Dear WA Senator Jeff Holy, how can we help move @WashingtonSRC https://t.co/hs7clWKJlX to create a Washington Rare Disease Advisory Council? Representation matters. #RareDisease#advocacy
Welcome @Upequity_Org and Rare Disease Innovations Institute https://t.co/Q5fcf7ia8m to the expanding @Rare_Ready genetic and rare disease coaltion. We believe Medicaid should cover telehealth visits with out-of-state providers. We’re all in this together. #RareDisease
Are you coming to 2022 Patient Advocacy Summit? #GGSummit22
Can u name the most rare diseases in 30 seconds?
Watch Effie Parks try
Taylor Kane created the challenge and will host it for us at the Summit.@globalgenes @rarelikeher #careaboutrare#raredisease@OnceUponAGene
I’m just going to put this out there
If you haven’t got a pharmacist in your world, get one
People seriously underestimate the power of a damn good pharmacist. We can do jobs people only imagine possible. Seriously, if you think it, a pharmacist can probably do it
It was an honor to speak to attendees at @GlobalGenes RARE Patient Advocacy Summit about beginning their rare disease advocacy journey. If you're interested in getting involved, visit https://t.co/vdiDNGjL4h or reach out to me at [email protected]! #RDLA#raredisease
"It is understanding what it is to be overlooked... because of the way you were born."
Arthur Hughes is the first disabled actor @TheRSC has cast in a lead role - he will be playing Richard III.
@JaneDodgeC4 reports from Stratford-upon-Avon.
https://t.co/HhKH1kNrda
Man at bus stop seeing me, a wheelchair user:
“I don’t have time to wait for a wheelchair to get on.”
Wheelchair users know about waiting.The resistance to us riding buses kept them inaccessible for years. Your wait is minimal. Our wait for access persists.
Hey #medtwitter who are your vascular access heroes? You know the person you always call to start an IV, or always consult with the most complicated cases! Please nominate them for @ISaveThatLine award!