Richard Smallfield

Photographer, would-be writer, would-be musician, living with #ME, ;

[Richard Smallfield @RWSmallfield]

@MarkLlewellin3 @ConversationStr Bet is my favourite Corrie character ever. I can't imagine it without her. Julie Goodyear was fabulous as Bet.

[Richard Smallfield @RWSmallfield]

‘We cannot rely on the silenced to tell us about their suffering.’ - Hanan Ashrawi

[Richard Smallfield @RWSmallfield]

@davidtuller1 Talking rubbish has been a politically effective approach for them so far - which must be all they value. They certainly don’t value patient welfare.

[Richard Smallfield @RWSmallfield]

@agy_lena Agy, I identify with your steuggle. Has altitude change ever affected your symptoms? When I get up to about 6,000’, I feel like the ME has reduced a bit. Below 0°C I do feel a bit stronger, too. (I’m hoping to stay in a mountain lodge with my girlfriend soon.)

[Richard Smallfield @RWSmallfield]

@erikmoldwarrior I read another version which finished with: Finally, the wrong person gets credited.

[Richard Smallfield @RWSmallfield]

@agy_lena Who?

[Richard Smallfield @RWSmallfield]

@erikmoldwarrior Unfortunately, I can’t see that pattern ever changing. At the bottom of the foodchain of recognised illnesses, we’ll be gaslit for a long time yet. It causes not just distress, but poor prognosis. After all this time, lives are still being destroyed. It’s criminally negligent.

[Richard Smallfield @RWSmallfield]

Burma Hill Rd, The Paraparas

[Richard Smallfield @RWSmallfield]

Burma Hill Rd, The Paraparas

[Richard Smallfield @RWSmallfield]

Burma Hill Rd (I’ve given up on Instagram as it’s not a still photography app anymore.)

[Richard Smallfield @RWSmallfield]

@agy_lena All too true.

[Richard Smallfield @RWSmallfield]

@agy_lena @nataliesurely Much like me: studying, training, hiking … I tried of overcome fatigue with fitness, because doctors said my tests showed I was ok. The worst possible advice led to the worst possible management.

[Richard Smallfield @RWSmallfield]

@PeonyLeaves905 Blimey! How random can bad luck get?! I hope the insurance excess isn’t too great.

[Richard Smallfield @RWSmallfield]

https://t.co/dpc14WS3sm

[Richard Smallfield @RWSmallfield]

Julie Rehmeyer is very ill and her insurance company is refusing to pay the $40k for the air ambulance.

[Julie Rehmeyer @julierehmeyer]

Friends, I need your help again. I’m again having convulsions multiple times a day. I’m going to New York to see my neurosurgeon to figure out what the problem is. I can only travel by air ambulance, but my insurance, @BCBSIL, is refusing to cover this essential medical expense.

[Richard Smallfield @RWSmallfield]

@agy_lena I don’t know where to begin if I have to explain the extent of the medical neglect, prejudice and even fraud we’ve been subjected to. It’s so appalling that I don’t expect to be believed.

[Richard Smallfield @RWSmallfield]

@agy_lena @kimisgubbed @angryhacademic The dismissive assumptions that doctors made about me could never have been made if they’d had any idea of what I’d previously done: running, cycling, swimming, weight training, hiking, skiing, cricket. I did know what normal fatigue felt like. The pricks!

[Richard Smallfield @RWSmallfield]

@agy_lena @Rob_Roos @BernieSpofforth It’s very grim for you. You’re not forgotten, Agy … not that this makes you any less sick.

[Richard Smallfield @RWSmallfield]

@FranceyME @Dan_Wyke A lobby group with friends in the media is powerful indeed. Science will advance at its usual glacial pace, ‘from funeral to funeral’. Too slow for those of us who are growing old after decades with this illness.