Scratch That UK

UK-based patient advocate organisation calling for the recognition and treatment of Topical Steroid Withdrawal Syndrome (TSWS)

[Scratch That UK @ScratchThat_UK]

It’s time #topicalsteroidwithdrawal got the recognition it deserves in the UK. We’re campaigning to raise awareness about this preventable, iatrogenic (medication-caused) skin condition. Follow us for updates!

[Scratch That UK @ScratchThat_UK]

@hansmollman Skin conditions can have a huge impact on mental health. It’s so important to talk to someone about how you feel. The link goes both ways, poor mental health & stress can affect your skin too ❤️ This was raised in parliament recently, I think someone else posted the link

[ITSAN @ITSANnonprofit]

"We are so happy to hear TSW finally being discussed on a parliamentary level. We were so humbled to find Scratch That were mentioned alongside the incredible team at @itsan.nonprofit."
- @ScratchThat_UK
Learn more here: https://t.co/XWS72274Bp

[𝕄 𝔼 𝕃 👑 @princessmel_87]

@DocHutch Having this trouble with many doctors who aren't believing the thousands (myself included) who are now suffering #TopicalSteroidWithdrawal because docs did us wrong. Now won't admit this is real @ITSANnonprofit @balmonds_uk @ScratchThat_UK

[Scratch That UK @ScratchThat_UK]

Holly from @ScratchThat_UK spoke to @bbcrb this morning about TSW following the latest report from @MHRAgovuk recognising the condition. Hear the full transcript through the link in our bio!

[Scratch That UK @ScratchThat_UK]

Across 34 studies of Topical Steroid Withdrawal patients: "Almost all authors recommended discontinuing the use of TCS (95.5%)" Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW

[Scratch That UK @ScratchThat_UK]

Across 34 studies of Topical Steroid Withdrawal patients: "The most frequently reported
symptoms were burning/stinging, exacerbation
with heat or sun, pruritus, pain, and facial hot
flashes" Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW

[Nottingham Eczema @eczemasupport]

Describe your own #skin to inform #dermatology research and education from @CEBDNottm #InternationalClinicalTrialsDay https://t.co/nIFeNxjih1

[Scratch That UK @ScratchThat_UK]

Huge thank you to @CebdNottm and @ECO_eczema and all the TSW warriors who joined for the wonderful meeting yesterday. It means a huge amount to us that the TSW community is being listened to. What a brilliant discussion!

[ITSAN @ITSANnonprofit]

GRIDD Delphi Survey #1 participants - you are now invited to complete Survey #2. Check your email for the link. Only respondents from Survey #1 will be contacted to complete Survey #2. The Survey is open until May 26.
https://t.co/1rCmJzXIXC

@globalskin_iadpo #itsan #tsws

[Scratch That UK @ScratchThat_UK]

“The most common sign was erythema (92.3%). One article...described a sharp cutoff between red and normal-appearing skin that often ran down the mid to outer cheeks whereas the nose and the ears remained clear” Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW

[ITSAN @ITSANnonprofit]

Calling our TSW warrior guys! ITSAN's Spark conference is this Saturday! Connect with others at the Men’s Group Breakout Session:
May 15, 2021
2:20-2:50pm EST
7:20-7:50pm GMT
Sign up here: https://t.co/ppWcJEUh8p
TSW warriors - use the link to register for the conference too!

[ITSAN @ITSANnonprofit]

These TSW warriors are bringing their success stories and strength. Come join us! Sign up here: https://t.co/pbAA0uUJNz

This conference is complimentary; please consider donating to ITSAN to help cover costs if you are able - thank you! https://t.co/eyilCwRYHa

@tsw_trooper

[Scratch That UK @ScratchThat_UK]

Across 34 studies of Topical Steroid Withdrawal patients: "The majority of the described patients were using either mid- or high-potency TCS (98.6%)" Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW

[Scratch That UK @ScratchThat_UK]

@OliviaMulhearn Great blog post Olivia! Some really good tips for coping with TSW 👏

[ITSAN @ITSANnonprofit]

Thank you Joana Ceddia for continuing to share your voice, to raise awareness about Topical Steroid Withdrawal Syndrome and to reach millions! Link to Joana's YouTube video: https://t.co/Xplva1SGqL

@JoanaCeddiaOfficial #itsan #topicalsteroidwithdrawalsyndrome #tsws

[what allergy? @WhatAllergy]

So proud of my blog which just turned 12 years old and also my two books. Head on over to https://t.co/aEeye1n7qC for heaps of information about #allergies #anaphylaxis #eczema #asthma #topicalsteroidwithdrawal and lots of free resources too!

[Dermatology Nottm @CebdNottm]

Do you have concerns about topical corticosteroid withdrawal?

Share your views on topical corticosteroid evidence at online event 19th May 5-7pm.

Email [email protected] for further information and to sign up.

#topicalsteroidaddiction #topicalsteroidwithdrawal

[BBC News (UK) @BBCNews]

Topical steroid addiction: Patients call for more support https://t.co/1ktykpCQWM

[Scratch That UK @ScratchThat_UK]

From a metaanalysis conducted by the NEA: “The majority of patients with manifestations of TCS withdrawal were women (81%) who had used TCS on their face (97%)” Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW