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Today was Luke's last day of first grade!! Thank you to all of the amazing people that helped Luke have a great year!! The left photo is from the first day in September, the right is… https://t.co/Agcp1SoAh3
This is the look of a little boy who is wide awake and doesn't think it's bed time. When in fact, it is way past his bed time... #GoToSleep#GoodNight https://t.co/qOcu1MYCPI
It's crazy hair day at Luke's school. I tried, really I did! I added hair gel and tried to make it spikey. His hair is just too long though. Either way it looks a little crazy today.. #CrazyHairDay#MomFail
It's #RareDiseaseDay! We have on our #FightingForLuke shirts to spread awareness for Sanfilippo, and we're wearing #JeansForRareGenes to show support for all rare diseases. Most of which have no treatment. Please join us in raising awareness for rare diseases. #CureSanfilippo