Sacha Langton-Gilks

DD (1995-2012) #childcancer symptoms awareness #braintumour #dementia #EoLC Local #bereavement peer support facilitator. Singing teacher, author

[Sacha Langton-Gilks @SachaLG]

Follow the Child https://t.co/fBRRIL1rlx. In #DMAW21 this book is the only one written by parents 4 parents (checked by health care professionals of all types) and young people looking 4 practical info & support at #EndofLife #eolc.

[Andrea @4myJessBrady]

This petition calling for Jess’s Rule in Wales has already passed the threshold for consideration by the Petitions Committee, but reaching 10,000 signatures could lead to it being considered for a debate in the Senedd.
You do not need to be Welsh to sign.

https://t.co/8kRzEdbdnH

[Sacha Langton-Gilks @SachaLG]

Overwhelmed nearly 14 years after #DD died to see him remembered by #Dorsetwalkaholics & 4 awareness of symptoms of #braintumour - biggest #cancer killer under 40 @BrainTumourOrg @JustGiving

[Prof. Mark Taubert @ProfMarkTaubert]

Considerations:
1. The Royal College of Physicians have said the Bill is unsafe
2. The Royal College of Psychiatrists have said the Bill is unworkable, and unsafe
3. The British Geriatrics Society have said the Bill’s safeguards are not adequate
4. Domestic abuse charities have said the Bill is unsafe 5. Organisations representing disabled people have said the Bill is unsafe
6. Royal College of GPs says the Bill lacks adequate safeguards
7. Lord Stevens, ex NHS CEO, said legislating for assisted dying in the current climate of hospice cuts is “utterly ridiculous”
8. MIND says the safeguards are not adequate
9. The CLADD group at KCL (DOI) have said the Bill is “not fit for purpose”
10. The British Association of Social Workers say the Bill’s is not safe enough

[Jessica Brady CEDAR Trust @BradyCEDARTrust]

https://t.co/rAweOldE6K

We hope it will be shared widely & ultimately make a difference in creating awareness & achieving earlier diagnosis in Primary Care. The training is dedicated to a few of the many young people who lost their lives too soon. @RichardRawcliff @Simpson616

[Sacha Langton-Gilks @SachaLG]

@JamesTitcombe Just how I feel from the children's cancer symptoms awareness campaigning (biggest killer disease of children). Gut-punch, again, when Labour was supposed to be an end to chaos. Bless you for all your work.

[Sacha Langton-Gilks @SachaLG]

@BrineHealth @JimBethell @PreventionPodc Trying to campaign for awareness of biggest child killer disease & cause of life-changing disabilities was impossible under conservatives with all changes to health Ministers - as fast as I convinced one they'd change & I'd have to start again. Streeting has lost all my respect

[Sacha Langton-Gilks @SachaLG]

@ShaunLintern I went through 11 public heath minsters during conservatives trying 2 get #Headsmart child brain tumour symptoms communicated by national health bodies. Thought @UKLabour got we voted 4 them 4 STABILITY. Madness & cost of reorganisation whilst kids die/lifechanging disablities

[Michael Rosen 💙💙🎓🎓 NICE 爷爷 @MichaelRosenYes]

I've done 5 videos for pre-schoolers to help them learn poems. They've had in all more than 50k views with themes of Food, More Food, Dogs, Animals and Numbers. (5 more to be posted in the next few months)
https://t.co/mY70xEFfVl

[Sacha Langton-Gilks @SachaLG]

https://t.co/wYaIswaQ69

[CCLG @cclguk]

We're proud to see the government welcome #ChildCancerSmart's new guidance for GPs.

With funding from @NIHRresearch, it aims to shorten diagnosis times for under-18s with abdominal tumours - supporting England's #NationalCancerPlan to improve #EarlyDiagnosis 👇🏼 @DHSCgovuk

[Sacha Langton-Gilks @SachaLG]

@ItsNeverYou22 Our experience as self-employed parents was disastrous both whilst our son was ill (#braintumour) and after he died (2012).

[Noah's Ark Children's Hospice @NoahsArkHospice]

This #InternationalWomensDay, we honour Dame Cicely Saunders and the incredible women everywhere shaping hospice care, including the remarkable women here at Noah's Ark, whose compassion, dedication, and courage make a real difference for children and families every day. #IWD2026

[Wes Streeting @wesstreeting]

Huge congratulations to @SharonHodgsonMP on her appointment as Minister for Public Health and Prevention.

She has big shoes to fill left by @AshleyDalton_MP and brings enormous passion and experience to the role.

[Sacha Langton-Gilks @SachaLG]

@BrineHealth @PreventionPodc After your help a few years back, with @SharonHodgsonMP, still slogging 4 public child cancer symptoms awareness campaign from #NHS (widened out from just #braintumour- biggest child killer & disabler) On new national cancer plan but only as a case study...back to MP.

[Ed Davey @EdwardJDavey]

As a parent of a disabled child, you don’t want special treatment, just the right support for your child.

Yet while families battle, private equity firms are cashing in.

We’ll end this racket, cap profits at 8%, and treat SEND as critical national infrastructure.

[Prof Katherine Sleeman @kesleeman]

New @mariecurieuk research led by Dr Anna Bone and Prof Fliss Murtagh shows 170,000 people die every year with unmet need for palliative and end of life care. That’s one person every three minutes.

https://t.co/hJVWY1SfGG

[Sacha Langton-Gilks @SachaLG]

@carolecadwalla Boy am I glad I'm a fully paid up supporter of the Nerve!

[Sacha Langton-Gilks @SachaLG]

@dr_musgrave Got impression last time I heard her interviewed she'd have been happy with people not being criminally prosecuted if they accompanied a loved one to dignitas. Fronting a new law was a surprise. I now know terminal means the last year of life; more is incurable!

[Jessica Brady CEDAR Trust @BradyCEDARTrust]

Please do share. If your GP surgery is not displaying the posters, please ask if they are aware of Jess’s Rule. 6170 surgeries in England were sent them and a letter from @wesstreeting #Threestrikesandwerethink

[Sacha Langton-Gilks @SachaLG]

@carolecadwalla Potty-mouths unite! All the campaigning on child health of the years has turned me into a monster! It's worth it if it keeps my mental health in balance. I'm never allowed to swear at someone (except when driving with windows shut).