Scleroderma Fndtn GW

Scleroderma Foundation Greater Washington, DC Chapter is a nonprofit for people with scleroderma, their families & friends. Disclaimer:

[Scleroderma Fndtn GW @SFGWDC]

Webinar: 6/18/19; 11:30-12:30pm EST
Register: https://t.co/Oo7JDZg5KI
This covers need-to-know facts about #scleroderma lung involvement, resources available to manage this diagnosis & resources available from the Scleroderma Foundation to help you on your journey towards health.

[Scleroderma Fndtn GW @SFGWDC]

On 6/19, 7pm EST, join Jim White, MD, PhD, Prof. of Pulmonary Disease & Critical Care, Dept. of Medicine, Univ. of Rochester, to learn about PAH & how to participate in the CATALYST clinical trial. Register at [email protected]. Conducted by Reata Pharmaceuticals.

[Scleroderma Fndtn GW @SFGWDC]

HIT A HOME RUN FOR #SCLERODERMA RESEARCH!

[Scleroderma Fndtn GW @SFGWDC]

Take me out to the ball game...
GET UR TICKET TODAY: https://t.co/W1HKZK3YVd

Join us on 6/23/19 at 1:35pm at a Washington Nationals game (Braves vs. Nationals) to raise funds & awareness about #scleroderma! Portion of the proceeds will be allocated for #research. Tickets: $30!

[Scleroderma Fndtn GW @SFGWDC]

@CorbusPharma will deliver presentations of study results of lenabasum, an investigational therapeutic being tested in clinical trials for treatment of #systemicsclerosis, #dermatomyositis, #cysticfibrosis & #lupus at #EULAR2019 next week: (link: https://t.co/xp3xS0cgEa)

[Scleroderma Fndtn GW @SFGWDC]

ONLINE REGISTRATION CLOSES AT 5PM TODAY FOR THE COLUMBIA, MD WALK!
Register now at https://t.co/WhuQlPptvG

You can register onsite on 5/18 at 9am at Atholton High School in Columbia, MD. Looking forward to seeing you tomorrow! Help us raise funds for #scleroderma research!

[Scleroderma Fndtn GW @SFGWDC]

REGISTER TODAY
https://t.co/WhuQlPptvG

Warleshia Wells was diagnosed in 2004 w/scleroderma & passed away on 7/13/18. She & her family participated in our 2017 Walk. Her family is participating again this year to walk in memory of Warleshia. Help raise $ for scleroderma research!

[Scleroderma Fndtn GW @SFGWDC]

SEE YOU ON MAY18TH - REGISTER TODAY FOR OUR #SCLERODERMA WALK/RUN! https://t.co/XO9mjJXI39

Help us increase awareness about #scleroderma & raise critical funds for scleroderma research! #systemicscleroderma #raynauds #spoonies

[Scleroderma Fndtn GW @SFGWDC]

APPLY TODAY FOR SCHOLARSHIP & ATTEND THE NAT'L PATIENT EDUC. CONF.!

Mica Thompson was a 2018 SFGWDC scholarship recipient & attended the Nat'l Patient Educ. Conf. in Philly. Mica had a great experience! #scleroderma

Apply for our scholarship today: https://t.co/HJHg9lsO5X

[Scleroderma Fndtn GW @SFGWDC]

Register today - 9th Annual Greater Baltimore Stepping Out to Cure Scleroderma 5K Walk/Run on May 18th! https://t.co/XO9mjJXI39

Every dollar raised adds up. Did u know that if every walker nationwide raised just $100, we'd raise $1.6 million for #scleroderma research & support?

[Scleroderma Fndtn GW @SFGWDC]

Lieutenant Colonel Tera Y. Carter was recently appointed to the #Scleroderma Foundation Greater Washington, DC Chapter's board of directors as its new treasurer. "I want to join the Board to honor the brave men & women who deal w/this awful disease everyday." @scleroderma

[Scleroderma Fndtn GW @SFGWDC]

Register today for the 9th Annual Greater Baltimore Stepping Out to Cure 5K Walk/Run on May 18th! Help us increase awareness about #scleroderma & raise funds for scleroderma research & for the chapter's programs. https://t.co/XO9mjJXI39

[Scleroderma Fndtn GW @SFGWDC]

REGISTER TODAY - 9TH ANNUAL GREATER BALTIMORE STEPPING OUT TO CURE SCLERODERMA 5K WALK/RUN ON MAY 18TH!
https://t.co/XO9mjJXI39
Register & create a team, join a team or make a donation to the Walk. You can help us increase awareness about #scleroderma & raise funds for research.

[Scleroderma Fndtn GW @SFGWDC]

SFGWDC has tallied the funds raised from our 1st Annual Central Virginia Stepping Out to Cure #Scleroderma 5K Walk. We exceeded our $5,000 fundraising goal & raised $10,587! Thank u to the amazing individuals & corporate sponsors in VA for your efforts! See you in 2020!

[Scleroderma Fndtn GW @SFGWDC]

REGISTER TODAY - 9TH ANNUAL GREATER BALTIMORE STEPPING OUT TO CURE SCLERODERMA 5K WALK/RUN ON MAY 18TH!
https://t.co/XO9mjJXI39

Register & create a team, join a team or make a donation to the Walk. You can help us increase awareness about #scleroderma & raise funds for research.

[Scleroderma Fndtn GW @SFGWDC]

APPLY FOR SCHOLARSHIP!
SFGWDC is offering 2 scholarships, each in the amount of up to $725, to help defray the cost of attending the National Patient Education Conference in Chicago, IL from July 19-21, 2019.

APPLICATION DEADLINE: 4/30/19
Apply today: https://t.co/oUtEvUhZ1X

[Scleroderma Fndtn GW @SFGWDC]

Elizabeth Theisen was recently appointed to the SFGWDC board of directors.

"Along with continuing to raise awareness of the disease and to lobby for funding for research and for those disabled from #scleroderma, serving on the Board is a way to honor my mother," she says.

[Scleroderma Fndtn GW @SFGWDC]

The Central Virginia Scleroderma Walk was a great event w/amazing people! We raised $5,215 so far & exceeded our $5,000 fundraising goal! Thank u to all who made this event a success & for supporting our efforts to raise awareness & funds for #scleroderma research!! #raredisease

[Scleroderma Fndtn GW @SFGWDC]

ONLINE REGISTRATION CLOSES AT 6PM TODAY!
SFGWDC thanks our Walk Co-Chairs Suzanne Raine & Margaret White for their efforts championing this event! And thank you to our sponsors for supporting the #scleroderma community!

Registration closes at 6pm today! https://t.co/xj4fWg6y2x

[Scleroderma Fndtn GW @SFGWDC]

REGISTER NOW! Online registration closes today at 6pm!

We're so close to our Walk fundraising goal of $5,000. We're at $4,810! So, let's see if we can get more folks to register to support our efforts to raise critical funds for #scleroderma research! https://t.co/xj4fWg6y2x