Sickle Cell Winning Ways

Raising awareness of Sickle Cell. Education on Sickle Cell. Provide information on winning ways to help children & adults with Sickle Cell Disease.

[Sickle Cell Winning Ways @SCWinningWays]

It was so emotional watching #CallTheMidwife tonight. It was great that they highlighted the awareness #sicklecell and how it can affect sickle cell warriors including severe painful crises 😭. Please, give blood ❤️.
@Sicklecelluk @GiveBloodNHS @redcellemma @DanielNyakutsey

[Sickle Cell Society @SickleCellUK]

☀️A red heat health alert has been issued for parts of England this week.
Hot weather can increase the risk of dehydration, which may trigger a #sicklecell crisis. Stay hydrated, keep cool and listen to your body. More information can be on our website https://t.co/gWrMQDBsTR

[Sickle Cell Society @SickleCellUK]

🩸 Make Work Fair for People with Sickle Cell. Meet Benji, sharing why the new Early Day Motion matters. Too many face unfair treatment at work.
✅ Recognise sickle cell as a disability
✅ Train employers
✅ Improve support
📝 Write to your MP: https://t.co/WKWmmG8Hxv #SickleCell

[Sickle Cell Society @SickleCellUK]

🌍 February 28th marks Rare Disease Day – a day to raise awareness for the millions of people living with rare diseases. Today, we shine a spotlight on Sickle Cell Disorder, a condition that affects millions worldwide, yet remains underrepresented. #RareDiseaseDay #SickleCell

[Sickle Cell Society @SickleCellUK]

With increased awareness in the sickle cell field, we’re closer than ever to achieving greater health equity. Together, we can push the boundaries of research that truly reflect the views those living with, or affected by sickle cell. #SickleCellResearch

[Sickle Cell Society @SickleCellUK]

This Valentine’s Day… Did you find your type? ❤️

While you’re thinking about your future, a simple Hb blood test can determine if you carry the sickle cell gene and could make a big difference for future generations.

Contact your GP today & find out your type. #SickleCellUK

[Sickle Cell Society @SickleCellUK]

NEW TREATMENT APPROVED FOR SICKLE CELL! We are delighted that NICE has today approved the groundbreaking gene therapy, Exa-cel, or Casgevy, for use through the NHS in people living with sickle cell disorder. Our CEO John James OBE comments here.

[ACLT Charity @acltcharity]

🩸Did you know only 2% of UK blood donors are Black?

That’s why 20+ young Black individuals came together at Brixton’s new blood centre to donate and inspire change. Their goal? To spark a movement for generations to come.

🎥 Watch their journey here: https://t.co/vQqScwmVrS

Who will you give your blood for?

#ACLT

[Sickle Cell Society @SickleCellUK]

❄️ Cold weather is still here, and with rising cold & flu cases, it’s vital to wrap up warm! 🧣 Cold can trigger a sickle cell crisis, so take extra care.

Need tips to stay warm? visit: https://t.co/sYa1PdJECD 💛

#StayWarm #SickleCell

[Sickle Cell Society @SickleCellUK]

Today, a plaque honouring the lifesaving work of the UK’s first sickle cell nurse specialist, Professor Dame Elizabeth Anionwu, was unveiled at London’s newest blood donor centre in the heart of Brixton.
Book your appointment to donate blood today: https://t.co/vwsFtx2Dsv

[Sickle Cell Society @SickleCellUK]

🎉 Exciting News! King's College Hospital is launching the "Ageing Well with Sickle Cell" project to improve care for adult SC patients facing ageing challenges. 📅 Join the patient event on 5th March (for King’s Hospital patients). Scan the QR to register! #SickleCellSupport

[NHS @NHSuk]

If you have flu, there are some things you can do to help get better more quickly.

Pharmacies can give treatment advice and recommend flu remedies if you need it.

Find a local pharmacy near you. https://t.co/CdvkVCG2Rd

[Sickle Cell Society @SickleCellUK]

Huge congratulations to our supporters recognised in New Year Honours list.
Matty Asante-Owusu MBE has transformed sickle cell care as a Sickle Cell Community Matron, and Dame Marie Gabriel, Chair of NHS North East London, is a champion for health equity and social justice.

[Ganesh Sathyamoorthy 💙 @gjsathyamoorthy]

Just coming back from the Power of Representation, Respect to all of those involved in orgainising this great event, a packed out Peckham theatre, the cast members of #supacell who came & represented, lets keep pushing the SC agenda forward @SickleCellUK @EHU_ARCNWL @ARC_NWL

[Nteteɛ Foundation @NteteeFoundatn]

As Sickle Cell Awareness Month draws to a close, let's all remember to choose kindness in our words and actions. #SickleStrong 💪🏾#SickleCellAdvocacy #SickleCellAwarenessMonth

[Sickle Cell Society @SickleCellUK]

VOXELOTOR WITHDRAWN FROM NHS. We are deeply shocked and extremely disappointed by Pfizer’s sudden decision to withdraw Voxelotor (OXBRYTA®)  from the NHS in the UK, and across the world. We were given no warning. Read our full statement here https://t.co/UisEb60s8X

[Sickle Cell Winning Ways @SCWinningWays]

Pfizer withdraws sickle cell disease treatment on risk of complication, death
@SickleCellUK @redcellemma @AbiWinning
https://t.co/1CBlqqLsuU

[Sickle Cell Society @SickleCellUK]

🌟 September is Sickle Cell Awareness Month 2024! 🌟 We're embracing our theme, *Stronger Together*, with weekly posts on Sickle Cell facts, nutrition, and mental health. Let’s raise awareness and support each other! 💪❤️ #SickleCellAwareness #StrongerTogether

[Sickle Cell Society @SickleCellUK]

This week, our focus is on the importance of nutrition for people with sickle cell. We are excited to be collaborating with a specialist dietitian. Read the Dietitian Blog Post here https://t.co/zJDZRi1PK3 #sicklecellawarenessmonth
@NHSSouthLondon @GSTTnhs @NHSSELondon

[Sickle Cell Society @SickleCellUK]

We’re collecting patient feedback on sickle cell services at UCLH and The Whittington Hospital. Attendance is free, by Microsoft Teams. 4.30pm or 5.00 pm
UCLH patients Tuesday 10th Sept https://t.co/QNCXN1qZ2g
Whittington patients Wednesday 11th Sept https://t.co/WRfz66VzhU

[Sickle Cell Society @SickleCellUK]

What is Sickle Cell? It’s a genetic condition where red blood cells become sickle-shaped, leading to pain and potential organ damage. Have tips on managing triggers? Share in the comments!

For more info, visit: https://t.co/faY1N2kfOk 🔗

#SickleCellAwareness #HealthMatters