Sachin Sarcoma Society

An effective, dedicated and active patient support group in India to help Sarcoma, Desmoid tumor and GIST patients and caregivers all across the globe.

[Sachin Sarcoma Society @SachinSarcoma]

If you are a #sarcoma #desmoid #GIST then join our #supportgroup to spread #awareness and build #companionship and give #hope to patients who are fighting with #courage. Call at helpline number 7303827447. Visit https://t.co/crL8aeGvws

[Sachin Sarcoma Society @SachinSarcoma]

Desmoid Awareness Fact
In #desmoid Tumor’s, patients taking Sorafenib may get some side effects like
High blood pressure, decrease in appetite, hand foot syndrome, Hair fall, menstrual disturbances in females.
#awareness #desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

#Desmoidawarenessmonth
What is “Wait & Watch”?
Also called active surveillance, it means regularly monitoring a #desmoid tumor with check-ups and scans instead of starting treatment immediately.
If it grows or causes significant symptoms, treatment options may be considered.

[Sachin Sarcoma Society @SachinSarcoma]

Desmoid awareness fact:

#pathology plays an important role in #desmoidtumors as this determines right treatment options by the #sarcomaspecialist.
#awareness #desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

Organised 300 th support group meeting on last Sunday where Dr Mishel Parikh gave educational session on desmoid tumors in this desmoid tumor awareness month.
#desmoidtumors #desmoidawarenesmonth

[Sachin Sarcoma Society @SachinSarcoma]

Desmoid awareness fact 9

#Sorafenib can cause rashes on hands.
It is important to show to the treating #sarcomaspecialist and take medication as prescribed by the treating doctor.
#desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

Organising 300 th #desmoid support group meeting and desmoid education program on this Sunday for all newly diagnosed patients. This session will educate patients about what they need to know about desmoid tumors. Dr Mishel Parikh would be the guest speaker
#desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

Desmoid awareness fact 5
Desmoid tumors happen frequently between 15 and 60 years of age.
If diagnosed with desmoid tumors, meet a sarcoma specialist and join support group to connect with other desmoid patients. #desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

@SachinSarcoma wishing everyone Happy Janmasthami today.
#Happyjanamashthami

[Sachin Sarcoma Society @SachinSarcoma]

Desmoid awareness Fact 4
Desmoid tumors are also known as Fibromatosis.
If you are diagnosed with desmoid tumors, join the support group of @SachinSarcoma to connect with her desmoid patients, learn from their experiences and build companionship.
#desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

Fact 2 on #Desmoid Tumors
Desmoid tumors can happen anywhere in the body. It is usually found in abdomen, arms and legs.
#deamoidtumors #desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

September is #Desmoid Awareness Month. Let’s raise #awareness about desmoid tumors and connect Desmoid patients with each other so that they build strong #companionship with each other.
#desmoidawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

Wishing everyone happy Independence Day today.
#happyindependenceday

[Sachin Sarcoma Society @SachinSarcoma]

This is a complete guide for all the newly diagnosed patients to ask important questions when they meet their sarcoma specialist. This will help patients to understand about their disease and its treatment in a better way.
#sarcoma

[Sachin Sarcoma Society @SachinSarcoma]

#Sarcomas are #rarecancers. Many people come to know about this #cancer either when they are diagnosed with it or when someone in their family or known person is diagnosed with it. Awareness about this cancer is very important.
#sarcomaawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

If you notice any lump or bump in the body or notice any swelling, painful or not, abdominal pain, weight loss, chest pain, bone pain. If diagnosed go to #sarcoma specialist for the treatment, get blocks reviewed n join this support group of @SachinSarcoma.
#sarcomaawarenessmonth

[SPAGN @sarcomapatients]

Today, we're proud to join our member organization, the Spence Family Synovial Sarcoma Foundation, in recognizing Synovial Sarcoma Awareness Day.

🧵

#SynovialSarcomaAwarenessDay #SarcomaAwarenessMonth

[The Life Raft Group @Liferaftgroup]

Seeing a #GIST specialist can make a meaningful difference in your care. Their expertise can help you explore the best treatment options . Share your story: https://t.co/A4eSInrG8r
#SarcomaAwarenessMonth #YouAreNotAlone #GISTAwareness

[Sachin Sarcoma Society @SachinSarcoma]

DID YOU KNOW ?

#Surgeries in #sarcoma must be done by surgeons who are experts in sarcoma and not by any general surgeons. Right surgery done from right sarcoma specialist at the right time can improve the outcomes.
#sarcomaawarenessmonth

[Sachin Sarcoma Society @SachinSarcoma]

🟡 MYTH vs FACT | #SarcomaAwarenessMonth

Myth: If scans suggest sarcoma, a biopsy isn’t needed.

Fact: Scans can suggest—but only a biopsy confirms the diagnosis, identifies the sarcoma subtype, and guides the right treatment.
The right treatment starts with the right diagnosis

[Sachin Sarcoma Society @SachinSarcoma]

Organising 299 th #sarcoma #supportgroup meeting where Dr Bharat Rekhi, Pathologist from Tata memorial mumbai would give educational talk on
The role of pathology in sarcoma.
This session will empower patients to know about why correct diagnosis matters
#sarcomaawarenessmonth