCHCRKIRBY @ceeveebee1 @FatimaZakia13

[BCHC R&I @BCHC_RnI]

We have some important and exciting news to share...
We have been shortlisted for the @HSJ_Awards for Primary and Community Care Innovation of the Year. Thank you to the shortlisting panel that considered our wheelchair weighing scales a contender. #HSJawards 🤩🙌🏽

[roger leek @RogerLeek]

https://t.co/GOpJhfnDv8

[Suzanne Cleary 💙 @cleary_suzanne]

Brilliant to see this happening, what a great example of true community engagement and partnership working. Great job @BCHC_CommCX and @bhamcommunity colleagues #Proud I hope we can work with local communities to do more of this, helping people access health screening and care

[Brian Dickie @DrBrianDickie]

Thought provoking session at #MNDEnCouRageUK on 'Controversy in Clinical Trials' superbly led by @AmmarAlChalabi #ALS #MND

[roger leek @RogerLeek]

@cleary_suzanne What will we do when our new government gives us lots & lots of money to repair the NHS???

[The University of Sheffield @sheffielduni]

We're so sorry to hear this sad news. Rob was a tireless campaigner, raising both awareness and funds to support vital MND research. He was an inspiration to so many, including researchers @neuroshef. Our thoughts are with his family, friends, fans and the MND community.

[@bhamcommunity @bhamcommunity]

Are you a carer? Pop into #BCHCCharity's Carers Support Event at @mac_birmingham on Weds 5 June to find out about local support services, and take part in fun and mindful activities. Find out more: https://t.co/cuDCHyoYLH

[BCHC Community Connexions @BCHC_CommCX]

Hi all, Community Connexions @bhamcommunity has been shortlisted for the 12th Community Inspiration Awards this year under the Health & Wellbeing category, your precious votes on the link below can make us the winners. Please vote for us! Thank you

https://t.co/dvO0iJjwyY

[roger leek @RogerLeek]

@ceeveebee1 @FatimaZakia13 @Celine_Benoit_ @BchftCommunity And acknowledged in NIHR RSS EDI workshop as an example of good working in the community
(and best of all . . . without any prompt from me! 😀)

[Christine Burt @ceeveebee1]

It was a privilege to present the progress of Community Connexions with @FatimaZakia13 @Celine_Benoit_ @BchftCommunity Hannah at the #RDF24. Diversity within research is growing and it’s good to play a part!