Arian, our only child has Hunter Syndrome (MPS-II),a rare, genetic and terminal disease. Here to raise awareness about MPS and other #RareDiseases#SaveArian
International Rare Disease Day - 28th February, 2026
Every year on the last day of February, the world comes together to observe Rare Disease Day, a global movement dedicated to raising awareness of rare diseases and advancing equity in social opportunities, healthcare, diagnosis
Arian,a spirited soul living with Hunter Syndrome(a rare,genetic and terminal disease)plays Dhaak not just with his hands but with his heart. Despite a rare and terminal diagnosis,Arian fills our pandal with the rhythm of courage and joy, His music is a celebration of life itself